March for Babies - Huge Success!

Family and Friends,

The March of Dimes was a huge success. Thanks to all of your support, we collectively raised more than $2,500 to help other families. Thank you so much for the continued support.

With lots of Love!
The O'Briens

Please visit our March for Babies personal website at

www.marchforbabies.org/trinityandkinsley.

Tuesday May 5th

Babies Situation:

Today was another good day. Both Girls had their eyes checked for retinopathy of prematurity(ROP) which is abnormal growth of the blood vessels in an infant's eye. So far, all is good but there will be more eye exams in the future to make sure ROP doesn’t develop. If it does, eye surgery will be required. Trinity had a big change today. Dr. Diven decided to try her on nasal cannula which is a step up from the CPAP machine. We were so excited when we came in this evening to find her off CPAP. The CPAP covers her little nose so it’s hard to see her face. The nasal cannula is a clear plastic tube which fits behind her ears and has two short prongs which are placed in her nostrils. If she struggles through the night and needs more support, they will move her back to CPAP. Since she is tolerating feeds, fortifier was added to the milk to help her gain weight quicker. She remains at 3 lbs 5 oz.

Kinsley is doing well on her breathing but her lungs aren’t as strong as Trinity’s. She is still on the CPAP around 25% oxygen with a pressure of 9. She will not be able to get off the CPAP until she can stay at room temp(21%). She also needs to remain stabilized when she is getting assessed and her pressure needs to come down to at least a 7. The doctor is happy with her progress so far. She just needs a few more weeks for her lungs to mature. Kinsley’s feeding have changed. She is now getting fed bolus feedings every 3 hours. She is getting 28 cc's over a 2 hour span then 1 hour off. She actually lost weight and is now 2 lbs 15 oz.

Parent's Thoughts:

Since late last week, we were told that Trinity might be ready for the nasal cannula and that Tuesday might be the lucky day so today was highly anticipated. All day long, I waited for the phone call that she was changed over to the nasal cannula but never got one so I didn’t think it happened. When we went in tonight, I literally jumped for joy when I saw that the CPAP machine was gone. We are both so excited for her to be on the nasal cannula but somewhat hesitant just in case it is too much for her to handle. Please pray for both their lungs to continue to get stronger so that they will both be on the nasal cannula soon and can remain on it.

Our Daily Encouragement:


By day the Lord directs his love, at night his song is with me - a prayer to the God of my life.

Psalm 42:8

1 comment:

  1. Yay for another good day! I'm praying for their lungs and overall development and that they both move to the nasal cannula soon!

    Hugs,
    Monica Willenberg

    ReplyDelete