March for Babies - Huge Success!

Family and Friends,

The March of Dimes was a huge success. Thanks to all of your support, we collectively raised more than $2,500 to help other families. Thank you so much for the continued support.

With lots of Love!
The O'Briens

Please visit our March for Babies personal website at

At Home - Week 3 (Aug. 17th-23rd)

Babies Situation:

The girls turned 5 Months on the 18th. They are doing great!!! Both girls weigh 9 lbs 5 ounces. Kinsley can now actually sleep a good 6 hours but Trinity isn't quite ready for such a stretch. She wakes up hungry every 3 hours but is now feeding better than Kinsley. She has come a long way from her NG tube - what a blessing.

Both girls had hip ultrasounds this week to check for hip dysplasia. Both came back with no issues - thank you Lord. When you carry a baby breech there is a higher potential for hip dysplasia so we were are very thankful to hear the good news.

The girls also saw their Pulmonologist Dr. this week. Since the girls left the NICU, they have needed caffeine for stimulation during their feedings. Since being on caffeine, they had to come home on monitors to alert Mom and Dad if they have any heart rate drops or apnea. The monitors provide security for Mom and Dad but they also are difficult to maneuver when changing diapers and getting them around. There have been a few incidents with the monitors going off but it has been more user error than issues with the girls. The Pulmonologist confirmed that they are doing well and decided to take the girls off of caffeine. This is another great step in their development. However, they will still need the monitors for another month to ensure there are no issues coming off of caffeine. Your prayers are certainly helping - thank you.

We go through close to 2 dozen diapers per day. It is OK though because they are doing much better with their stools. In fact we only needed one suppository this week - this time for Kinsley. Lots going on but everything has been very positive this week. Thank you Lord for the continued path and care of these little miracles.

Parent's Thoughts:

The biggest issue for us as parents is finding time for rest. Luckily we have had Mimi here and have somewhat of a schedule with a few pockets here and there to get through some of the normal day to day chores. The rigors of taking care of twins is hard enough but the added variables of many different Dr. appointments, meds, and monitors compound the situation. However, we keep reflecting on how lucky we are to be so blessed with them no matter what the situation. We realize that God does not give us anything we cannot handle. We are embracing each day and week as best we can. We have so much support with friends bringing us dinners and checking in to see how we were doing. We can't thank you all enough. Without all of you these times would be much more difficult for us.

Weekly Encouragement:

Then Jesus said to his disciples: "Therefore I tell you, do not worry about your life, what you will eat; or about your body, what you will wear. Life is more than food, and the body more than clothes.

Luke 12:22-23

At Home - Week 2 (Aug. 10th-16th)

Babies Situation:

The girls are doing pretty well overall. The issue of the week is their stooling. They both like to wait days to take care of their business. In the NICU they received suppositories quite often so maybe they are still relying on a little extra help. Trinity has had a harder time stooling this week so we decided to give the suppositories a shot. Thankfully, Mimi stepped up to the plate to administer them when needed (a few times this week). She was astonished by the results. In fact, I even asked if she had any protection ready. Of course Trinity decided once she heard the word protection to foil the plan. She exploded on queue. Even though there was a big mess to clean up it worked great.

Kinsley also is having some serious gas pains. The issues of gas pains really affect their sleeping at night and make them very agitated. Lots of burping and back rubbing is needed right now - almost every time we pick them up they need to be burped.

We decided to change their feeding schedule. They are now eating every 3 hours with the exception of a 4 hour window in the evenings. It seems to make everyone's job a little easier but we shall see if the girls will go along with it as well. The girls are feeding pretty consistently (40-80 cc's per sitting). Their weight gain is about 1/2 ounce per day which isn't bad. They are sleeping more this week in between feeds even though we do everything we can to give them the awake time that they need.

Parent's Thoughts:

Overall we are in a bit of rhythm and things have settled down a bit for all of us. I have been exploring new job opportunities for the past couple of weeks, since my company was acquired in late July. On one hand it is great to be home with the girls but at the same time it has very difficult for me to know that Trena is headed back to work. She is such a great Mom and is doing everything she can for her babies. Thank you Mom. After almost 5 months, she started back at work on Monday. It was a tough week for her knowing she was leaving her babies at home with Daddy and Mimi. With the amount of work at home we kid her about how she has it easy at work - just kidding but not too much.

The OT Nurse comes every Tues to work with both girls and Thursday's to work with Trinity only. We get a pretty good report with a few tweaks to their feedings. We made an adjustment to Trinity's bottle and moved her to the same one Kinsley is using - Dr. Brown. It helps prevent the air intake and should reduce the amount of gas she has later in the night. We also learn some important exercises to help the girls continue to strengthen their muscles around their mouths for better feedings.

We also had new born photo session this week. The girls wanted no part of it as we could not get them to settle down. We were outside quite a bit and it was very very hot and sunny. Hopefully, there will be some good pictures to share with you soon.

Weekly Encouragement:

With Jesus' help, let us continually offer our sacrifice of praise to God by proclaiming the glory of his name.

Hebrew 13:15

At Home - Week 1 (Aug. 3rd-9th)

Babies Situation:

Trinity made it home late Sunday night (12 hours earlier than expected) as signs showed negative lab results. This was great news. We are hitting the reset button as a family with everyone officially home together again. It is a little bitter sweet but still an awesome feeling.

Trinity still has her NG tube inserted for continuous feeding through a pump at night time. Unfortunately, the feeding pump that we were given has not worked properly, since we were discharged last week. This is causing some problems. Essentially, she is getting her entire feed in half the amount of time. We feel so bad for her as we know her stomach must be expanding and contracting at a furious pace. Throughout the week, we exchanged 2 pumps and by Thursday August 6th we finally received a hospital grade pump (our 3rd pump) that worked for her - thank you Lord.

In the meantime, Trinity took maters into her own hands. She ripped out her NG tube twice in 2 days consecutively. This compounded the issues for us as we tried to insert the tube 3 times on Wed. night but were unsuccessful. It was in OK but we were not sure if it was in the right spot as we would get residuals one time but not the next. On Wed. we were fortunate to have our friend and Nurse, Nicole, help us with the insertion. Wed. night worked great with the new pump. However, on Thursday Trinity again took advantage of the small window and her little fingers to rip out the tube - she is a feisty little one. That afternoon, our OT nurse fed Trinity and she took almost 60 cc's. Since the tube was already out and she had done well with her feedings today, we decided to leave it out and bottle feed her throughout the night. What a miracle. She took to the bottle well. Hopefully, her NG tube and feeding pump is completely behind her now.

Their heart and respiratory monitors have been on for about 16 hours/day and all has gone well with the exception of one going off for 15 mins straight. It was like a smoke alarm so it was really unpleasant. The alarm could not be turned off even it was powered down and showing it to be off. Thankfully, it was a tool error and not something caused by a low heart rate or apneic spell.

On Thursday evening Trena's Mom, Terre (Mimi to the girls) came in to help us. What a blessing it is to have her here. These girls are a lot of work as I am sure you all know if you have kids. The girls love having Mimi here and so do the parents.

The girls had another Pediatrician visit this Friday and all seemed to go well. Most of the discussion surrounded the NG Tube, Feeding Pump, and their gas/reflux/fussiness. We have a couple of ideas to help alleviate some of their gas pains - prune juice and mylicon. Hopefully, this will help them stool and release the gasses.

We have had many friends swing by but Sunday the girls had their friends, Taylor and Leighton, come visit them. The four of them met in the NICU. You may know them as the Davis's. It was such a great visit to see them all together outside of the hospital. We have all been though so very much. We are blessed to now know them and call them our friends.

Parent's Thoughts:

We are very overwhelmed. Small things that are usually not bothersome seem to be huge. We are all tired short on sleep but know that we are doing all we can to help them. The girls have progressed this week and we are very thankful that Trinity may no longer need her feeding tube and pump. Thank you Lord. Mimi's help is also a true blessing to all of us. Our appreciation cannot be explained. We are trying to take it one challenge at a time. It is hard to keep all of their medications in check but we do have a self made schedule to help. We are tracking all feedings, stools, diaper changes, and meds as well. Even though it has been a difficult week we are very fortunate to have them home. In time we pray it will get a little easier for them and us.

Weekly Encouragement:

In this you greatly rejoice, through now for a little while you may have had to suffer grief in all kinds of trials. These have come so that your faith - of greater worth than gold, which perishes even though refined by fire - may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed.

1 Peter 1:6-7

Sunday August 2nd

Babies Situation:

What a crazy weekend. We had both their Occupational Therapist and their Home Health Nurse came out early Friday morning to meet the girls and start their work with them. We also took both Girls to see the Pediatrician for the first time Friday afternoon. We were there for 2 ½ hours while they got to know our history, measured and weighed them, and gave the Girls their 4 month vaccinations. We thought all was good until Trinity woke up with a 103 temperature Friday night. Long story short, Keith had to take her to Dell's Children’s Hospital. After already getting 4 shots this afternoon, she got many more tonight and had to be admitted. Luckily, they think it was only a virus not a bacteria infection - thank you Lord. She should get to come home this evening.

Parent's Thoughts:

This was another heart wrenching experience for us. As I held Trinity in my arms before Keith rushed her to the ER, her little cry was definitely a sick cry. It broke my heart, especially when Keith called me to tell me that they were admitting her into the hospital for the weekend. We only had her home for 36 hours before she was once again in the hospital and dealing with everything that she had just left behind. She had to get a spinal tap, multiple pokes for trying to get blood work, and an IV put into her head as they were unsuccessful through the 3-4 veins they tried. One of the hardest things in the world is to watch someone hurting your baby. Thankfully she is OK now and will be home tonight. We are hitting the reset button and hope that this time around will be a bit smoother for all of us.

Our Daily Encouragement:

God, who made the world and everything in it, since He is Lord of heaven and earth, does not dwell in temples made with hands. Nor is He worshiped with men’s hands, as though He needed anything, since He gives to all life, breath, and all things.

Acts 17:24-25

Friday July 31st

Babies Situation:

We are all slowly but surely adapting to our new lives. Keith is a great Daddy. We take turns feeding the Girls and helping each other out. We work as a team. We are running on little sleep but we each take turns catching up where we can. Since the Girls are home, we won’t be making daily updates but will continue to update you all on their progress at a minimum of once a week. We want to thank you all for your Prayers but we hope that you continue to pray for us. We have to keep the Girls healthy especially over the next year, since their immune system is still weak.

Parent's Thoughts:

It is so nice not having to visit the NICU anymore. We will miss all the friends we have made in the last 4.5 months but we place to keep in contact with everyone we have grown to know. We had such a wonderful experience at St. David’s. I highly recommend this hospital to everyone.

Our Daily Encouragement:

When times are good, be happy; but when times are bad, consider: God has made the one as well as the other. Therefore, a man cannot discover anything about his future.

Ecclesiastes 7:14

Thursday July 30th


Praise the Lord. We have made it. The girls came home today after 4.5 months. It was an interesting evening and day in the NICU. We were very fortunate that their primary Night Nurse, Andrea, was able to change her schedule so that we could all be together for one last night. We also were able to spend the day with Crystal, the girls primary daytime Nurse. These 2 Nurses have meant so much to us as a family and especially the girls. Along with all of the Doctors, these amazing people, kept the windy road of the NICU bearable. We love them all for all of their efforts, patience, guidance, and pure love for us and the girls. They are truly special people that have the very difficult job of managing not only what needs to happen on a day to day basis for the health of the all the babies that they care for but also the emotions of all of the family members they encounter along the way.

I also have to quickly comment on the NICU's Sleep In Room. We were fortunate as we were the first family to stay in their recently redone room. It was really nice. They have done a great job trying to replicate a feeling of home there. I can say it made a big difference this past evening.

Mom and Dad were pretty much on our own (Full Duty) but we had a couple of visits from Andrea. We gave them all of their medications, did their assessments at the appropriate times, and bottle fed Kinsley. Trinity took her first continuous feed throughout the night through her NG tube so she just needed to be assessed. All went pretty well but little sleep for Mom and Dad.

Crystal was very nice and brought us breakfast tacos - so good. Thanks Crystal. During the day we had so much to go through. All the questions, paperwork, and review of everything that they needed for the days and months to come. It was an exciting but scary time for us. The girls were ready to leave but were sad to say bye to Andrea and Crystal.

We got all of their prescriptions and will need to fill them on the way home - Caffeine, Iron, Multi-Vitamins, Reglan, and Zantac. It is a crazy schedule of meds but necessary to the girls. Both Trinity and Kinsley get these meds at different times through syringes. Looks like we will be running a Pharmacy out of the house but hopefully not for too long. The girls each will be coming home on monitors to alert us if they have a heart rate drop or any Apnea. These monitors sound like Fire Alarms so hopefully they will not go off to often. They also will go off if there is a loose connection - oh no. Trinity comes home with a Feeding Pump for continuous feeds at night as she still is not taking her entire bottles during the day. She will be put on a nighttime rate based on her consumption during the daytime feeds.

As you can see there is a lot going on but that is OK with us as we will finally be together as a Family. Thank you Lord for this path and please give us the energy and patience in the coming days and months.

Our Daily Encouragement:

You will keep in perfect peace him whose mind is steadfast, because he trusts in you. Trust in the Lord forever, for the Lord, is the Rock eternal.

Isaiah 26:3-4

Wednesday July 29th

Babies Situation:

The girls are ready to break out of the NICU. They are really being active and fussy. In fact, our Nurses have to put them in a sling and walk them around more often to settle them down. Plus the girls like to visit with everyone else there (social butterflies). They are getting restless and need the development and stimulation at home which is great but I think our Nurses just want to have them close to them, since they are leaving soon. I also think the girls may realize that their visit will end soon so they make our Nurses carry them around. The girls want to be near our Nurses as well. We are still working through a lot of items and details of how we are going to manage everything when we get home. More details to come tomorrow on these items.

Parent's Thoughts:

We are so close. What a journey filled with so many emotions. The end of our stay in the NICU is upon us. It has seemed like our stay passed quickly but also felt like we were there for a lifetime. It is officially rooming in night so there is much to do to prepare for them to come home - Lots of questions to be answered, Lots of thank you notes and hugs to be delivered, Lots of celebrating to be enjoyed. We will update you on our stay tomorrow and everything we will encounter in the days to come.

I know we have written this before, but all of you have played such an important role to our family in this process - more than you will ever know. I hope you take great joy in celebrating with us. These little miracles have endured the ups and downs of a NICU life to this point. We have been blessed that they have avoided many of the major surgeries or issues thus far, have had the best care we could have ever imagined, and have had all of the support from all of you out there. Even though we may be leaving the NICU, the challenges in the coming days, months, and years, will still remain. We will all continue to stay at an even keel, taking it one day and 1 challenge at a time. We understand that God is in control. As you have seen, we have had many more positive days than negative - a true blessing. Thank you all and most importantly thank you Lord.

Our Daily Encouragement:

The Lord is gracious and righteous; our God is full of compassion. The Lord protects the simplehearted; when I was in great need, he saved me. Be at rest once more, O my soul, for the Lord has been good to you.

Psalm 116: 5-7