Babies Situation:
The girls are 35 weeks gestation today and growing. Trinity lost an ounce and weighs 4 lbs 6 oz while Kinsley gained for both of them weighing 4 lbs 12 oz. Both Girls got their immunizations tonight. Dr. Kansas told us that she recommends that the babies get their first immunizations in the NICU since sometimes it will cause them to have more apnea. They now can watch them closely to make sure they do not have any severe reactions to the shots. She also told me that Kinsley isn’t ready to come off her nasal cannula just yet but hopefully soon.
Parent's Thoughts:
Crystal and I had a good laugh at the babies today. They grunt all day long!!! They grunt when you aren’t touching them but they also grunt when you are. You cannot take their temperature or change their diaper without grunts. If you move them, they grunt. Fortunately, we think their grunting is the cutest thing ever. Now when we bring them home and cannot get any sleep, we might think differently - ha.
Our Daily Encouragement:
The eternal God is your refuge, and underneath are the everlasting arms.
Deuteronomy 33:27
Wednesday May 27th
Babies Situation:
The Girls are 10 weeks old today. It is amazing how fast time has flown by. Trinity gained weight and is now 4 lbs 7 oz. Kinsley remains at 4 lbs 9 oz. The speech therapist assessed both Girls for bottle feeding today. She tried to bottle feed Trinity and decided she still isn’t ready. She’ll try again at the end of the week to see if there is any improvement. For Kinsley, she didn’t bottle feed her but did do a few exercises with her and she definitely isn’t ready yet. It is time for the Girls to get their immunizations in the next few days so we’ve been asked to read and give authorization. Other than that, no new changes.
Parent's Thoughts:
Please keep the Girls in your prayers. We need Kinsley to come off her nasal cannula in the next week. For both Girls, we need the apnea to go away and for them to bottle feed and gain weight. If both of these occur, they should be able to go home. We are still hoping to bring them home by 40 weeks (July 2nd). We also ask that you pray for our little friend Aiden. He is now 31 weeks and he just started having intestinal issues. If you remember, intestinal issues start occurring around 31-34 weeks. Thank you for everyone’s prayers and support. As you have witnessed, prayers work!!
Our Daily Encouragement:
The righteous cry out, and the Lord hears them; he delivers them from all their troubles. The Lord is close to the brokenhearted and saves those who are crushed in spirit.
Psalm 34:17-18
The Girls are 10 weeks old today. It is amazing how fast time has flown by. Trinity gained weight and is now 4 lbs 7 oz. Kinsley remains at 4 lbs 9 oz. The speech therapist assessed both Girls for bottle feeding today. She tried to bottle feed Trinity and decided she still isn’t ready. She’ll try again at the end of the week to see if there is any improvement. For Kinsley, she didn’t bottle feed her but did do a few exercises with her and she definitely isn’t ready yet. It is time for the Girls to get their immunizations in the next few days so we’ve been asked to read and give authorization. Other than that, no new changes.
Parent's Thoughts:
Please keep the Girls in your prayers. We need Kinsley to come off her nasal cannula in the next week. For both Girls, we need the apnea to go away and for them to bottle feed and gain weight. If both of these occur, they should be able to go home. We are still hoping to bring them home by 40 weeks (July 2nd). We also ask that you pray for our little friend Aiden. He is now 31 weeks and he just started having intestinal issues. If you remember, intestinal issues start occurring around 31-34 weeks. Thank you for everyone’s prayers and support. As you have witnessed, prayers work!!
Our Daily Encouragement:
The righteous cry out, and the Lord hears them; he delivers them from all their troubles. The Lord is close to the brokenhearted and saves those who are crushed in spirit.
Psalm 34:17-18
Tuesday May 26th
Babies Situation:
We had another poop party tonight. As Keith was giving Trinity a bath, she just couldn’t help herself and soiled the water. Miss Kinsley had a diaper blow out right before her bath and soiled her new onesie and blanket. We have some stinky little Girls - ha!! Neither of the Girls gained weight tonight (we are assuming due to the poop party). Both did receive their eye exams. So far, still no ROP - Thank you God!! Oh, and they both graduated to the big girl pacifier. They are now using a full term baby pacifier. I know it doesn’t sound like a big step but it is if you would have seen their micro-preemie pacifier.
Parent's Thoughts:
It is amazing to watch both Girls grow. Trinity loves her pacifier and it is so cute to see her sucking away. Both Girls like to be held where they can see over your shoulder. They love looking around the room. They are becoming more alert now during their assessments and remain awake longer than before.
Our Daily Encouragement:
Pray…that you may live a life worthy of the Lord and may please him in every way: bearing fruit in every good work, growing in the knowledge of God, being strengthened with all power according to his glorious might so that you may have great endurance and patience, and joyfully giving thanks to the Father.
Colossians 1:10-12
We had another poop party tonight. As Keith was giving Trinity a bath, she just couldn’t help herself and soiled the water. Miss Kinsley had a diaper blow out right before her bath and soiled her new onesie and blanket. We have some stinky little Girls - ha!! Neither of the Girls gained weight tonight (we are assuming due to the poop party). Both did receive their eye exams. So far, still no ROP - Thank you God!! Oh, and they both graduated to the big girl pacifier. They are now using a full term baby pacifier. I know it doesn’t sound like a big step but it is if you would have seen their micro-preemie pacifier.
Parent's Thoughts:
It is amazing to watch both Girls grow. Trinity loves her pacifier and it is so cute to see her sucking away. Both Girls like to be held where they can see over your shoulder. They love looking around the room. They are becoming more alert now during their assessments and remain awake longer than before.
Our Daily Encouragement:
Pray…that you may live a life worthy of the Lord and may please him in every way: bearing fruit in every good work, growing in the knowledge of God, being strengthened with all power according to his glorious might so that you may have great endurance and patience, and joyfully giving thanks to the Father.
Colossians 1:10-12
Monday May 25th
Babies Situation:
The girls are getting bigger every day. Kinsley now weighs 4 lbs 9 oz (wow way to go Kinsley) while Trinity now weighs 4 lbs 5 oz. It is great to see them gaining so rapidly. They are also still swaddled and are now even facing each other in their crib. It is so cute to see them together. They almost work off of what the other is thinking. The bottle feeding for Trinity has been put on hold. The doctor would like to wait until the speech therapist sees her again to see if she is really ready. In the meantime, we will continue to give her the pacifier during feedings and will do the oral exercises the therapist has suggested. Kinsley is starting to look for her hand when it’s time to feed so I think she is slowly getting ready to try bottle feeding.
Parent's Thoughts:
We are really enjoying all the interaction that we are getting with the babies now. We can hold them as much as we want, it is so much easier to change diapers in the crib rather than the isolate, watching them suck on their pacifier is so cute, and hearing all their cute noises just melts our hearts. Holding them at the same time is really enjoyable too. They are still getting stronger each day and growing like a weed. We are so blessed. Our babies went from 1 lb 6 oz and 1 lb 4 oz to 4 lbs 5 oz and 4 lbs 9 oz. God is good. True miracles.
Our Daily Encouragement:
Do not conform any longer to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God’s will is-his good, pleasing and perfect will.
Romans 12:2
The girls are getting bigger every day. Kinsley now weighs 4 lbs 9 oz (wow way to go Kinsley) while Trinity now weighs 4 lbs 5 oz. It is great to see them gaining so rapidly. They are also still swaddled and are now even facing each other in their crib. It is so cute to see them together. They almost work off of what the other is thinking. The bottle feeding for Trinity has been put on hold. The doctor would like to wait until the speech therapist sees her again to see if she is really ready. In the meantime, we will continue to give her the pacifier during feedings and will do the oral exercises the therapist has suggested. Kinsley is starting to look for her hand when it’s time to feed so I think she is slowly getting ready to try bottle feeding.
Parent's Thoughts:
We are really enjoying all the interaction that we are getting with the babies now. We can hold them as much as we want, it is so much easier to change diapers in the crib rather than the isolate, watching them suck on their pacifier is so cute, and hearing all their cute noises just melts our hearts. Holding them at the same time is really enjoyable too. They are still getting stronger each day and growing like a weed. We are so blessed. Our babies went from 1 lb 6 oz and 1 lb 4 oz to 4 lbs 5 oz and 4 lbs 9 oz. God is good. True miracles.
Our Daily Encouragement:
Do not conform any longer to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God’s will is-his good, pleasing and perfect will.
Romans 12:2
Sunday May 24th
Babies Situation:
It was another great day for the girls. Lots of news to report. Kinsley now weighs a whopping 4 lbs. 6 oz and is 17 inches long. Trinity hasn't changed in a couple of days and weighs 4 lbs. 3 oz but she is now 16.75 inches long. Due to Kinsley’s weight gain, her feedings increased to 41 cc’s over 1 hour every three hours. Her oxygen pressure on the nasal cannula was also decreased from 2 to 1 which is a big improvement. Good job Kinsley!! Both Girls are doing really well with their breathing. We did try to bottle feed Trinity again today. She struggled a little more today than yesterday but she did take 3 cc’s (1 more cc than yesterday). As we tried to bottle feed her, she fell asleep a few times and would forget to breath. She had a few A’s and B’s and needed to be stimulated a lot to help her focus. She did a lot of licking of her lips as she could taste the milk but was trying to figure out how to swallow it.
Parent's Thoughts:
With experiencing Trinity’s first two days of bottle feeding, we can tell it is going to require a lot of patience from us and a lot of hard work from the Girls. The bottle feeding will not come easy to them so we will start off very slow with trying 1 bottle feeding a day for around 10 minutes. It is a lot of work for Trinity (hopefully Kinsley too soon) which in turn wears her out fast. After 10 minutes, Trinity was spent and fast asleep. For some reason, it is somewhat stressful on us and emotional as we thought bottle feeding would come easy. It was hard to see her so tired as we kept trying to get her to take the bottle. I notice that Keith and I have gotten a little comfortable and forgot how trialing our situation still is. We will lean on God for patience and remember that it’s all in his hands. Thank you God for our sweet baby Girls.
Our Daily Encouragement:
And all these blessings shall come upon you and overtake you, because you obey the voice of the Lord your God.
Deuteronomy 28:2
It was another great day for the girls. Lots of news to report. Kinsley now weighs a whopping 4 lbs. 6 oz and is 17 inches long. Trinity hasn't changed in a couple of days and weighs 4 lbs. 3 oz but she is now 16.75 inches long. Due to Kinsley’s weight gain, her feedings increased to 41 cc’s over 1 hour every three hours. Her oxygen pressure on the nasal cannula was also decreased from 2 to 1 which is a big improvement. Good job Kinsley!! Both Girls are doing really well with their breathing. We did try to bottle feed Trinity again today. She struggled a little more today than yesterday but she did take 3 cc’s (1 more cc than yesterday). As we tried to bottle feed her, she fell asleep a few times and would forget to breath. She had a few A’s and B’s and needed to be stimulated a lot to help her focus. She did a lot of licking of her lips as she could taste the milk but was trying to figure out how to swallow it.
Parent's Thoughts:
With experiencing Trinity’s first two days of bottle feeding, we can tell it is going to require a lot of patience from us and a lot of hard work from the Girls. The bottle feeding will not come easy to them so we will start off very slow with trying 1 bottle feeding a day for around 10 minutes. It is a lot of work for Trinity (hopefully Kinsley too soon) which in turn wears her out fast. After 10 minutes, Trinity was spent and fast asleep. For some reason, it is somewhat stressful on us and emotional as we thought bottle feeding would come easy. It was hard to see her so tired as we kept trying to get her to take the bottle. I notice that Keith and I have gotten a little comfortable and forgot how trialing our situation still is. We will lean on God for patience and remember that it’s all in his hands. Thank you God for our sweet baby Girls.
Our Daily Encouragement:
And all these blessings shall come upon you and overtake you, because you obey the voice of the Lord your God.
Deuteronomy 28:2
Saturday May 23rd
Babies Situation:
Trinity had an extra special day today. She had her first try at bottle feeding and was taken off the nasal cannula. She is breathing on her own without any support - How amazing. Dr. Diven decided to give her a chance on her own so hopefully she is strong enough to register her breathing. Michele and I also gave them their baths. As far as the bottle feeding, Trinity was able to take in 2 cc’s and then was fed the rest through a nasal feeding tube. They had to remove the other feeding tube to allow for bottle feeding. Kinsley also gained a little weight and is now 4 lbs 4 oz. Trinity remained at 4 lbs 2 oz.
Parent's Thoughts:
We are so happy to see such good progress but also know that the move off of nasal cannula was more a trial to see if she could handle it at this point. So far so good but we do not want to get to excited in case she does have to go back on some pressure. With Trinity being off the feeding tube and the nasal cannula, we can finally see her entire face. We are very thankful that God is on their side - praise, praise, praise.
Our Daily Encouragement:
Because of Christ and our faith in him, we can now come fearlessly into God’s presence, assured of his glad welcome.
Ephesians 3:12
Trinity had an extra special day today. She had her first try at bottle feeding and was taken off the nasal cannula. She is breathing on her own without any support - How amazing. Dr. Diven decided to give her a chance on her own so hopefully she is strong enough to register her breathing. Michele and I also gave them their baths. As far as the bottle feeding, Trinity was able to take in 2 cc’s and then was fed the rest through a nasal feeding tube. They had to remove the other feeding tube to allow for bottle feeding. Kinsley also gained a little weight and is now 4 lbs 4 oz. Trinity remained at 4 lbs 2 oz.
Parent's Thoughts:
We are so happy to see such good progress but also know that the move off of nasal cannula was more a trial to see if she could handle it at this point. So far so good but we do not want to get to excited in case she does have to go back on some pressure. With Trinity being off the feeding tube and the nasal cannula, we can finally see her entire face. We are very thankful that God is on their side - praise, praise, praise.
Our Daily Encouragement:
Because of Christ and our faith in him, we can now come fearlessly into God’s presence, assured of his glad welcome.
Ephesians 3:12
Friday May 22nd
Babies Situation:
The Girls had some changes today. Both gained weight. Trinity is 4 lbs 2 oz and Kinsley is 4 lbs 3 oz. They both were started on Epogen. They will get 3 Epogen shots a week to help them produce red blood cells. This should keep them from having to get anymore blood transfusions. Their feedings increased. Trinity is now getting 40 cc’s and Kinsley is getting 39 cc’s - both on full feeds. The biggest change was the redcution of the amount of pressure being used for their nasal cannula. Trinity was reduced from 2 liters to 1 liter of oxygen pressure and Kinsley’s was reduced from 3 liters to 2 liters. This is a big step in the right direction.
Parent's Thoughts:
The goal is to have both Girls off the nasal cannula by week 36. Trinity is very close but Kinsley will need the 2 weeks. She still needs the extra support. They both have come such a long way and have done so well. They are amazing little fighters that continue to get stronger each day. We really look forward to them breathing totally on their own without any support.
Our Daily Encouragement:
If I say,"Surely the darkness will hide me and the light become nightaround me," even the darkness will not be dark to you; the night will shine like the day, for darkness is as light to you.
Psalm 139:11-12
The Girls had some changes today. Both gained weight. Trinity is 4 lbs 2 oz and Kinsley is 4 lbs 3 oz. They both were started on Epogen. They will get 3 Epogen shots a week to help them produce red blood cells. This should keep them from having to get anymore blood transfusions. Their feedings increased. Trinity is now getting 40 cc’s and Kinsley is getting 39 cc’s - both on full feeds. The biggest change was the redcution of the amount of pressure being used for their nasal cannula. Trinity was reduced from 2 liters to 1 liter of oxygen pressure and Kinsley’s was reduced from 3 liters to 2 liters. This is a big step in the right direction.
Parent's Thoughts:
The goal is to have both Girls off the nasal cannula by week 36. Trinity is very close but Kinsley will need the 2 weeks. She still needs the extra support. They both have come such a long way and have done so well. They are amazing little fighters that continue to get stronger each day. We really look forward to them breathing totally on their own without any support.
Our Daily Encouragement:
If I say,"Surely the darkness will hide me and the light become nightaround me," even the darkness will not be dark to you; the night will shine like the day, for darkness is as light to you.
Psalm 139:11-12
Thursday May 21st
Babies Situation:
The Girls are 34 weeks today, 6 more weeks until they are full term!!! Yeah!! They had a special visitor today. They got to meet their Aunt Michele for the first time. Michele got to hold both babies, separately. We’ll have her holding both at the same time before the weekend is over. No changes were made today on the Girls but Kinsley did gain some weight. She is now at 4 lbs 2 oz while Trinity remains at 4 lbs.
Parent's Thoughts:
As most of you know, we do not have any family here in Austin. We consider all of our wonderful friends our Austin family but it’s great to have real family in town. It means a lot to us to have Michele here meeting her nieces for the first time. It’s not only special for the babies but it’s really special for us. We hope one day that the Girls will have their cousins to play with whenever they want. We are both very family oriented and grew up having a bunch of cousins around. I hope the same for our babies.
Our Daily Encouragement:
But when you pray, go into your room, close the door and pray to your Father, who is unseen. Then you Father, who sees what is done in secret, will reward you.
Matthew 6:6
The Girls are 34 weeks today, 6 more weeks until they are full term!!! Yeah!! They had a special visitor today. They got to meet their Aunt Michele for the first time. Michele got to hold both babies, separately. We’ll have her holding both at the same time before the weekend is over. No changes were made today on the Girls but Kinsley did gain some weight. She is now at 4 lbs 2 oz while Trinity remains at 4 lbs.
Parent's Thoughts:
As most of you know, we do not have any family here in Austin. We consider all of our wonderful friends our Austin family but it’s great to have real family in town. It means a lot to us to have Michele here meeting her nieces for the first time. It’s not only special for the babies but it’s really special for us. We hope one day that the Girls will have their cousins to play with whenever they want. We are both very family oriented and grew up having a bunch of cousins around. I hope the same for our babies.
Our Daily Encouragement:
But when you pray, go into your room, close the door and pray to your Father, who is unseen. Then you Father, who sees what is done in secret, will reward you.
Matthew 6:6
Wednesday May 20th
Babies Situation:
We have 4 pounders on our hands. Both Trinity and Kinsley are officially 4 lbs today. 9 weeks old and 4 lbs!! The Girls are having another good day. Both had labs taken this morning to make sure everything looks good and it did. They are also doing well on their feedings but do desat a little bit during their feedings which is common in preemies. However they will have to improve for them to come off the nasal cannula. There are 3 levels to the nasal cannula: 1 liter, 2 liters, and 3 liters. Trinity is on 2 liters of oxygen and Kinsley is on 3 liters of oxygen. They will probably decrease their levels in the next week or so if all goes well.
Parent's Thoughts:
The Girls are 9 weeks old today and will be 34 weeks gestation tomorrow. We were able to give both Girls tub baths tonight. It was so much fun!! They loved it!! They just looked around as we scrubbed them up. Mimi(Grandma Baden) also bought them cute fuzzy hats that they modeled for us tonight. Talk about cute! Andrea called them “Southern Bell Hats”. We will have them model them once again when the babies get older. They will add a little spunk to their wardrobe - ha.
Our Daily Encouragement:
For in Him we live and move and have our being.
Acts 17:28
We have 4 pounders on our hands. Both Trinity and Kinsley are officially 4 lbs today. 9 weeks old and 4 lbs!! The Girls are having another good day. Both had labs taken this morning to make sure everything looks good and it did. They are also doing well on their feedings but do desat a little bit during their feedings which is common in preemies. However they will have to improve for them to come off the nasal cannula. There are 3 levels to the nasal cannula: 1 liter, 2 liters, and 3 liters. Trinity is on 2 liters of oxygen and Kinsley is on 3 liters of oxygen. They will probably decrease their levels in the next week or so if all goes well.
Parent's Thoughts:
The Girls are 9 weeks old today and will be 34 weeks gestation tomorrow. We were able to give both Girls tub baths tonight. It was so much fun!! They loved it!! They just looked around as we scrubbed them up. Mimi(Grandma Baden) also bought them cute fuzzy hats that they modeled for us tonight. Talk about cute! Andrea called them “Southern Bell Hats”. We will have them model them once again when the babies get older. They will add a little spunk to their wardrobe - ha.
Our Daily Encouragement:
For in Him we live and move and have our being.
Acts 17:28
Tuesday May 19th
Babies Situation:
The Girls are enjoying their new crib life. When one of the girls moves or makes a sound, the other one seems to do the same. It’s quite cute. Lots of interesting sounds are now heard coming from their crib. Because the isolettes were closed in, we didn’t hear too much from the babies. We randomly heard a little cry but now we hear everything. Only a few changes occurred today. Trinity was started on vitamins and iron. Kinsley has been on them for awhile. Both of their caffeine levels were increased to match their weight and neither baby gained today. Kinsley actually lost an ounce and weights 3 lbs 13 oz while Trinity remained the same at 3 lbs 14 oz. Both Girls had their eye exams today. Poor babies. Their eyes were red and puffy when I got there. No ROP so far!!! Thank you God!!
Parent's Thoughts:
This is around the time ROP (Retinopathy of Prematurity) will surface if they are going to get it. We hope and pray that neither baby will get this but please keep them in your prayers that this won’t be an issue for them. If it does occur, they will have to get laser surgery which is a big set back.
Our Daily Encouragement:
The Lord is righteous in all his ways and loving toward all he has made. The Lord is near to all who call on him, to all who call on him in truth. He fulfills the desires of those who fear him; he hears their cry and saves them.
Psalm 145:17-19
The Girls are enjoying their new crib life. When one of the girls moves or makes a sound, the other one seems to do the same. It’s quite cute. Lots of interesting sounds are now heard coming from their crib. Because the isolettes were closed in, we didn’t hear too much from the babies. We randomly heard a little cry but now we hear everything. Only a few changes occurred today. Trinity was started on vitamins and iron. Kinsley has been on them for awhile. Both of their caffeine levels were increased to match their weight and neither baby gained today. Kinsley actually lost an ounce and weights 3 lbs 13 oz while Trinity remained the same at 3 lbs 14 oz. Both Girls had their eye exams today. Poor babies. Their eyes were red and puffy when I got there. No ROP so far!!! Thank you God!!
Parent's Thoughts:
This is around the time ROP (Retinopathy of Prematurity) will surface if they are going to get it. We hope and pray that neither baby will get this but please keep them in your prayers that this won’t be an issue for them. If it does occur, they will have to get laser surgery which is a big set back.
Our Daily Encouragement:
The Lord is righteous in all his ways and loving toward all he has made. The Lord is near to all who call on him, to all who call on him in truth. He fulfills the desires of those who fear him; he hears their cry and saves them.
Psalm 145:17-19
Monday May 18th
Babies Situation:
The Girls had another bay change today. They are now in a bay with other babies that require oxygen. The bay they were in yesterday was more of a bay for babies that are ready to go home soon. Our babies require a little more attention than the babies in that bay. We have updated measurements on the babies today - both Girls are 3 lbs 14 oz. Trinity is 16.25 inches long while Kinsley is 16 inches long. They are getting big (to us)!!! The only other change made today was Trinity’s feeds increased to 36 cc's over one hour every 3 hours.
Parent's Thoughts:
Now that the Girls are on nasal cannula, we can start working with them to prepare them for bottle feeding. During their tube feedings, a pacifier is supposed to be given to them to start working on their sucking ability. We (our nurses and parents) are performing exercises with the girls supposed to get them ready. As I held Trinity today during her feeding, I tried some of them. She actually did pretty good but did show signs of stress - so I only worked with her for a few minutes. The goal is to introduce a bottle to them in the next two weeks. I think Trinity will be ready but Kinsley might be a few days to a week behind her sister on this one. We’ll have to wait and see.
Our Daily Encouragement:
Wait on the Lord: be of good courage, and he shall strengthen thine heart: wait,I say, on the Lord.
Psalm 27:14
The Girls had another bay change today. They are now in a bay with other babies that require oxygen. The bay they were in yesterday was more of a bay for babies that are ready to go home soon. Our babies require a little more attention than the babies in that bay. We have updated measurements on the babies today - both Girls are 3 lbs 14 oz. Trinity is 16.25 inches long while Kinsley is 16 inches long. They are getting big (to us)!!! The only other change made today was Trinity’s feeds increased to 36 cc's over one hour every 3 hours.
Parent's Thoughts:
Now that the Girls are on nasal cannula, we can start working with them to prepare them for bottle feeding. During their tube feedings, a pacifier is supposed to be given to them to start working on their sucking ability. We (our nurses and parents) are performing exercises with the girls supposed to get them ready. As I held Trinity today during her feeding, I tried some of them. She actually did pretty good but did show signs of stress - so I only worked with her for a few minutes. The goal is to introduce a bottle to them in the next two weeks. I think Trinity will be ready but Kinsley might be a few days to a week behind her sister on this one. We’ll have to wait and see.
Our Daily Encouragement:
Wait on the Lord: be of good courage, and he shall strengthen thine heart: wait,I say, on the Lord.
Psalm 27:14
Sunday May 17th
Babies Situation:
Both Girls are still on the nasal cannula today. Kinsley did struggle a little bit last night but the Dr. decided to increase the air flow on the cannula so now she is doing much better. If she continues to have too much trouble, they will move her back to the CPAP for awhile. They don’t want her working too hard burning much needed calories. Both their feedings increased today though. Trinity is now at 35 cc's and Kinsley is at 37 cc's. Oh, and how could we forget. They moved bays. They are now in the “feeders and growers” bay. This bay has older, more stable babies that don’t need as much attention as the babies from our old bay. The girls also had some new nurses over the past few days and today helping them - thank you Carol, Madison, and Shari. Dawn will have them again tonight - the girls are very excited.
Parent's Thoughts:
It is so nice having both babies in a crib and on nasal cannula. The one downside is that we can’t keep our hands off of them. They are easily accessible and we can see their cute little faces. We can also hear them grunting and cooing which just makes us smile. All day today, we were leaning over them, adjusting their hats, adjusting their blankets, talking to them, looking at them, wiping their mouths…. They aren’t going to get much sleep with us around. Sorry Girls, you’re just too cute and we have waited a long time for this. We’ll have to discipline ourselves to make sure we aren’t bothering them too much! ha...
Our Daily Encouragement:
Lying lips are an abomination to the Lord, but those who deal truthfully are His delight.
Proverbs 12:22
Both Girls are still on the nasal cannula today. Kinsley did struggle a little bit last night but the Dr. decided to increase the air flow on the cannula so now she is doing much better. If she continues to have too much trouble, they will move her back to the CPAP for awhile. They don’t want her working too hard burning much needed calories. Both their feedings increased today though. Trinity is now at 35 cc's and Kinsley is at 37 cc's. Oh, and how could we forget. They moved bays. They are now in the “feeders and growers” bay. This bay has older, more stable babies that don’t need as much attention as the babies from our old bay. The girls also had some new nurses over the past few days and today helping them - thank you Carol, Madison, and Shari. Dawn will have them again tonight - the girls are very excited.
Parent's Thoughts:
It is so nice having both babies in a crib and on nasal cannula. The one downside is that we can’t keep our hands off of them. They are easily accessible and we can see their cute little faces. We can also hear them grunting and cooing which just makes us smile. All day today, we were leaning over them, adjusting their hats, adjusting their blankets, talking to them, looking at them, wiping their mouths…. They aren’t going to get much sleep with us around. Sorry Girls, you’re just too cute and we have waited a long time for this. We’ll have to discipline ourselves to make sure we aren’t bothering them too much! ha...
Our Daily Encouragement:
Lying lips are an abomination to the Lord, but those who deal truthfully are His delight.
Proverbs 12:22
Saturday May 16th
Babies Situation:
The Girls had another visitor today. Our friend, Jana, swung by for a little bit to meet the babies for the first time. She got to experience a very special day for all of us. After 8 ½ weeks of life, the babies were finally reunited into a double crib. We are also happy to report that our good friends “The Reids” took home their 24 weekers (Jenna and Blake) today - Congratulations!! We’ll miss you but we are so excited for you. Crystal(one of the girls primary nurses) worked her way into getting us the Reid's double crib now for our twins. Thank you Crystal as the girls would have been separate otherwise. We would have been really disappointed if the twins would have been moved into separate single cribs. What a great day!!! We both held the babies as Crystal finished moving all their stuff over to the crib. Now the babies must keep up their body temps to remain in the cribs. We can’t afford them to get cold because they will burn too many calories trying to stay warm. Kinsley also was moved over to the nasal cannula at 2 PM. Please pray that she will remain on the cannula. She has had a handful of A’s and B’s but she might also be getting acclimated to the cannula. One last piece of good news. Trinity and Kinsley weighed the same today. They both are 3 lbs 11 oz!! Amazing.
Parent's Thoughts:
Today was an incredible, special day for all of us. With Kinsley moving to the cannula and the twins finally reunited in a crib, we were ecstatic and thankful. Another day of blessings for us. Thank you God. We are blessed to have such great nurses and doctors, we are blessed with the progress of the babies so far, we are blessed to have such great support from friends and family, we are blessed each day we have with our babies, and we are blessed to have God as the center of our lives.
Our Daily Encouragement:
But the eyes of the Lord are on those who fear him, on those whose hope is in his unfailing love.
Psalm 33:18
The Girls had another visitor today. Our friend, Jana, swung by for a little bit to meet the babies for the first time. She got to experience a very special day for all of us. After 8 ½ weeks of life, the babies were finally reunited into a double crib. We are also happy to report that our good friends “The Reids” took home their 24 weekers (Jenna and Blake) today - Congratulations!! We’ll miss you but we are so excited for you. Crystal(one of the girls primary nurses) worked her way into getting us the Reid's double crib now for our twins. Thank you Crystal as the girls would have been separate otherwise. We would have been really disappointed if the twins would have been moved into separate single cribs. What a great day!!! We both held the babies as Crystal finished moving all their stuff over to the crib. Now the babies must keep up their body temps to remain in the cribs. We can’t afford them to get cold because they will burn too many calories trying to stay warm. Kinsley also was moved over to the nasal cannula at 2 PM. Please pray that she will remain on the cannula. She has had a handful of A’s and B’s but she might also be getting acclimated to the cannula. One last piece of good news. Trinity and Kinsley weighed the same today. They both are 3 lbs 11 oz!! Amazing.
Parent's Thoughts:
Today was an incredible, special day for all of us. With Kinsley moving to the cannula and the twins finally reunited in a crib, we were ecstatic and thankful. Another day of blessings for us. Thank you God. We are blessed to have such great nurses and doctors, we are blessed with the progress of the babies so far, we are blessed to have such great support from friends and family, we are blessed each day we have with our babies, and we are blessed to have God as the center of our lives.
Our Daily Encouragement:
But the eyes of the Lord are on those who fear him, on those whose hope is in his unfailing love.
Psalm 33:18
Friday May 15th
Babies Situation:
Today, the girls had another visit from our friend Julie. She and I were able to catch up as I held Kinsley. It was really nice. She saw the twins when they were around 1-2 weeks old so she was amazed at their changes. Something happened today that we never thought would happen. Kinsley caught up with Trinity on weight. They both weigh 3 lbs 9 oz. Trinity’s feeds did increase to 32 cc's over 1 hour every 3 hours while Kinsley increased to 35 cc's over 1 hour every 3 hours. Together, they are going through close to 7 NICU bottles (each bottle is 2.5 oz). The nurses have asked me to bring some of my reserves of frozen milk from our house about every other day. I’m glad I have a good supply. The nurses have also noticed that Trinity de-sats during her feedings and has some milk back-up in her air tube. Dr. Untalan decided to put her on a reflux medicine to see if it helps. To prepare Kinsley for the nasal cannula, her CPAP of 7 was reduced to 6. She is doing great so far!
Parent's Thoughts:
I was able to hold both the girls today both separately in the cradle position which was very nice. I get to see their precious faces, admiring their little features. Kinsley let out a little baby cry as the nurse moved her from her isolette to my arms and it melted my heart. With them being born at 24 weeks, it has been a long, hard journey but getting to watch them grow and change each day has been a miracle. When I see the look on new Parents faces as they enter the NICU for the first time, I hurt for them knowing what they are feeling and will be going through but I also know that it will make them into a better, stronger person and that they will experience the miracles we have. I pray that all these Parents have God in their hearts. We couldn’t have gotten through this without him.
Our Daily Encouragement:
Just as each of us has one body with many members, and these members do not all have the same function, so in Christ we who are many form one body, and each member belongs to all the others. We have different gifts, according to the grace given us.
Romans 12:4-6
Today, the girls had another visit from our friend Julie. She and I were able to catch up as I held Kinsley. It was really nice. She saw the twins when they were around 1-2 weeks old so she was amazed at their changes. Something happened today that we never thought would happen. Kinsley caught up with Trinity on weight. They both weigh 3 lbs 9 oz. Trinity’s feeds did increase to 32 cc's over 1 hour every 3 hours while Kinsley increased to 35 cc's over 1 hour every 3 hours. Together, they are going through close to 7 NICU bottles (each bottle is 2.5 oz). The nurses have asked me to bring some of my reserves of frozen milk from our house about every other day. I’m glad I have a good supply. The nurses have also noticed that Trinity de-sats during her feedings and has some milk back-up in her air tube. Dr. Untalan decided to put her on a reflux medicine to see if it helps. To prepare Kinsley for the nasal cannula, her CPAP of 7 was reduced to 6. She is doing great so far!
Parent's Thoughts:
I was able to hold both the girls today both separately in the cradle position which was very nice. I get to see their precious faces, admiring their little features. Kinsley let out a little baby cry as the nurse moved her from her isolette to my arms and it melted my heart. With them being born at 24 weeks, it has been a long, hard journey but getting to watch them grow and change each day has been a miracle. When I see the look on new Parents faces as they enter the NICU for the first time, I hurt for them knowing what they are feeling and will be going through but I also know that it will make them into a better, stronger person and that they will experience the miracles we have. I pray that all these Parents have God in their hearts. We couldn’t have gotten through this without him.
Our Daily Encouragement:
Just as each of us has one body with many members, and these members do not all have the same function, so in Christ we who are many form one body, and each member belongs to all the others. We have different gifts, according to the grace given us.
Romans 12:4-6
Thursday May 14th
Babies Situation:
The Girls are 33 weeks old today. Can you believe it? We can’t but we are very thankful. We are more than half way through our NICU journey, hopefully only 7 more weeks to go. Trinity is still on nasal cannula and doing great. She is still getting 30 cc's over 1 hour every 3 hours and fortifier was added today which will help her gain more weight. Kinsley is doing great on her CPAP of 7 and she is getting 35 cc's over 1 hour every 3 hours with the maximum amount of fortifier. Trinity didn’t gain weight today, she is still at 3 lbs 9 oz. Kinsley weighs 3 lbs 8 oz.
Parent's Thoughts:
Today was a special for me (Trena). I was able to hold both babies at the same time. It was amazing but I realized that I would always need assistance in doing this. Once I had both Girls in my arms, I had no extra hands to move hair out of my eyes or to catch falling hats. For 45 minutes, I sat with my precious babies looking at one than the other. It will be nice when Kinsley is off CPAP so that I can see more of her features. The babies resemble but don’t look identical yet since Kinsley is smaller. Thank you Kelly(nurse) for this experience. Oh, how could I forget. Kinsley even took a poop half way through so the experience was somewhat smelly but still enjoyable.
Our Daily Encouragement:
For the Lord will be your confidence and will keep your foot from being snared.
Proverbs 3:26
The Girls are 33 weeks old today. Can you believe it? We can’t but we are very thankful. We are more than half way through our NICU journey, hopefully only 7 more weeks to go. Trinity is still on nasal cannula and doing great. She is still getting 30 cc's over 1 hour every 3 hours and fortifier was added today which will help her gain more weight. Kinsley is doing great on her CPAP of 7 and she is getting 35 cc's over 1 hour every 3 hours with the maximum amount of fortifier. Trinity didn’t gain weight today, she is still at 3 lbs 9 oz. Kinsley weighs 3 lbs 8 oz.
Parent's Thoughts:
Today was a special for me (Trena). I was able to hold both babies at the same time. It was amazing but I realized that I would always need assistance in doing this. Once I had both Girls in my arms, I had no extra hands to move hair out of my eyes or to catch falling hats. For 45 minutes, I sat with my precious babies looking at one than the other. It will be nice when Kinsley is off CPAP so that I can see more of her features. The babies resemble but don’t look identical yet since Kinsley is smaller. Thank you Kelly(nurse) for this experience. Oh, how could I forget. Kinsley even took a poop half way through so the experience was somewhat smelly but still enjoyable.
Our Daily Encouragement:
For the Lord will be your confidence and will keep your foot from being snared.
Proverbs 3:26
Wednesday May 13th
Babies Situation:
Trinity is IV-less and on nasal cannula and doing great!! This IV lasted for 3 days which is unusual but it went bad today. The nurses tried numerous times to get another one started but her veins weren’t cooperating and Dr. Untalan decided it was better to leave the IV out than to keep poking her. Holes in the body can lead to infection. So when we came to see her today, she was wearing a shirt like sis. Talk about cute!!! She is on 21%(room air like we breathe) on her nasal cannula which is the lowest setting. If she starts to struggle in the next few days, they can bump her up to 30% but anything higher means it’s not beneficial for her to be on the cannula. It would be better for her to go back on the CPAP. She weights 3 lbs 9 oz today. The CPAP added 3 oz to her weight so we expect Kinsley to loose some weight as well once her CPAP is removed. Trinity’s feedings are now over 1 hour instead of 30 minutes. She could be having some reflux so they decided to extend her feeding time to see if that helps. She is getting 30 cc's over 1 hour every 3 hours. Kinsley had a nice weight gain. She is now at 3 lbs 8 oz. She is doing great on a CPAP of 7, almost better than when she was on a CPAP of 8. She is getting fed 33 cc's over 1 hour every 3 hours.
Parent's Thoughts:
It’s nice to see both girls wearing clothes. We went out and bought them some preemie onesies and night gowns for them to wear. This should keep them comfy and cozy while in the hospital. We hope Trinity continues to do well on the nasal cannula and highly anticipate Kinsley being moved to the nasal cannula. It’s still projected for the weekend or early next week. The Girls are doing so well right now with no infections, their breathing is strong, and they are tolerating their feedings. We did hold the babies at the same time tonight. Keith held Trinity and I held Kinsley. It was amazing. Keith was able to hold Trinity in a cradle position since she is off the CPAP. He seemed more comfortable with holding her this way. Little Kinsley loves to be held too. I held her swaddled instead of skin to skin and you could tell she just enjoyed being held. We look forward to our one hold a day. Hopefully soon we’ll be granted unlimited holds.
Our Daily Encouragement:
Our mouths were filled with laughter, our tongues with songs of joy. Then it was said among the nations, “The Lord has done great things for them.” The Lord has done great things for us, and we are filled with joy.
Psalm 126:2-3
Trinity is IV-less and on nasal cannula and doing great!! This IV lasted for 3 days which is unusual but it went bad today. The nurses tried numerous times to get another one started but her veins weren’t cooperating and Dr. Untalan decided it was better to leave the IV out than to keep poking her. Holes in the body can lead to infection. So when we came to see her today, she was wearing a shirt like sis. Talk about cute!!! She is on 21%(room air like we breathe) on her nasal cannula which is the lowest setting. If she starts to struggle in the next few days, they can bump her up to 30% but anything higher means it’s not beneficial for her to be on the cannula. It would be better for her to go back on the CPAP. She weights 3 lbs 9 oz today. The CPAP added 3 oz to her weight so we expect Kinsley to loose some weight as well once her CPAP is removed. Trinity’s feedings are now over 1 hour instead of 30 minutes. She could be having some reflux so they decided to extend her feeding time to see if that helps. She is getting 30 cc's over 1 hour every 3 hours. Kinsley had a nice weight gain. She is now at 3 lbs 8 oz. She is doing great on a CPAP of 7, almost better than when she was on a CPAP of 8. She is getting fed 33 cc's over 1 hour every 3 hours.
Parent's Thoughts:
It’s nice to see both girls wearing clothes. We went out and bought them some preemie onesies and night gowns for them to wear. This should keep them comfy and cozy while in the hospital. We hope Trinity continues to do well on the nasal cannula and highly anticipate Kinsley being moved to the nasal cannula. It’s still projected for the weekend or early next week. The Girls are doing so well right now with no infections, their breathing is strong, and they are tolerating their feedings. We did hold the babies at the same time tonight. Keith held Trinity and I held Kinsley. It was amazing. Keith was able to hold Trinity in a cradle position since she is off the CPAP. He seemed more comfortable with holding her this way. Little Kinsley loves to be held too. I held her swaddled instead of skin to skin and you could tell she just enjoyed being held. We look forward to our one hold a day. Hopefully soon we’ll be granted unlimited holds.
Our Daily Encouragement:
Our mouths were filled with laughter, our tongues with songs of joy. Then it was said among the nations, “The Lord has done great things for them.” The Lord has done great things for us, and we are filled with joy.
Psalm 126:2-3
Tuesday May 12th
Babies Situation:
The Girls are having another good day. Our friend Andre and Dad were able to swing by to check in on the girls briefly this morning. It is always great for us to share this experience.
As far as the girls, both of their feedings increased today. Trinity is now at 28 cc's over 30 minutes every 3 hours. Kinsley is at 34 cc's over 1 ½ hours every 3 hours. Trinity will have a big change occur tomorrow. Dr. Untalan wants to try her back on the nasal cannula. Kinsley had a big change today with the decrease of her CPAP pressure from 8 to 7. Thank you Dr. Untalan!! If she tolerates it well, they will try her on the nasal cannula by the weekend or sometime next week. Such great news!!! Trinity will be done with her antibiotics by the 15th and her IV should be able to come out. No IV means less chance for infection. Kinsley is doing really well on holding her temperature. She actually is slightly warm every time Crystal checks her. We’re getting closer and closer to getting them in a crib TOGETHER!! They will be reunited. What a joy that will be to see. Oh, and the Girls had another eye exam yesterday and no ROP at this point. God is good!
Parent's Thoughts:
We are really looking forward to the next few weeks. Between putting them in clothes, moving them to a crib, and bottle feeding them, we are just so excited!! Kinsley is already wearing preemie shirts and Trinity will be able to wear clothes once the IV comes out. We are limited to what they can wear due to the CPAP machine but once they are both on the cannula, they can wear just about anything. Having them in a crib together will be a joyful day. They have been separated for 8 weeks (as of tomorrow) and I know it will be very special to have them together once again. From what I hear, the bottle feeding can be frustrating since it usually takes 24 weekers awhile to catch on but we are ready for the challenge. All these steps get us closer to bringing them home. We dream of that day!!!
Our Daily Encouragement:
So do not throw away your confidence; it will be richly rewarded. You need to persevere so that when you have done the will of God, you will receive what he has promised.
Hebrews 10:35-36
The Girls are having another good day. Our friend Andre and Dad were able to swing by to check in on the girls briefly this morning. It is always great for us to share this experience.
As far as the girls, both of their feedings increased today. Trinity is now at 28 cc's over 30 minutes every 3 hours. Kinsley is at 34 cc's over 1 ½ hours every 3 hours. Trinity will have a big change occur tomorrow. Dr. Untalan wants to try her back on the nasal cannula. Kinsley had a big change today with the decrease of her CPAP pressure from 8 to 7. Thank you Dr. Untalan!! If she tolerates it well, they will try her on the nasal cannula by the weekend or sometime next week. Such great news!!! Trinity will be done with her antibiotics by the 15th and her IV should be able to come out. No IV means less chance for infection. Kinsley is doing really well on holding her temperature. She actually is slightly warm every time Crystal checks her. We’re getting closer and closer to getting them in a crib TOGETHER!! They will be reunited. What a joy that will be to see. Oh, and the Girls had another eye exam yesterday and no ROP at this point. God is good!
Parent's Thoughts:
We are really looking forward to the next few weeks. Between putting them in clothes, moving them to a crib, and bottle feeding them, we are just so excited!! Kinsley is already wearing preemie shirts and Trinity will be able to wear clothes once the IV comes out. We are limited to what they can wear due to the CPAP machine but once they are both on the cannula, they can wear just about anything. Having them in a crib together will be a joyful day. They have been separated for 8 weeks (as of tomorrow) and I know it will be very special to have them together once again. From what I hear, the bottle feeding can be frustrating since it usually takes 24 weekers awhile to catch on but we are ready for the challenge. All these steps get us closer to bringing them home. We dream of that day!!!
Our Daily Encouragement:
So do not throw away your confidence; it will be richly rewarded. You need to persevere so that when you have done the will of God, you will receive what he has promised.
Hebrews 10:35-36
Monday May 11th
Babies Situation:
Today, Trinity and Kinsley were visited by our neighbors Pat and Donna Abbott. It was a very nice visit along with a great day again.
Trinity is now on a CPAP of 6 which is the lowest setting. The next step is the nasal cannula. Hopefully, the doctors will try her on this in the next week. They are also trying to get her IV line out so they are aggressively increasing her feeds. Her 10th. day of her antibiotics should be on Sunday so if they can get her up to full feeds by Sunday, they should be able to pull the IV line. Trinity’s feedings are now at 24 cc’s over 30 minutes every 3 hours. She is still tolerating them well. She did gain weight and is now 3 lbs 12 oz. Wow!! Kinsley had a small change in her feeding schedule. She is now getting 32 cc's over 1 ½ hours every 3 hours. She is still at 3 lbs 6 oz.
Parent's Thoughts:
It was bath night again. Kinsley was too cold when we took her temperature so we were not able to help bathe her during our visit. The babies have to be at least 98 degrees to get a bath and she was only 97.7. Andrea will bathe her later in the night when her temperature rises. However, we were able to play with Kinsley a little bit though so it was OK. Her eyes were wide open and every time we talked to her, her eyes would look in the direction of our voices. It was so neat!! Keith also took his hand from one side of the isolette to the other (like he did for Trinity a few days ago) and again, Kinsley would turn her head side to side to follow his hand. It was amazing!! I can’t believe that they are doing that already. We were able to help bathe Trinity tonight. She wasn’t very thrilled with her bath but it was still fun for us. Any interaction with the babies is awesome. We love you Trinity and Kinsley!!! Can’t wait to see you tomorrow!!
Our Daily Encouragement:
Find rest, O my soul, in God alone; my hope comes from him. He alone is my rock and my salvation; he is my fortress, I will not be shaken. My salvation and my honor depend on God; he is my mighty rock, my refuge. Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.
Psalm 62:5-8
Today, Trinity and Kinsley were visited by our neighbors Pat and Donna Abbott. It was a very nice visit along with a great day again.
Trinity is now on a CPAP of 6 which is the lowest setting. The next step is the nasal cannula. Hopefully, the doctors will try her on this in the next week. They are also trying to get her IV line out so they are aggressively increasing her feeds. Her 10th. day of her antibiotics should be on Sunday so if they can get her up to full feeds by Sunday, they should be able to pull the IV line. Trinity’s feedings are now at 24 cc’s over 30 minutes every 3 hours. She is still tolerating them well. She did gain weight and is now 3 lbs 12 oz. Wow!! Kinsley had a small change in her feeding schedule. She is now getting 32 cc's over 1 ½ hours every 3 hours. She is still at 3 lbs 6 oz.
Parent's Thoughts:
It was bath night again. Kinsley was too cold when we took her temperature so we were not able to help bathe her during our visit. The babies have to be at least 98 degrees to get a bath and she was only 97.7. Andrea will bathe her later in the night when her temperature rises. However, we were able to play with Kinsley a little bit though so it was OK. Her eyes were wide open and every time we talked to her, her eyes would look in the direction of our voices. It was so neat!! Keith also took his hand from one side of the isolette to the other (like he did for Trinity a few days ago) and again, Kinsley would turn her head side to side to follow his hand. It was amazing!! I can’t believe that they are doing that already. We were able to help bathe Trinity tonight. She wasn’t very thrilled with her bath but it was still fun for us. Any interaction with the babies is awesome. We love you Trinity and Kinsley!!! Can’t wait to see you tomorrow!!
Our Daily Encouragement:
Find rest, O my soul, in God alone; my hope comes from him. He alone is my rock and my salvation; he is my fortress, I will not be shaken. My salvation and my honor depend on God; he is my mighty rock, my refuge. Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.
Psalm 62:5-8
Sunday May 10th
Babies Situation:
We want to first start off by saying Happy Mother’s Day to all the wonderful mothers out there. Hopefully, you were all spoiled like I was.
The Girls are having a good day today. Trinity has gained 4 oz in the last week and is weighing 3 lbs 9 oz. Kinsley is a big 3 lbs 6 oz. She has gained 7 oz this week. She is slowly catching up with her sister. You go Kinsley!!! In length, Trinity has gone from 14.6 inches to 15.25 inches in the last week and Kinsley has gone from 13.9 inches to 15.25 inches. Trinity’s feedings continue to increase. She is getting 15 cc's every three hours with very little residuals. Kinsley is still at full feeds getting 32 cc's continuously every two hours with one hour off. She is breathing room air with a pressure of 8. Hopefully, this week her pressure will be reduced to 7. Trinity is breathing room air with a pressure of 7. She did have her lumbar puncture done today and the doctor was able to get a few drops of spinal fluid out(this is the third try-poor Trinity). They will test for meningitis but are pretty confident that she doesn’t have this.
Parent's Thoughts:
I enjoyed every minute of my Mother’s Day today. A bunch of my friends texted me wishing me a Happy Mother’s Day, my Family(both sides) called and sent the sweetest cards, and my husband made sure it was an unforgettable day. The best part of it all though was getting to see our precious babies and holding them. I held Trinity and Keith held Kinsley. I LOVE to see Keith holding them. It melts my heart. I couldn’t ask for a better Mother’s Day today. Thank you to everyone who made this extra special for me, especially you Keith. Thank you God for our little miracles!!!
Our Daily Encouragement:
Blessed is the man who trusts in the Lord, And whose hope is the Lord.
Jeremiah 17:7
We want to first start off by saying Happy Mother’s Day to all the wonderful mothers out there. Hopefully, you were all spoiled like I was.
The Girls are having a good day today. Trinity has gained 4 oz in the last week and is weighing 3 lbs 9 oz. Kinsley is a big 3 lbs 6 oz. She has gained 7 oz this week. She is slowly catching up with her sister. You go Kinsley!!! In length, Trinity has gone from 14.6 inches to 15.25 inches in the last week and Kinsley has gone from 13.9 inches to 15.25 inches. Trinity’s feedings continue to increase. She is getting 15 cc's every three hours with very little residuals. Kinsley is still at full feeds getting 32 cc's continuously every two hours with one hour off. She is breathing room air with a pressure of 8. Hopefully, this week her pressure will be reduced to 7. Trinity is breathing room air with a pressure of 7. She did have her lumbar puncture done today and the doctor was able to get a few drops of spinal fluid out(this is the third try-poor Trinity). They will test for meningitis but are pretty confident that she doesn’t have this.
Parent's Thoughts:
I enjoyed every minute of my Mother’s Day today. A bunch of my friends texted me wishing me a Happy Mother’s Day, my Family(both sides) called and sent the sweetest cards, and my husband made sure it was an unforgettable day. The best part of it all though was getting to see our precious babies and holding them. I held Trinity and Keith held Kinsley. I LOVE to see Keith holding them. It melts my heart. I couldn’t ask for a better Mother’s Day today. Thank you to everyone who made this extra special for me, especially you Keith. Thank you God for our little miracles!!!
Our Daily Encouragement:
Blessed is the man who trusts in the Lord, And whose hope is the Lord.
Jeremiah 17:7
Saturday May 9th
Babies Situation:
Trinity is back to feeding (yeah) - 5 cc's every 3 hours. Thank you God. The antibiotics seem to be working as she is very active again compared to past couple of days. She has also been breathing very well and is back to 21% at a pressure of 7 on the CPAP. She has few bradys or apneas since being back on the antibiotics and we hope the worst is behind her on the infection front. Doctor Lynn and Dekowski decided to do a lumbar test today to ensure she does not have meningitis. Unfortunately, they were unsuccessful in hitting the appropriate area to get an accurate test. She gained and now weighs 3 lbs 7 oz today.
Kinsley looked great. Her breathing gets better by the day. Since she does not have an IV in she is able to start wearing some clothes. Our Nurses (Andrea and Crystal) dressed her in a white button preemie shirt with lambs on it - so cute (thank you as these little touches make such a big difference). We took some pictures and will get them posted. She also gained a bit and now weighs 3 lbs 4 oz. Along with her full feeds, she is now getting vitamins, iron, and more caffeine. Dad was able to change her diaper today (always an interesting experience).
Parent's Thoughts:
It was an incredibly rewarding and inspirational day for us. Austin held it's annual March for Babies walk conducted by the March of Dimes. Mom and Dad walked with the team from St. David's. All in all there were more than 8,000 people who walked today to raise money for the March of Dimes. Everywhere we looked we saw little miracles and other families who have been through what we are currently encountering. Many of the kids are older now and look great. Miracle after miracle today was filled with some amazing stories. I wish you could have all experienced it with us as it was extremely powerful. We had our close friends Peter and Candra join us for the walk and appreciated being able to share this with them. We hope to share this event with all of you in the years to come and can't wait to have Trinity and Kinsley participate as well.
Our Daily Encouragement:
How precious it is, Lord, to realize that you are thinking about me constantly! O can't even count how many times a day your thoughts turn toward me.
Psalm 139: 17-18
Trinity is back to feeding (yeah) - 5 cc's every 3 hours. Thank you God. The antibiotics seem to be working as she is very active again compared to past couple of days. She has also been breathing very well and is back to 21% at a pressure of 7 on the CPAP. She has few bradys or apneas since being back on the antibiotics and we hope the worst is behind her on the infection front. Doctor Lynn and Dekowski decided to do a lumbar test today to ensure she does not have meningitis. Unfortunately, they were unsuccessful in hitting the appropriate area to get an accurate test. She gained and now weighs 3 lbs 7 oz today.
Kinsley looked great. Her breathing gets better by the day. Since she does not have an IV in she is able to start wearing some clothes. Our Nurses (Andrea and Crystal) dressed her in a white button preemie shirt with lambs on it - so cute (thank you as these little touches make such a big difference). We took some pictures and will get them posted. She also gained a bit and now weighs 3 lbs 4 oz. Along with her full feeds, she is now getting vitamins, iron, and more caffeine. Dad was able to change her diaper today (always an interesting experience).
Parent's Thoughts:
It was an incredibly rewarding and inspirational day for us. Austin held it's annual March for Babies walk conducted by the March of Dimes. Mom and Dad walked with the team from St. David's. All in all there were more than 8,000 people who walked today to raise money for the March of Dimes. Everywhere we looked we saw little miracles and other families who have been through what we are currently encountering. Many of the kids are older now and look great. Miracle after miracle today was filled with some amazing stories. I wish you could have all experienced it with us as it was extremely powerful. We had our close friends Peter and Candra join us for the walk and appreciated being able to share this with them. We hope to share this event with all of you in the years to come and can't wait to have Trinity and Kinsley participate as well.
Our Daily Encouragement:
How precious it is, Lord, to realize that you are thinking about me constantly! O can't even count how many times a day your thoughts turn toward me.
Psalm 139: 17-18
Friday May 8th
Babies Situation:
Trinity is already feeling better today. She is as feisty as ever, fighting off the nurses as they try to take her temperature and change her diaper. If you haven’t heard us talk about Trinity, she is full of attitude and all the nurses and respiratory therapists know that if she’s not fighting them during her assessment, then there is probably something wrong. She gets her arms swinging and grabs anything she can get her hands on. She’s pretty good at pulling out her belly tubes and the CPAP attached to her nose. She already gets herself into trouble and she’s only 7 weeks old - ha. The second blood culture hasn’t grown anything out which means her infection is under control. The rate she was given on the CPAP was taken off today and she’s doing great without it. She is back to room air with a pressure of 7. The doctors decided not to start her feedings today since the x-rays showed that her intestines weren’t functioning normally due to her being sick. Hopefully tomorrow!! Kinsley’s report is still uneventful. She has been making the nurses laugh lately. She won’t open her eyes during assessment time but once they are done and she thinks no one is around, she’ll open them. The nurses have caught on to her so they will wait a few minutes and then will check on her to find her wide eyed looking around in her isolate. Andrea, their week day primary night nurse, jokes that she thinks the CPAP tubes is her mobile.
Parent's Thoughts:
It was bath night tonight which we always enjoy!! We soap them up as much as we can, getting behind their little ears, under their chin, and in their arm pits. The best part is that they open up their eyes as wide as they can and look around. Keith actually had Trinity following his hand from one side to the other over her isolate. It was amazing!! At first, we thought she was just looking around but she was actually following his hand. He also spent some quality time with Kinsley as I was giving Trinity her bath. It was cute hearing him talk to her as he sat beside her isolate. They both enjoyed their Daddy’s attention tonight!!
Our Daily Encouragement:
It is better to trust in the Lord than to put confidence in man.
Psalm 118:8
Trinity is already feeling better today. She is as feisty as ever, fighting off the nurses as they try to take her temperature and change her diaper. If you haven’t heard us talk about Trinity, she is full of attitude and all the nurses and respiratory therapists know that if she’s not fighting them during her assessment, then there is probably something wrong. She gets her arms swinging and grabs anything she can get her hands on. She’s pretty good at pulling out her belly tubes and the CPAP attached to her nose. She already gets herself into trouble and she’s only 7 weeks old - ha. The second blood culture hasn’t grown anything out which means her infection is under control. The rate she was given on the CPAP was taken off today and she’s doing great without it. She is back to room air with a pressure of 7. The doctors decided not to start her feedings today since the x-rays showed that her intestines weren’t functioning normally due to her being sick. Hopefully tomorrow!! Kinsley’s report is still uneventful. She has been making the nurses laugh lately. She won’t open her eyes during assessment time but once they are done and she thinks no one is around, she’ll open them. The nurses have caught on to her so they will wait a few minutes and then will check on her to find her wide eyed looking around in her isolate. Andrea, their week day primary night nurse, jokes that she thinks the CPAP tubes is her mobile.
Parent's Thoughts:
It was bath night tonight which we always enjoy!! We soap them up as much as we can, getting behind their little ears, under their chin, and in their arm pits. The best part is that they open up their eyes as wide as they can and look around. Keith actually had Trinity following his hand from one side to the other over her isolate. It was amazing!! At first, we thought she was just looking around but she was actually following his hand. He also spent some quality time with Kinsley as I was giving Trinity her bath. It was cute hearing him talk to her as he sat beside her isolate. They both enjoyed their Daddy’s attention tonight!!
Our Daily Encouragement:
It is better to trust in the Lord than to put confidence in man.
Psalm 118:8
Thursday May 7th
Babies Situation:
Today has been a rough day for Trinity. Her blood culture grew something out within 12 hours showing she has an infection. The doctors do not know if she got the infection from her PIC line so it was removed today and a new IV was put in which is being used to give her 2 different antibiotics. Her feedings were stopped last night but the doctors plan to start her back tomorrow. She is getting chest and abdomen x-rays to ensure her lungs look OK and that there are no loops in her intestines. She was put back on the long prong CPAP and has been given a rate of 20 to help her breath as she rests and recovers. The plan is to remove her from the rate tomorrow. A blood culture will be taken each morning until it stops growing something out. She will be on antibiotics for at least 10 days. The good news is that she weighed 3 lbs 8 oz last night. Some of her weight gain could be water retention from being sick so we shall see. Kinsley has had a good day. She went up on her feedings to 30 cc's over 2 hours and is tolerating it well. Her pressure on her CPAP was reduced from 9 to 8. Her lungs are getting stronger!!
Parent's Thoughts:
Today was a tough day for us. We have had so many good days that this came as a big blow. Infections are so scary and dangerous, especially to a micro-preemie. Trinity has gone through so much in the last 7 weeks that it is heart wrenching to know she is sick again. Please pray for a speedy recovery. The doctors will also do a lumbar tap in the next few days to rule out meningitis-this is even scarier. We need to remember-God is in control.
Our Daily Encouragement:
May the Lord Bless You and Keep You, May His Face Shine Upon You, May He Be Gracious to You, and Give you Peace.
Numbers 6:24-27
Today has been a rough day for Trinity. Her blood culture grew something out within 12 hours showing she has an infection. The doctors do not know if she got the infection from her PIC line so it was removed today and a new IV was put in which is being used to give her 2 different antibiotics. Her feedings were stopped last night but the doctors plan to start her back tomorrow. She is getting chest and abdomen x-rays to ensure her lungs look OK and that there are no loops in her intestines. She was put back on the long prong CPAP and has been given a rate of 20 to help her breath as she rests and recovers. The plan is to remove her from the rate tomorrow. A blood culture will be taken each morning until it stops growing something out. She will be on antibiotics for at least 10 days. The good news is that she weighed 3 lbs 8 oz last night. Some of her weight gain could be water retention from being sick so we shall see. Kinsley has had a good day. She went up on her feedings to 30 cc's over 2 hours and is tolerating it well. Her pressure on her CPAP was reduced from 9 to 8. Her lungs are getting stronger!!
Parent's Thoughts:
Today was a tough day for us. We have had so many good days that this came as a big blow. Infections are so scary and dangerous, especially to a micro-preemie. Trinity has gone through so much in the last 7 weeks that it is heart wrenching to know she is sick again. Please pray for a speedy recovery. The doctors will also do a lumbar tap in the next few days to rule out meningitis-this is even scarier. We need to remember-God is in control.
Our Daily Encouragement:
May the Lord Bless You and Keep You, May His Face Shine Upon You, May He Be Gracious to You, and Give you Peace.
Numbers 6:24-27
Wednesday May 6th
Babies Situation:
Today started off as a good day. Trinity was still on the nasal cannula when I called this morning but she did have a few spells of A’s and B’s throughout the night. As the day went on, she had more A’s and B’s so she was put back on the CPAP by 3 PM. She needed more pressure and the nasal cannula wasn’t giving her the extra support she needed. The doctor also decided to increase her caffeine to twice a day rather than once a day hoping it would help with the apnea. They did put her on a different CPAP from before. The CPAP machine she has been on had long prongs that reached to the back of her nose. The Arabella CPAP has short prongs which is hopefully less irritation to her little nose. She’ll also get some blood work done to check for infection. She has had an intolerable amount of A’s and B’s today and it’s not worth chancing. Dr. Untalan will be putting her on antibiotics just in case. Kinsley’s day has been better than Trinity’s. The only change is that she is now getting the maximum amount of fortifier she can get. She’s pretty much been quiet all day minding her own business.
The girls have had so many different Respiratory Therapists helping them over the past weeks. All of them are always checking on them and chatting with Mom and Dad. In addition to all of our Doctors and Nurses, it is so nice to have them all their caring for our girls. Abby, Courtney, Richard, Andy, and Tara (Kinsley's Nurse Practitioner who has been asked to help other little ones in the NICU now) plus many many more who have all been involved in the process. We just want to thank all them for such tender care of the girls. It is truly amazing what they do and is a tremendous team effort in the NICU from our Doctors, Nurses, Respiratory Therapists, Nurse Practitioners, and on and on.
Parent's Thoughts:
Wow, today has been somewhat of an uneasy day for us. As the day progressed, Trinity’s apnec spells did not get any better. Even when I held her today, she had a handful of A’s and B’s on me which is terrifying. When she has a spell on you, it feels like there is less control since it would be harder for the nurse to get to her. It can be pretty stressful. Earlier today, they told me the apnea could be from her not being ready for the nasal cannula, her bolus feedings putting her into a deep sleep, or from acid reflux. As Trinity continued to have A’s and B’s, the doctor decided to check her caffeine level and to do a CBC to check her red and white blood cells. Well, I just got the dreaded phone call from Dr. Untalan tonight that she’s having way too many spells. He has decided to start her on antibiotics tonight and will be doing a blood culture to check for infections. We pray that she doesn’t have an infection. This could be a huge step back.
Our Daily Encouragement:
Today started off as a good day. Trinity was still on the nasal cannula when I called this morning but she did have a few spells of A’s and B’s throughout the night. As the day went on, she had more A’s and B’s so she was put back on the CPAP by 3 PM. She needed more pressure and the nasal cannula wasn’t giving her the extra support she needed. The doctor also decided to increase her caffeine to twice a day rather than once a day hoping it would help with the apnea. They did put her on a different CPAP from before. The CPAP machine she has been on had long prongs that reached to the back of her nose. The Arabella CPAP has short prongs which is hopefully less irritation to her little nose. She’ll also get some blood work done to check for infection. She has had an intolerable amount of A’s and B’s today and it’s not worth chancing. Dr. Untalan will be putting her on antibiotics just in case. Kinsley’s day has been better than Trinity’s. The only change is that she is now getting the maximum amount of fortifier she can get. She’s pretty much been quiet all day minding her own business.
The girls have had so many different Respiratory Therapists helping them over the past weeks. All of them are always checking on them and chatting with Mom and Dad. In addition to all of our Doctors and Nurses, it is so nice to have them all their caring for our girls. Abby, Courtney, Richard, Andy, and Tara (Kinsley's Nurse Practitioner who has been asked to help other little ones in the NICU now) plus many many more who have all been involved in the process. We just want to thank all them for such tender care of the girls. It is truly amazing what they do and is a tremendous team effort in the NICU from our Doctors, Nurses, Respiratory Therapists, Nurse Practitioners, and on and on.
Parent's Thoughts:
Wow, today has been somewhat of an uneasy day for us. As the day progressed, Trinity’s apnec spells did not get any better. Even when I held her today, she had a handful of A’s and B’s on me which is terrifying. When she has a spell on you, it feels like there is less control since it would be harder for the nurse to get to her. It can be pretty stressful. Earlier today, they told me the apnea could be from her not being ready for the nasal cannula, her bolus feedings putting her into a deep sleep, or from acid reflux. As Trinity continued to have A’s and B’s, the doctor decided to check her caffeine level and to do a CBC to check her red and white blood cells. Well, I just got the dreaded phone call from Dr. Untalan tonight that she’s having way too many spells. He has decided to start her on antibiotics tonight and will be doing a blood culture to check for infections. We pray that she doesn’t have an infection. This could be a huge step back.
Our Daily Encouragement:
But I will sing of your strength, in the morning I will sing of your love; for you are my fortress, my refuge in times of trouble.
Psalm 59:16
Tuesday May 5th
Babies Situation:
Today was another good day. Both Girls had their eyes checked for retinopathy of prematurity(ROP) which is abnormal growth of the blood vessels in an infant's eye. So far, all is good but there will be more eye exams in the future to make sure ROP doesn’t develop. If it does, eye surgery will be required. Trinity had a big change today. Dr. Diven decided to try her on nasal cannula which is a step up from the CPAP machine. We were so excited when we came in this evening to find her off CPAP. The CPAP covers her little nose so it’s hard to see her face. The nasal cannula is a clear plastic tube which fits behind her ears and has two short prongs which are placed in her nostrils. If she struggles through the night and needs more support, they will move her back to CPAP. Since she is tolerating feeds, fortifier was added to the milk to help her gain weight quicker. She remains at 3 lbs 5 oz.
Kinsley is doing well on her breathing but her lungs aren’t as strong as Trinity’s. She is still on the CPAP around 25% oxygen with a pressure of 9. She will not be able to get off the CPAP until she can stay at room temp(21%). She also needs to remain stabilized when she is getting assessed and her pressure needs to come down to at least a 7. The doctor is happy with her progress so far. She just needs a few more weeks for her lungs to mature. Kinsley’s feeding have changed. She is now getting fed bolus feedings every 3 hours. She is getting 28 cc's over a 2 hour span then 1 hour off. She actually lost weight and is now 2 lbs 15 oz.
Parent's Thoughts:
Since late last week, we were told that Trinity might be ready for the nasal cannula and that Tuesday might be the lucky day so today was highly anticipated. All day long, I waited for the phone call that she was changed over to the nasal cannula but never got one so I didn’t think it happened. When we went in tonight, I literally jumped for joy when I saw that the CPAP machine was gone. We are both so excited for her to be on the nasal cannula but somewhat hesitant just in case it is too much for her to handle. Please pray for both their lungs to continue to get stronger so that they will both be on the nasal cannula soon and can remain on it.
Our Daily Encouragement:
By day the Lord directs his love, at night his song is with me - a prayer to the God of my life.
Psalm 42:8
Today was another good day. Both Girls had their eyes checked for retinopathy of prematurity(ROP) which is abnormal growth of the blood vessels in an infant's eye. So far, all is good but there will be more eye exams in the future to make sure ROP doesn’t develop. If it does, eye surgery will be required. Trinity had a big change today. Dr. Diven decided to try her on nasal cannula which is a step up from the CPAP machine. We were so excited when we came in this evening to find her off CPAP. The CPAP covers her little nose so it’s hard to see her face. The nasal cannula is a clear plastic tube which fits behind her ears and has two short prongs which are placed in her nostrils. If she struggles through the night and needs more support, they will move her back to CPAP. Since she is tolerating feeds, fortifier was added to the milk to help her gain weight quicker. She remains at 3 lbs 5 oz.
Kinsley is doing well on her breathing but her lungs aren’t as strong as Trinity’s. She is still on the CPAP around 25% oxygen with a pressure of 9. She will not be able to get off the CPAP until she can stay at room temp(21%). She also needs to remain stabilized when she is getting assessed and her pressure needs to come down to at least a 7. The doctor is happy with her progress so far. She just needs a few more weeks for her lungs to mature. Kinsley’s feeding have changed. She is now getting fed bolus feedings every 3 hours. She is getting 28 cc's over a 2 hour span then 1 hour off. She actually lost weight and is now 2 lbs 15 oz.
Parent's Thoughts:
Since late last week, we were told that Trinity might be ready for the nasal cannula and that Tuesday might be the lucky day so today was highly anticipated. All day long, I waited for the phone call that she was changed over to the nasal cannula but never got one so I didn’t think it happened. When we went in tonight, I literally jumped for joy when I saw that the CPAP machine was gone. We are both so excited for her to be on the nasal cannula but somewhat hesitant just in case it is too much for her to handle. Please pray for both their lungs to continue to get stronger so that they will both be on the nasal cannula soon and can remain on it.
Our Daily Encouragement:
By day the Lord directs his love, at night his song is with me - a prayer to the God of my life.
Psalm 42:8
Monday May 4th
Babies Situation:
Today was another good day. Our friends Annie and Justin met the babies for the first time. It was a very nice visit and we really enjoyed their company.
Trinity had some positive changes today. She is now getting fed 18 cc’s over 1 hour and then has 2 hours off. If she handles it well, she will then be fed all at once every 3 hours. Dr. Untalan reduced her pressure from 8 to 7. If she has no issues tonight, she might be moved to cannula tomorrow. Kinsley’s only change today was adding more fortifier to her 9cc's/hr.
They both got a visit by the occupational therapist today. I wasn’t there for Trinity’s assessment but was able to watch Kinsley’s. Kinsley’s feet aren’t positioned properly due to how she was in the womb. The therapist feels that they will correct themselves by the time she is putting pressure on them but she gave us some exercises to do when she is not swaddled.
I got to hold both Girls again today and they did great!! Both took a nice nap on my chest and no bradies-YEAH!! Holding your baby when she has a brady is definitely terrifying.
Parent's Thoughts:
When we arrived we were told that our babies might be moving to another bay (since we were very close to graduating to the next level in their development). According to the charge nurse, we are next on the list to move so I’m sure we’ll show up one of these days and the babies won’t be in their usual spot. Today, the NICU was over capacity at 70 babies. Please pray for the 70 babies in the NICU along with all the nurses and doctors trying to take care of all these babies. When the NICU is over capacity, they have to turn away babies. They will transport them to other hospitals but can’t accept them there unless they were born at that hospital. A lot of the nurses, respiratory therapists, and doctors are working over time to ensure everyone gets the help they need (Thank you for all of your efforts).
Our Daily Encouragement:
God is our refuge and strength, always ready to help in times of trouble.
Psalm 46:1
Today was another good day. Our friends Annie and Justin met the babies for the first time. It was a very nice visit and we really enjoyed their company.
Trinity had some positive changes today. She is now getting fed 18 cc’s over 1 hour and then has 2 hours off. If she handles it well, she will then be fed all at once every 3 hours. Dr. Untalan reduced her pressure from 8 to 7. If she has no issues tonight, she might be moved to cannula tomorrow. Kinsley’s only change today was adding more fortifier to her 9cc's/hr.
They both got a visit by the occupational therapist today. I wasn’t there for Trinity’s assessment but was able to watch Kinsley’s. Kinsley’s feet aren’t positioned properly due to how she was in the womb. The therapist feels that they will correct themselves by the time she is putting pressure on them but she gave us some exercises to do when she is not swaddled.
I got to hold both Girls again today and they did great!! Both took a nice nap on my chest and no bradies-YEAH!! Holding your baby when she has a brady is definitely terrifying.
Parent's Thoughts:
When we arrived we were told that our babies might be moving to another bay (since we were very close to graduating to the next level in their development). According to the charge nurse, we are next on the list to move so I’m sure we’ll show up one of these days and the babies won’t be in their usual spot. Today, the NICU was over capacity at 70 babies. Please pray for the 70 babies in the NICU along with all the nurses and doctors trying to take care of all these babies. When the NICU is over capacity, they have to turn away babies. They will transport them to other hospitals but can’t accept them there unless they were born at that hospital. A lot of the nurses, respiratory therapists, and doctors are working over time to ensure everyone gets the help they need (Thank you for all of your efforts).
Our Daily Encouragement:
God is our refuge and strength, always ready to help in times of trouble.
Psalm 46:1
Sunday May 3rd
Babies Situation:
Today was a good, quiet day. The babies were both sleeping peacefully when we arrived at the NICU. It is so cute to see them swaddled in their blankets. They look so comfy and cozy, no arms or legs thrashing around. Only a few changes were made today which were on their feedings. Trinity is now getting 6cc's/hr and Kinsley is getting 9cc's/hr. They are both tolerating them well. Tonight, Trinity weighted 3 lbs 5 oz which means she won’t have to be monitored by the nellcor monitor anymore. The nellcor machine monitors the heart rate and if she is low or high sating. Now, all her vitals will be measured on the big monitor that hangs above her bed. As for Kinsley, she also has great news. She is officially 3 lbs 1oz. Yeah!!
Parent's Thoughts:
What a great week!! This week has been full of many small but wonderful changes. The Girls are back on feedings, they are over 3 lbs, they are now wearing preemie diapers, and they are big enough to be swaddled. Thank you God!! All of these are small steps forward but again we need to be careful not to get too excited. The famous “one step back” is awaiting us. From what we were told, Dr. Untalon will most likely keep things the same for Monday but Tuesday may hold some more big changes like trying Trinity on cannula (a step up from the CPAP machine) and moving both girls to bolis feedings (feeding them once every 3 hours). We’ll need lots of prayers this week for another good week.
Our Daily Encouragement:
In repentance and rest is your salvation, in quietness and trust is your strength.... The Lord longs to be gracious to you; he rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for him.
Isaiah 30: 15,18
Today was a good, quiet day. The babies were both sleeping peacefully when we arrived at the NICU. It is so cute to see them swaddled in their blankets. They look so comfy and cozy, no arms or legs thrashing around. Only a few changes were made today which were on their feedings. Trinity is now getting 6cc's/hr and Kinsley is getting 9cc's/hr. They are both tolerating them well. Tonight, Trinity weighted 3 lbs 5 oz which means she won’t have to be monitored by the nellcor monitor anymore. The nellcor machine monitors the heart rate and if she is low or high sating. Now, all her vitals will be measured on the big monitor that hangs above her bed. As for Kinsley, she also has great news. She is officially 3 lbs 1oz. Yeah!!
Parent's Thoughts:
What a great week!! This week has been full of many small but wonderful changes. The Girls are back on feedings, they are over 3 lbs, they are now wearing preemie diapers, and they are big enough to be swaddled. Thank you God!! All of these are small steps forward but again we need to be careful not to get too excited. The famous “one step back” is awaiting us. From what we were told, Dr. Untalon will most likely keep things the same for Monday but Tuesday may hold some more big changes like trying Trinity on cannula (a step up from the CPAP machine) and moving both girls to bolis feedings (feeding them once every 3 hours). We’ll need lots of prayers this week for another good week.
Our Daily Encouragement:
In repentance and rest is your salvation, in quietness and trust is your strength.... The Lord longs to be gracious to you; he rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for him.
Isaiah 30: 15,18
Saturday May 2nd
Babies Situation:
It was another good day. The girls had a new Nurse, Chrissy, during the day and Sally was back this evening. Dr. Untalan also swung by to see the girls. Of course we had to thank him for allowing Crystal to start the swaddling process. Dr. Untalan has always helped us understand some short term goals for the girls as they have worked through the process - please keep them coming Dr Untalan.
Trinity weighed 3 lbs 4 oz today. She is now getting 5 cc's continuously. Mom gave her a bath again. After the bath, Trinity kept her eyes on Mom the whole time while her little hand embraced Dad's finger. Mom also held Trinity without issue. She usually has 1 Brady during the process but none today - yay.
They are both swaddled so they are pretty comfy in their isolettes. Trinity has to have 1 arm out due to her IV but we hope it will be removed soon. Kinsley looks like a little peanut - so cute. All you can see is her little fuzzy head.
The big news of the day - Dad finally got to hold Kinsley. It was an amazing experience that lasted close to 30 mins. The difference in weight between Trinity and Kinsley is really apparent. Kinsley felt so compact compared to her older Sis. Her right eye was open looking at Mom's smiling face. This was officially the first hold without incidence as Dad held before Mom today - ha.
Kinsley is trying her hardest to get to 3 lbs but came up just short at 2 lbs 15 oz. However, she is feeding higher at 8 cc's continuously so we should see the gap in weight close quickly. Her breathing also needs to improve a bit to catch up with her Sis. She was at 25% with 9 pressure vs her Sis who is at 21% and 8. Keep going girls - you are both doing great.
The girls also got their usual entertainment from Guy and Sally this evening. Laughing is always important.
Parent's Thoughts:
It was a good week and a great way to end the week. Feeds, Holds and Baths - all the normal day-to-day stuff families work through with their babies. We are very thankful for the precious moments we have to interact with the girls in the Nicu. Their progress this week was great - way to go girls. The whole family has now been able to be together - how awesome. We pray the girls can put together 2 consecutive good weeks as it has been a bit of a seesaw over the past few weeks. Thank you Lord for this week and please keep your wonderful blessings coming for the girls in the weeks to come.
Our Daily Encouragement:
The Spirit of God has made me; the breath of the Almighty gives me life.... I am just like you before God; I too have been taken from clay.
Job 33:4,6
It was another good day. The girls had a new Nurse, Chrissy, during the day and Sally was back this evening. Dr. Untalan also swung by to see the girls. Of course we had to thank him for allowing Crystal to start the swaddling process. Dr. Untalan has always helped us understand some short term goals for the girls as they have worked through the process - please keep them coming Dr Untalan.
Trinity weighed 3 lbs 4 oz today. She is now getting 5 cc's continuously. Mom gave her a bath again. After the bath, Trinity kept her eyes on Mom the whole time while her little hand embraced Dad's finger. Mom also held Trinity without issue. She usually has 1 Brady during the process but none today - yay.
They are both swaddled so they are pretty comfy in their isolettes. Trinity has to have 1 arm out due to her IV but we hope it will be removed soon. Kinsley looks like a little peanut - so cute. All you can see is her little fuzzy head.
The big news of the day - Dad finally got to hold Kinsley. It was an amazing experience that lasted close to 30 mins. The difference in weight between Trinity and Kinsley is really apparent. Kinsley felt so compact compared to her older Sis. Her right eye was open looking at Mom's smiling face. This was officially the first hold without incidence as Dad held before Mom today - ha.
Kinsley is trying her hardest to get to 3 lbs but came up just short at 2 lbs 15 oz. However, she is feeding higher at 8 cc's continuously so we should see the gap in weight close quickly. Her breathing also needs to improve a bit to catch up with her Sis. She was at 25% with 9 pressure vs her Sis who is at 21% and 8. Keep going girls - you are both doing great.
The girls also got their usual entertainment from Guy and Sally this evening. Laughing is always important.
Parent's Thoughts:
It was a good week and a great way to end the week. Feeds, Holds and Baths - all the normal day-to-day stuff families work through with their babies. We are very thankful for the precious moments we have to interact with the girls in the Nicu. Their progress this week was great - way to go girls. The whole family has now been able to be together - how awesome. We pray the girls can put together 2 consecutive good weeks as it has been a bit of a seesaw over the past few weeks. Thank you Lord for this week and please keep your wonderful blessings coming for the girls in the weeks to come.
Our Daily Encouragement:
The Spirit of God has made me; the breath of the Almighty gives me life.... I am just like you before God; I too have been taken from clay.
Job 33:4,6
Friday May 1st
Babies Situation:
I can’t believe that it’s already May. The Girls bring in the new month just over 31 weeks gestation. It seems like yesterday that they were only 24 weeks old. Trinity is now 3 lbs 1 oz and Kinsley is 2 lbs 13 oz closing the gap to only a 4 oz difference. The doctor has decided to have their feeding tubes moved from their intestines back into their stomachs. If they tolerate this for a few days, the doctor will then start bolis feeds. The feeds will begin as a continuous drip (like today) but will slowly transition to feeding the girls all at once every 3 hours. The next step after this will be bottle feeding. Hopefully, bottle feeding will start around 34-35 weeks. Trinity’s feedings did increase today to 4cc per hour while the doctor aggressively increased Kinsley’s feeds to 7cc per hour.
Kinsley's IV was taken out, hopefully for good, as it went bad or slipped a bit anyway. She will need another IV right away only if her sugar levels are too low. They will be monitoring her levels in the next day or 2. She had to be put back to 9 on the CPAP as she was having a few issues with the breathing.
Parent's Thoughts:
It was a better day for Kinsley. Both of the girls are still progressing so we are very thankful. As far as the parents, we took a much needed night off from the hospital. We are both feeling pretty worn down and know we will be there tomorrow morning. We called in and spoke to Sally about how they were doing and all was well. We will report more tomorrow but just wanted to thank you all for the continued support.
Our Daily Encouragement:
With the Lord a day is like a thousand years, and a thousand years are like a day. The Lord is not slow in keeping his promise, as some understand slowness. He is patient with you, not wanting anyone to perish, but everyone to come to repentance.
2 Peter 3:8-9
I can’t believe that it’s already May. The Girls bring in the new month just over 31 weeks gestation. It seems like yesterday that they were only 24 weeks old. Trinity is now 3 lbs 1 oz and Kinsley is 2 lbs 13 oz closing the gap to only a 4 oz difference. The doctor has decided to have their feeding tubes moved from their intestines back into their stomachs. If they tolerate this for a few days, the doctor will then start bolis feeds. The feeds will begin as a continuous drip (like today) but will slowly transition to feeding the girls all at once every 3 hours. The next step after this will be bottle feeding. Hopefully, bottle feeding will start around 34-35 weeks. Trinity’s feedings did increase today to 4cc per hour while the doctor aggressively increased Kinsley’s feeds to 7cc per hour.
Kinsley's IV was taken out, hopefully for good, as it went bad or slipped a bit anyway. She will need another IV right away only if her sugar levels are too low. They will be monitoring her levels in the next day or 2. She had to be put back to 9 on the CPAP as she was having a few issues with the breathing.
Parent's Thoughts:
It was a better day for Kinsley. Both of the girls are still progressing so we are very thankful. As far as the parents, we took a much needed night off from the hospital. We are both feeling pretty worn down and know we will be there tomorrow morning. We called in and spoke to Sally about how they were doing and all was well. We will report more tomorrow but just wanted to thank you all for the continued support.
Our Daily Encouragement:
With the Lord a day is like a thousand years, and a thousand years are like a day. The Lord is not slow in keeping his promise, as some understand slowness. He is patient with you, not wanting anyone to perish, but everyone to come to repentance.
2 Peter 3:8-9
Thursday April 30th
Babies Situation:
Brace yourselves!! We have a 3 pounder on our hands!!! Trinity is officially 3 lbs today!!! But…the nurses are giving her lasix again which will make her pee out all her excess fluids. We'll see but there is a strong possibility she’ll drop back under 3 lbs by tomorrow. Kinsley isn’t too far behind at 2 lbs 11 oz. Kinsley always weighed more in the womb but to keep it fair is letting her sis lead the way. How nice!
Both Girls went down to 8 on their oxygen pressure today. If they can get down to 6, they will be moved over to cannula which is the breathing mechanism you get when you have surgery or that you see on TV. It’s the clear tube that runs from ear to ear with small prongs into the nose. Since Crystal (the nurse) found Trinity sleeping half way off her egg crate today, she decided it was time to swaddle her. The girls also until now did not fit the weight requirements for swaddling. The swaddling occurred after I left so I can’t wait to see her tomorrow.
Some more big news for the Girls….They have graduated from micro preemie diapers into Big Girl Preemie Diapers!! It’s so exciting!! If you haven’t noticed, we get very excited when the girls poop, change diaper sizes, and gain weight. It’s the small things in life, right? Kinsley did have somewhat of a rough day overall. She went through 3 IV’s in 24 hours and had to get a blood transfusion by the end of the night. That’s a lot of pricks for a little body.
Parent's Thoughts:
Overall, today was a pretty positive day except for Kinsley having to get 3 IV’s and for all her Apnea’s and Brady’s. While I (Trena) was at the NICU, I experienced a very bad brady. All of a sudden, Kinsley’s monitor started to ding alerting us that her heart rate had dropped below 100. I didn’t think too much of it since it happens often. As routine, Crystal went into the isolate to stimulate her to breath. A few seconds went by and Kinsley didn’t respond. Calmly, Crystal reached over to turn up Kinsley’s air as she continued to stimulate her. Still no response. In times like this, I watch the nurse to see their reaction and this time, I noticed a slight panic in Crystal’s face so I stood up to look at Kinsley to find her as white as a ghost and totally limp. I froze, I didn’t know what to do. In the past, Keith and I would leave the room quickly knowing the nurses would get the situation under control but this time, I couldn’t leave. Suddenly Kory, the respiratory therapist, rushed over to the other side of the isolate and grabbed the bag. As Crystal watched all monitors, Kory bagged oxygen into Kinsley’s lungs. Kory had Kinsley’s head tilted back as air from the bag made her chest rise up and down. Thankfully, Kinsley’s heart rate started to rise as she started to breath on her own. I will never forget the vision of Kinsley lying there pale and limp. There is nothing worse than watching your baby struggle and having no control watching from the sidelines. Thank you Crystal and Kory for saving her life. I know this is routine for you but not for the helpless Parents.
Keith’s visit to the hospital was a little better than mine. He did experience Kinsley having a bunch of A’s and B’s but he also got to hold Trinity once again. In the last few weeks, the nurses have been encouraging him to do kangaroo care but he wasn’t comfortable with the babies being so small so he decided to make up the stipulation that he wouldn’t hold them until they were 3 lbs. This way, he thought the nurses would leave him alone (which they didn’t). Well, I found out during my afternoon visit that Trinity had officially hit 3 lbs so I texted him to get ready to hold tonight. He wrote back how excited he was that she had reached 3 lbs and was ready to hold. Trinity decided to make this hold a memorable one. Not only did she pee on him but she decided to brady on him. As he’s been taught, he gave Kinsley a little spanking to try to stimulate her but got himself in trouble with the nurse, Dina, for “patting a little too hard indicating he was slightly shaking her” ha. Sorry to laugh at you Keith but I know the whole situation was already intimidating and then you got yourself peed on and in trouble with the nurse. Just look at it this way, it can only get better. He also was able to meet Dr. Dekowski this evening and said they had a good conversation.
Our Daily Encouragement:
Can you fathom the mysteries of God? Can you probe the limits of the Almighty? They are higher than the heavens - what can you do? They are deeper than the depths of the grave - what can you know? Their measure is longer than the earth and wider than the sea.
Job 11:7-9
Brace yourselves!! We have a 3 pounder on our hands!!! Trinity is officially 3 lbs today!!! But…the nurses are giving her lasix again which will make her pee out all her excess fluids. We'll see but there is a strong possibility she’ll drop back under 3 lbs by tomorrow. Kinsley isn’t too far behind at 2 lbs 11 oz. Kinsley always weighed more in the womb but to keep it fair is letting her sis lead the way. How nice!
Both Girls went down to 8 on their oxygen pressure today. If they can get down to 6, they will be moved over to cannula which is the breathing mechanism you get when you have surgery or that you see on TV. It’s the clear tube that runs from ear to ear with small prongs into the nose. Since Crystal (the nurse) found Trinity sleeping half way off her egg crate today, she decided it was time to swaddle her. The girls also until now did not fit the weight requirements for swaddling. The swaddling occurred after I left so I can’t wait to see her tomorrow.
Some more big news for the Girls….They have graduated from micro preemie diapers into Big Girl Preemie Diapers!! It’s so exciting!! If you haven’t noticed, we get very excited when the girls poop, change diaper sizes, and gain weight. It’s the small things in life, right? Kinsley did have somewhat of a rough day overall. She went through 3 IV’s in 24 hours and had to get a blood transfusion by the end of the night. That’s a lot of pricks for a little body.
Parent's Thoughts:
Overall, today was a pretty positive day except for Kinsley having to get 3 IV’s and for all her Apnea’s and Brady’s. While I (Trena) was at the NICU, I experienced a very bad brady. All of a sudden, Kinsley’s monitor started to ding alerting us that her heart rate had dropped below 100. I didn’t think too much of it since it happens often. As routine, Crystal went into the isolate to stimulate her to breath. A few seconds went by and Kinsley didn’t respond. Calmly, Crystal reached over to turn up Kinsley’s air as she continued to stimulate her. Still no response. In times like this, I watch the nurse to see their reaction and this time, I noticed a slight panic in Crystal’s face so I stood up to look at Kinsley to find her as white as a ghost and totally limp. I froze, I didn’t know what to do. In the past, Keith and I would leave the room quickly knowing the nurses would get the situation under control but this time, I couldn’t leave. Suddenly Kory, the respiratory therapist, rushed over to the other side of the isolate and grabbed the bag. As Crystal watched all monitors, Kory bagged oxygen into Kinsley’s lungs. Kory had Kinsley’s head tilted back as air from the bag made her chest rise up and down. Thankfully, Kinsley’s heart rate started to rise as she started to breath on her own. I will never forget the vision of Kinsley lying there pale and limp. There is nothing worse than watching your baby struggle and having no control watching from the sidelines. Thank you Crystal and Kory for saving her life. I know this is routine for you but not for the helpless Parents.
Keith’s visit to the hospital was a little better than mine. He did experience Kinsley having a bunch of A’s and B’s but he also got to hold Trinity once again. In the last few weeks, the nurses have been encouraging him to do kangaroo care but he wasn’t comfortable with the babies being so small so he decided to make up the stipulation that he wouldn’t hold them until they were 3 lbs. This way, he thought the nurses would leave him alone (which they didn’t). Well, I found out during my afternoon visit that Trinity had officially hit 3 lbs so I texted him to get ready to hold tonight. He wrote back how excited he was that she had reached 3 lbs and was ready to hold. Trinity decided to make this hold a memorable one. Not only did she pee on him but she decided to brady on him. As he’s been taught, he gave Kinsley a little spanking to try to stimulate her but got himself in trouble with the nurse, Dina, for “patting a little too hard indicating he was slightly shaking her” ha. Sorry to laugh at you Keith but I know the whole situation was already intimidating and then you got yourself peed on and in trouble with the nurse. Just look at it this way, it can only get better. He also was able to meet Dr. Dekowski this evening and said they had a good conversation.
Our Daily Encouragement:
Can you fathom the mysteries of God? Can you probe the limits of the Almighty? They are higher than the heavens - what can you do? They are deeper than the depths of the grave - what can you know? Their measure is longer than the earth and wider than the sea.
Job 11:7-9
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