Babies Situation:
More feedings here we come!! The doctors have increased the babies feedings to 2 cc's/hr continuously!! The higher the feedings, the closer they get to all IV’s/PIC lines being removed which means a lower chance of infections. I did notice that Trinity looked pale yesterday. The nurse and I joked around that as she gets older, she has less of the preemie pink look and more of her parent’s skin color(sorry Trinity, Mommy and Daddy are really pale) but come to find out, she was low on red blood cells and needed to get blood today. Since the PIC line can only be used for antibiotics and fluids, another IV was started. Poor little Trinity. She now has a PIC line and an IV but the next time we see her, she’ll be her pretty pink again. No change on Kinsley except for her feedings.
Parent's Thoughts:
We will have to admit, not a day goes by that the thought of infection creeps into our heads. Just like the blood in the stool, it’s another nightmare we hope not to live. When I wake up in the middle of the night, it’s such a relief that we haven’t gotten a call from the hospital. I thank God every time but I also know that the night is not over. When I wake up in the morning, I thank God again. I actually thank God all day long. Each day we have with our babies is a blessing. With the prongs up their little noses (for the CPAP machine) and the IV’s and PIC lines, the chances of infection are definitely there. We have to keep in mind that all of this is out of our control so there is no reason to worry. God is in control-thankfully. Our neighbor, Pat, reminds us of that when we see him. Thank you Pat, you are a blessing. God is good.
Our Daily Encouragement:
For the Lord shall comfort Zion; he will comfort all her waste places; and he will make her wilderness like Eden, and her desert like the garden of the Lord; Joy and gladness shall be found therein, Thanksgiving, and the voice of melody.
Isaiah 51:3
Tuesday April 28th
Babies Situation:
Tuesday brings big news for Trinity’s!!! Her intestines look good and she is not having anymore green residuals so they have started her back on her feeds at 1 cc per hour continuously. They have also stopped her antibiotics. So like her sis, once her nutrition from the feedings is enough, her PIC line can be removed. Since she has gained weight, the doctors also increased her caffeine and will be giving it to her twice a day to help with her A’s and B’s. No changes on Kinsley today. She is quiet and happy, enjoying her food again!!
Parent's Thoughts:
We are so excited that both babies are back on their feeds. Unfortunately, we had to start from scratch but at this point, the intestines look good and they are getting milk. Once again, our doctors were proactive and made the right choices to protect their intestines. Thank you Dr. Diven!! We have to be careful and not get too comfortable knowing there probably will be more issues in the next few weeks but we will take it day by day. God, please help us accept your will.
Our Daily Encouragement:
For, lo, the winter is past, the rain is over and gone; The flowers appear on earth; the time of the singing of birds is come.
Song of Solomon 2:11-12
Tuesday brings big news for Trinity’s!!! Her intestines look good and she is not having anymore green residuals so they have started her back on her feeds at 1 cc per hour continuously. They have also stopped her antibiotics. So like her sis, once her nutrition from the feedings is enough, her PIC line can be removed. Since she has gained weight, the doctors also increased her caffeine and will be giving it to her twice a day to help with her A’s and B’s. No changes on Kinsley today. She is quiet and happy, enjoying her food again!!
Parent's Thoughts:
We are so excited that both babies are back on their feeds. Unfortunately, we had to start from scratch but at this point, the intestines look good and they are getting milk. Once again, our doctors were proactive and made the right choices to protect their intestines. Thank you Dr. Diven!! We have to be careful and not get too comfortable knowing there probably will be more issues in the next few weeks but we will take it day by day. God, please help us accept your will.
Our Daily Encouragement:
For, lo, the winter is past, the rain is over and gone; The flowers appear on earth; the time of the singing of birds is come.
Song of Solomon 2:11-12
Monday April 27th
Babies Situation:
The babies are growing!!! Every Sunday the babies are weighed and measured from head to toe including the size of their heads. Trinity is now 2 lbs 14 oz, her length is measuring 14.6 in and her head is 9.8 cm. Can you believe it? She’s almost 3 lbs!!!! Kinsley is now 2 lbs 10 oz, her length is 14.2 in, and her head is 9.8 cm. For some reason, I find it ironic that their heads have grown each week at the exact same rate but they are Identical twins. Nothing else has changed on Trinity but Kinsley has some big news. She is back to feedings!! She is now getting 1 cc per hour on continuous feeds. They have also stopped her antibiotics so once she is getting enough nutrition through her feeds, they will be able to stop her IV and can take it out.
Parent's Thoughts:
We look forward to Mondays knowing the Girls were measured the night before. It’s always exciting to hear how much they have grown. We can’t believe they are almost 3 lbs!! How exciting!! They are so cute to look at with their curly hair, little eye lashes, and fuzzy shoulders. Their bodies are filling out all over. We notice the weight gain in their fingers, legs, and bellies. It’s amazing watching them grow.
Our Daily Encouragement:
"Because he love me," says the Lord, "I will rescue him; I will protect him, for he acknowledges my name. He will call upon me, and I will answer him; I will be with him in trouble, I will deliver him and honor him. With long life will I satisfy him and show him my salvation."
Psalm 91:14-16
The babies are growing!!! Every Sunday the babies are weighed and measured from head to toe including the size of their heads. Trinity is now 2 lbs 14 oz, her length is measuring 14.6 in and her head is 9.8 cm. Can you believe it? She’s almost 3 lbs!!!! Kinsley is now 2 lbs 10 oz, her length is 14.2 in, and her head is 9.8 cm. For some reason, I find it ironic that their heads have grown each week at the exact same rate but they are Identical twins. Nothing else has changed on Trinity but Kinsley has some big news. She is back to feedings!! She is now getting 1 cc per hour on continuous feeds. They have also stopped her antibiotics so once she is getting enough nutrition through her feeds, they will be able to stop her IV and can take it out.
Parent's Thoughts:
We look forward to Mondays knowing the Girls were measured the night before. It’s always exciting to hear how much they have grown. We can’t believe they are almost 3 lbs!! How exciting!! They are so cute to look at with their curly hair, little eye lashes, and fuzzy shoulders. Their bodies are filling out all over. We notice the weight gain in their fingers, legs, and bellies. It’s amazing watching them grow.
Our Daily Encouragement:
"Because he love me," says the Lord, "I will rescue him; I will protect him, for he acknowledges my name. He will call upon me, and I will answer him; I will be with him in trouble, I will deliver him and honor him. With long life will I satisfy him and show him my salvation."
Psalm 91:14-16
Sunday April 26th
Babies Situation:
It was a great day today. The babies were peacefully sleeping when we arrived. Not too much has changed since yesterday. Both Trinity and Kinsley are hanging tight. Our Doctors are still holding off on their feedings as of now. They did find staph in Kinsley's urine culture but they are waiting for it to grow out more to find out what kind it is. She has been on antibiotics so hopefully it will be resolved soon. Kinsley also gained weight. She is now 2 lbs 8 oz. Trinity remains at 2 lbs 11 oz.
The big news of the day is that Daddy held for the first time!!! Trinity was the lucky girl as she was able to snuggle on Daddy's chest. She seemed to really enjoy her Daddy as she sated high the entire time and was as peaceful as can be. Mom couldn't stop smiling but Mom wasn't left out. She was able to hold Kinsley at the same time. It was a very intimate moment shared amongst our family. It felt like the world stopped around us. Pictures were taken with Grammy's camera. Once we can get them developed, we'll post them.
Parent's Thoughts:
We owe a big thanks to Bridget, the girls Nurse today, for convincing Dad he needed to hold Trinity instead of Mom. It was awesome to have one of my baby girl in my arms - an amazing experience. Mom's reaction of me with Trinity was priceless and worth it all.
However, I can't lie. I have many reservations about holding them right now. With all the infections coming up, I really felt as if it would be best for them to remain in their isolettes with the least amount of disturbances. The stress of moving them and the potential risk to me felt unnecessary right now but I am glad I did it.
We also want to thank you all again. It is truly amazing to us that so many of you are in their corner. We love to read all of your comments, emails, and everything else. We feel very blessed.
Our Daily Encouragement:
And when they had prayed, the place where they were assembled together was shaken; and they were all filled with the Holy Spirit, and they spoke the word of God with boldness.
Acts 4:31
It was a great day today. The babies were peacefully sleeping when we arrived. Not too much has changed since yesterday. Both Trinity and Kinsley are hanging tight. Our Doctors are still holding off on their feedings as of now. They did find staph in Kinsley's urine culture but they are waiting for it to grow out more to find out what kind it is. She has been on antibiotics so hopefully it will be resolved soon. Kinsley also gained weight. She is now 2 lbs 8 oz. Trinity remains at 2 lbs 11 oz.
The big news of the day is that Daddy held for the first time!!! Trinity was the lucky girl as she was able to snuggle on Daddy's chest. She seemed to really enjoy her Daddy as she sated high the entire time and was as peaceful as can be. Mom couldn't stop smiling but Mom wasn't left out. She was able to hold Kinsley at the same time. It was a very intimate moment shared amongst our family. It felt like the world stopped around us. Pictures were taken with Grammy's camera. Once we can get them developed, we'll post them.
Parent's Thoughts:
We owe a big thanks to Bridget, the girls Nurse today, for convincing Dad he needed to hold Trinity instead of Mom. It was awesome to have one of my baby girl in my arms - an amazing experience. Mom's reaction of me with Trinity was priceless and worth it all.
However, I can't lie. I have many reservations about holding them right now. With all the infections coming up, I really felt as if it would be best for them to remain in their isolettes with the least amount of disturbances. The stress of moving them and the potential risk to me felt unnecessary right now but I am glad I did it.
We also want to thank you all again. It is truly amazing to us that so many of you are in their corner. We love to read all of your comments, emails, and everything else. We feel very blessed.
Our Daily Encouragement:
And when they had prayed, the place where they were assembled together was shaken; and they were all filled with the Holy Spirit, and they spoke the word of God with boldness.
Acts 4:31
Saturday April 25th
Babies Situation:
Today was a nice, quiet day. When we got to the NICU, the Girls were all wrapped up and snuggled in. It’s so nice to find them that way. They look so peaceful and comforted. Thank you Crystal, one of the girls primary nurses. Both babies gained weight. Trinity is now 2 lbs 11 oz and Kinsley is 2 lbs 7 oz. It’s always exciting to find out that they have gained. Gaining weight is so important for them at this point. The more they gain, the better they can fight off infection and will be able to hold their body temperature. Good news on Trinity. They were successful in getting the PIC line in today so the IV in the head came out. Thank you God! Her blood culture also came back negative. That is huge!!! Not too much going on with Kinsley. They are watching her closely to see if she will continue to follow in her sister’s footsteps. So far, nothing has changed. In the next few days, the doctor will decide if she will need a PIC line or if she will be able to start feeds again. Mom did get to hold her today. Again, she snuggled in and took a nice nap on Mom’s chest.
Parent's Thoughts:
Today was a good day and we LOVE good days!! It was uneventful and calm and the babies looked great. Thank you God for the peace and comfort we have. We feel very blessed to get the opportunity to watch your miracles grow.
Our Daily Encouragement:
I write this to you who believe in the Son of God, so that you may know you have eternal life. And we can be confident that he will listen to us whenever we ask him for anything in line with his will.
I John 5:13-14
Today was a nice, quiet day. When we got to the NICU, the Girls were all wrapped up and snuggled in. It’s so nice to find them that way. They look so peaceful and comforted. Thank you Crystal, one of the girls primary nurses. Both babies gained weight. Trinity is now 2 lbs 11 oz and Kinsley is 2 lbs 7 oz. It’s always exciting to find out that they have gained. Gaining weight is so important for them at this point. The more they gain, the better they can fight off infection and will be able to hold their body temperature. Good news on Trinity. They were successful in getting the PIC line in today so the IV in the head came out. Thank you God! Her blood culture also came back negative. That is huge!!! Not too much going on with Kinsley. They are watching her closely to see if she will continue to follow in her sister’s footsteps. So far, nothing has changed. In the next few days, the doctor will decide if she will need a PIC line or if she will be able to start feeds again. Mom did get to hold her today. Again, she snuggled in and took a nice nap on Mom’s chest.
Parent's Thoughts:
Today was a good day and we LOVE good days!! It was uneventful and calm and the babies looked great. Thank you God for the peace and comfort we have. We feel very blessed to get the opportunity to watch your miracles grow.
Our Daily Encouragement:
I write this to you who believe in the Son of God, so that you may know you have eternal life. And we can be confident that he will listen to us whenever we ask him for anything in line with his will.
I John 5:13-14
New Pictures
You can find New Pictures at www.pinkletoes.com/blog
We posted this yesterday but wanted to make sure you have it again in case you missed it.
Michele, a phenomenal photographer, of Pinkletoes came out to the NICU to take pictures of our little miracles. What an amazing job she did!! She was able to capture our experience in a very special way.
Again please check out her photos she took on her website. www.pinkletoes.com/blog
We posted this yesterday but wanted to make sure you have it again in case you missed it.
Michele, a phenomenal photographer, of Pinkletoes came out to the NICU to take pictures of our little miracles. What an amazing job she did!! She was able to capture our experience in a very special way.
Again please check out her photos she took on her website. www.pinkletoes.com/blog
Friday April 24th
Babies Situation:
What a great feeling, it’s Friday!! The weekend has been long awaited. Trena’s friend Monica Willenberg met the babies today. Monica also had twin girls in this NICU 18 months ago so it’s been nice for Trena to have her support.
Today has not been a good day for Trinity. The x-ray of her abdomen showed a loop in her bowel so the doctor decided to keep her off feeds and get a PIC line put in for her nutrients and antibiotics. Unfortunately, IV’s only last 24-48 hours so the PIC line is favorable. Also, more nutrients can be given through the PIC line which will help her to continue to gain weight. The doctor plans to re-introduce feeds on the 28th and will have to start from scratch. She will slowly be built back up to full feeds. Poor Trinity, the specialist was unable to get the PIC line in which means another IV had to be put in until they could try later. Well, Mom left the room to pump and when she came back, Trinity had an IV in her HEAD!! What a shock. Let me tell you, no one wants to see an IV in their baby’s head. Tomorrow, we should find out the final results of the blood culture. So far, nothing has grown.
Kinsley is having somewhat of a better day. She is at 21% oxygen and doing great - Thank you Lord!! She is still on IV and antibiotics while Dr. Diven decides what the next step should be with her. They did take a blood culture and urine sample today just to rule out a urinary tract infection and blood infection. Again, the doctor is being proactive.
Mom did get to hold both babies today. Kinsley did great as normal. She definitely enjoys kangaroo care time with Mommy. Due to Trinity’s rough day, her kangaroo time was cut short. She would tolerate one minute but turn to being very squirmy the next. She even had an A & B during the hold which freaked out both Mom and Dad. After that, we decided it was best to put her back into her isolette. She had gone through a lot of stimulation that day and kangaroo care was just too much.
Parent's Thoughts:
This week has been somewhat more stressful than the week before. We were at the point where we were having more good days than bad. What a relief. Then all of a sudden we were hit with the feeding issue. We knew the feeding stage was critical but deep down, we were hoping it wouldn’t be an issue with our babies. We dreaded the thought of the nurse finding blood in their diapers. Last week, Trena was sitting in the NICU when another Mother down the way found blood in her baby’s diaper. She could see the fear on her face. Trena told me that her heart stopped for a minute while she thought how thankful she was that it wasn’t her. Well, it did and it’s here. Fortunately, we have great doctors who have been telling us from the start how important feedings are and how they will do what it takes to protect the babies intestines. We also have God on our side so we know it will all be ok.
Our Daily Encouragement:
Our hearts ache, but at the same time we have the joy of the Lord. We are poor, but we give rich spiritual gifts to others. We own nothing, and yet we enjoy everything.
2 Corinthians
What a great feeling, it’s Friday!! The weekend has been long awaited. Trena’s friend Monica Willenberg met the babies today. Monica also had twin girls in this NICU 18 months ago so it’s been nice for Trena to have her support.
Today has not been a good day for Trinity. The x-ray of her abdomen showed a loop in her bowel so the doctor decided to keep her off feeds and get a PIC line put in for her nutrients and antibiotics. Unfortunately, IV’s only last 24-48 hours so the PIC line is favorable. Also, more nutrients can be given through the PIC line which will help her to continue to gain weight. The doctor plans to re-introduce feeds on the 28th and will have to start from scratch. She will slowly be built back up to full feeds. Poor Trinity, the specialist was unable to get the PIC line in which means another IV had to be put in until they could try later. Well, Mom left the room to pump and when she came back, Trinity had an IV in her HEAD!! What a shock. Let me tell you, no one wants to see an IV in their baby’s head. Tomorrow, we should find out the final results of the blood culture. So far, nothing has grown.
Kinsley is having somewhat of a better day. She is at 21% oxygen and doing great - Thank you Lord!! She is still on IV and antibiotics while Dr. Diven decides what the next step should be with her. They did take a blood culture and urine sample today just to rule out a urinary tract infection and blood infection. Again, the doctor is being proactive.
Mom did get to hold both babies today. Kinsley did great as normal. She definitely enjoys kangaroo care time with Mommy. Due to Trinity’s rough day, her kangaroo time was cut short. She would tolerate one minute but turn to being very squirmy the next. She even had an A & B during the hold which freaked out both Mom and Dad. After that, we decided it was best to put her back into her isolette. She had gone through a lot of stimulation that day and kangaroo care was just too much.
Parent's Thoughts:
This week has been somewhat more stressful than the week before. We were at the point where we were having more good days than bad. What a relief. Then all of a sudden we were hit with the feeding issue. We knew the feeding stage was critical but deep down, we were hoping it wouldn’t be an issue with our babies. We dreaded the thought of the nurse finding blood in their diapers. Last week, Trena was sitting in the NICU when another Mother down the way found blood in her baby’s diaper. She could see the fear on her face. Trena told me that her heart stopped for a minute while she thought how thankful she was that it wasn’t her. Well, it did and it’s here. Fortunately, we have great doctors who have been telling us from the start how important feedings are and how they will do what it takes to protect the babies intestines. We also have God on our side so we know it will all be ok.
Our Daily Encouragement:
Our hearts ache, but at the same time we have the joy of the Lord. We are poor, but we give rich spiritual gifts to others. We own nothing, and yet we enjoy everything.
2 Corinthians
Thursday April 23rd
Babies Situation:
The Girls are 30 weeks gestation today – Praise God!!! To help celebrate, Michele, a phenomenal photographer, of Pinkletoes blessed us with her presence and came out to the NICU to take pictures of our little miracles. What an amazing job she did!! She was able to capture our experience in a very special way.
You can get a peak of the photos she took on her website. www.pinkletoes.com/blog
The babies also got their baths today. Unfortunately, we missed it but Andrea, one of the primary night nurses, let us know that they are starting to really enjoy their baths. She said that they were fully alert with their eyes wide open. As she talked to them, their eyes searched for her voice. Andrea even made them special little bows that she tied around their heads. How cute!! We love when our nurses do extra special things like this.
Today, Kinsley decided to follow her sister in having blood in her stool. Mom’s heart dropped as she excitedly got to change her diaper. The excitement ended quickly as the nurse rushed the diaper off to the doctor. Immediately, the doctor stopped her feeds and started the IV and antibiotics. What a set back but the doctor did predict that we would have at least 3 more issues with feedings.
Trinity is still getting her nutrients through the IV and is still on antibiotics. The doctor wants to watch her throughout the night to decide on whether she should stay on the TPN or go back to feeds. If he decides to keep her on the TPN, she will get a PIC line tomorrow.
On a good note, their breathing is improving daily. It seems like their lungs matured overnight as they stopped having as many A’s and B’s. Trinity was taken off her rate and is doing great. She is at 21% oxygen(room air). Yeah!!!! Kinsley is also doing well staying around 24% oxygen at a pressure of 9. Good job Girls!! We are so proud of you. Trinity did gain 1 oz. She is now 2lbs 10oz. Kinsley remained the same at 2lbs 5oz. Mom did get to hold Kinsley today. Kinsley cuddled up on Mom’s chest and took a nice, peaceful nap. What an amazing experience. Hopefully Mom will get to hold Trinity tomorrow!!
Parent's Thoughts:
The NICU Texas Two step is in full swing. It is frustrating and disappointing to have both Girls struggling with their feedings but we are thankful that the doctors have been proactive to protect their digestive system. We cannot afford to have any damage done to their intestines. Today is one of these days that we need to remember that God is in control. Our babies are still going strong even though they are struggling on the feeding side of things. You would not know that they are struggling with their feedings by looking at them. They look good!!!
Our Daily Encouragement:
Satisfy us in the morning with your unfailing love, that we may sing for joy and be glad all our days.
Psalm 90:14
The Girls are 30 weeks gestation today – Praise God!!! To help celebrate, Michele, a phenomenal photographer, of Pinkletoes blessed us with her presence and came out to the NICU to take pictures of our little miracles. What an amazing job she did!! She was able to capture our experience in a very special way.
You can get a peak of the photos she took on her website. www.pinkletoes.com/blog
The babies also got their baths today. Unfortunately, we missed it but Andrea, one of the primary night nurses, let us know that they are starting to really enjoy their baths. She said that they were fully alert with their eyes wide open. As she talked to them, their eyes searched for her voice. Andrea even made them special little bows that she tied around their heads. How cute!! We love when our nurses do extra special things like this.
Today, Kinsley decided to follow her sister in having blood in her stool. Mom’s heart dropped as she excitedly got to change her diaper. The excitement ended quickly as the nurse rushed the diaper off to the doctor. Immediately, the doctor stopped her feeds and started the IV and antibiotics. What a set back but the doctor did predict that we would have at least 3 more issues with feedings.
Trinity is still getting her nutrients through the IV and is still on antibiotics. The doctor wants to watch her throughout the night to decide on whether she should stay on the TPN or go back to feeds. If he decides to keep her on the TPN, she will get a PIC line tomorrow.
On a good note, their breathing is improving daily. It seems like their lungs matured overnight as they stopped having as many A’s and B’s. Trinity was taken off her rate and is doing great. She is at 21% oxygen(room air). Yeah!!!! Kinsley is also doing well staying around 24% oxygen at a pressure of 9. Good job Girls!! We are so proud of you. Trinity did gain 1 oz. She is now 2lbs 10oz. Kinsley remained the same at 2lbs 5oz. Mom did get to hold Kinsley today. Kinsley cuddled up on Mom’s chest and took a nice, peaceful nap. What an amazing experience. Hopefully Mom will get to hold Trinity tomorrow!!
Parent's Thoughts:
The NICU Texas Two step is in full swing. It is frustrating and disappointing to have both Girls struggling with their feedings but we are thankful that the doctors have been proactive to protect their digestive system. We cannot afford to have any damage done to their intestines. Today is one of these days that we need to remember that God is in control. Our babies are still going strong even though they are struggling on the feeding side of things. You would not know that they are struggling with their feedings by looking at them. They look good!!!
Our Daily Encouragement:
Satisfy us in the morning with your unfailing love, that we may sing for joy and be glad all our days.
Psalm 90:14
Wednesday April 22nd
Babies Situation:
Even though they are working through some challenges, I am happy to report that the girls are 5 weeks old today.
Trinity's A's and B's have slowed down so they dropped her CPAP rate from 20 to 15 minimum breaths per minute. This is good news for her breathing. As far as her stomach issues there are still no concrete results of the situation. Our Doctor is adjusting her antibiotics every 8 hours. Her belly still looks really full but feels soft which is good. The good news is our Doctor feels the infection/issue was caught ahead of time. Trinity will most likely have a slow gain of weight until she gets off of TPN/IV and back on her feedings. Tonight she weighed 2 lbs 9 oz.
Mom got to hold Kinsley again today (for 20-30 mins) Kinsley cried when she had to go back in her incubator. Kinsley had some blood work done this morning and it looked good. They also checked for CRP (C Reactive Protein) - an anti inflammatory check. When Andrea assessed her very early in the morning, she thought the top of her belly felt hard so they will be monitoring her now as well. Our nurses listen to their hearts and gastric activity every 3 hours. Kinsley is also improving on her breathing. She is at 24% oxygen with her pressure still at 9 and still no rate. Our Doctor decided to split up her caffeine doses to spread it out over the course of the day as she was burning it off to fast. She is getting 6.7 cc's continuously and now weighs 2 lbs 5 oz.
Parent's Thoughts:
We are so blessed - they are 5 weeks old today. They have been through so much over the past 5 weeks and have fought hard the entire time. We realize there are still many challenges ahead especially with the newest issue this week. We continue to pray that they can develop and progress through whatever they encounter.
Our Daily Encouragement:
You are the light of the world. A city that is set on a hill cannot be hidden... Let your light so shine before men, that they may see your good works and glorify your Father in heaven.
Matthew 5:14,16
Even though they are working through some challenges, I am happy to report that the girls are 5 weeks old today.
Trinity's A's and B's have slowed down so they dropped her CPAP rate from 20 to 15 minimum breaths per minute. This is good news for her breathing. As far as her stomach issues there are still no concrete results of the situation. Our Doctor is adjusting her antibiotics every 8 hours. Her belly still looks really full but feels soft which is good. The good news is our Doctor feels the infection/issue was caught ahead of time. Trinity will most likely have a slow gain of weight until she gets off of TPN/IV and back on her feedings. Tonight she weighed 2 lbs 9 oz.
Mom got to hold Kinsley again today (for 20-30 mins) Kinsley cried when she had to go back in her incubator. Kinsley had some blood work done this morning and it looked good. They also checked for CRP (C Reactive Protein) - an anti inflammatory check. When Andrea assessed her very early in the morning, she thought the top of her belly felt hard so they will be monitoring her now as well. Our nurses listen to their hearts and gastric activity every 3 hours. Kinsley is also improving on her breathing. She is at 24% oxygen with her pressure still at 9 and still no rate. Our Doctor decided to split up her caffeine doses to spread it out over the course of the day as she was burning it off to fast. She is getting 6.7 cc's continuously and now weighs 2 lbs 5 oz.
Parent's Thoughts:
We are so blessed - they are 5 weeks old today. They have been through so much over the past 5 weeks and have fought hard the entire time. We realize there are still many challenges ahead especially with the newest issue this week. We continue to pray that they can develop and progress through whatever they encounter.
Our Daily Encouragement:
You are the light of the world. A city that is set on a hill cannot be hidden... Let your light so shine before men, that they may see your good works and glorify your Father in heaven.
Matthew 5:14,16
Tuesday April 21st
Babies Situation:
It was a difficult day. A timely visit from our close friend, neighbor, and Pastor at Riverbend Church, Pat Abbott, brought some much needed comfort to the situation today. He reminded us through prayer that God is in control and that we should not worry but trust him in all things. It was a true blessing and privilege for us to have him visit and pray over the girls.
Things got worse this morning for Trinity. The blood in her stool yesterday is causing concern. She had a few Apnea's in a 30 minute window and had a lot of residuals from her feeds. Our Doctor, Steve Diven, the girls primary Doctor, decided it was best to stop all her feeds, put her back on IV, and unfortunately start her back up on antibiotics. Dr. Diven explains she could have the following: nothing at all (the best situation), a urinary tract infection (not good), a blood infection (worse), or Necrotizing enterocolitis (NEC) the most serious. Most of you probably know about the first 3 in the list. The 4th is the following: "Necrotizing" means the death of tissue, "entero" refers to the small intestine, "colo" to the large intestine, and "itis" means inflammation. For preemies this is very dangerous as it causes destruction of the bowel or part of the bowel. We pray that it is not NEC. Some positive signs though came when they did a CBC (complete blood cell - white and red) check. Results looked good. They did a culture, urine sample, and another X-Ray. It will take a few days before they get any results of what is actually going on with her.
Kinsley on the other hand is doing better with her breathing. They reduced her CPAP to 9 and her lungs look good but her Apnea's went up a bit. They attribute this to the small change and are not too concerned about it. Her feeds remained at 6.5 cc's continuously.
Parent's Thoughts:
This was a tough day for us. It was really nice to be reminded that it is not our plan and it is not in our hands. It is definitely a step backwards for Trinity but our Doctor is being very proactive in treating the situation. We are very grateful that all the Doctors are so precautionary in treating the girls. We pray that Trinity gets through this situation with minimal impact and our Doctor has the wisdom to make the right decisions. Please pray for her... and thank you all for the continued support.
Our Daily Encouragement:
You who live in the shelter of the Most High, who abide in the shadow of the Almighty, will say to the Lord, "My refuge and my fortress; my God, in whom I trust."
Psalm 91:1-2
It was a difficult day. A timely visit from our close friend, neighbor, and Pastor at Riverbend Church, Pat Abbott, brought some much needed comfort to the situation today. He reminded us through prayer that God is in control and that we should not worry but trust him in all things. It was a true blessing and privilege for us to have him visit and pray over the girls.
Things got worse this morning for Trinity. The blood in her stool yesterday is causing concern. She had a few Apnea's in a 30 minute window and had a lot of residuals from her feeds. Our Doctor, Steve Diven, the girls primary Doctor, decided it was best to stop all her feeds, put her back on IV, and unfortunately start her back up on antibiotics. Dr. Diven explains she could have the following: nothing at all (the best situation), a urinary tract infection (not good), a blood infection (worse), or Necrotizing enterocolitis (NEC) the most serious. Most of you probably know about the first 3 in the list. The 4th is the following: "Necrotizing" means the death of tissue, "entero" refers to the small intestine, "colo" to the large intestine, and "itis" means inflammation. For preemies this is very dangerous as it causes destruction of the bowel or part of the bowel. We pray that it is not NEC. Some positive signs though came when they did a CBC (complete blood cell - white and red) check. Results looked good. They did a culture, urine sample, and another X-Ray. It will take a few days before they get any results of what is actually going on with her.
Kinsley on the other hand is doing better with her breathing. They reduced her CPAP to 9 and her lungs look good but her Apnea's went up a bit. They attribute this to the small change and are not too concerned about it. Her feeds remained at 6.5 cc's continuously.
Parent's Thoughts:
This was a tough day for us. It was really nice to be reminded that it is not our plan and it is not in our hands. It is definitely a step backwards for Trinity but our Doctor is being very proactive in treating the situation. We are very grateful that all the Doctors are so precautionary in treating the girls. We pray that Trinity gets through this situation with minimal impact and our Doctor has the wisdom to make the right decisions. Please pray for her... and thank you all for the continued support.
Our Daily Encouragement:
You who live in the shelter of the Most High, who abide in the shadow of the Almighty, will say to the Lord, "My refuge and my fortress; my God, in whom I trust."
Psalm 91:1-2
Monday April 20th
Babies Situation:
The day started well but things changed a bit early this evening.
Mom got to hold them both again today which was awesome. They both love when Mom or Dad comfort them by putting our hands over them while in their isolettes as well. Trinity is being her active sassy self, giving the Nurses a hard time when they are assessing her.
Later in the evening our Nurse found blood in Trinity's stool. She received 3 abdomen x-rays and early results show her internal organs looking OK. She has not been showing signs of being sick but our Doctor did decide to take her off of the the HMF (Human Milk Fortifier) to be proactive. They will be monitoring her closely and if things get worse she will have to go back on IV and Antibiotics and they will stop her feeds. She also received Epogen (EPO) today for the first time which will help her increase the growth of red blood cells and limit the need for blood transfusions. She will get EPO shots 3 times a week for the foreseeable future.
Trinity is now 14.4 inches long. The girls head sizes are identical at 9.3 inches in circumference. Kinsley's length is still in question this evening. Our Nurse, Andrea, didn't think that she shrunk since her last check which came in at 13.6 inches but it came in smaller. She is going to check her again tonight.
Trinity's feeding increased to 8 cc's continuous while Kinsley is at 6.5 cc's. Kinsley is doing better with oxygen and is now at 24% while Trinity is at 21% but is still on a rate of 20. As far as weight, Trinity came in at 2 lbs. 9 oz and Kinsley weighed 2 lbs. 4 oz. Kinsley is doing well overall.
Parent's Thoughts:
We have had so many consecutive good days and started to get a little comfortable with the situation. We were getting into a groove with the girls doing so well over the past week. The setback for Trinity has reminded us how delicate a situation we are still in. We ask for prayers that this will just be a small setback for Trinity and that this is nothing serious. I will report tomorrow about the possible outcomes as the Doctor fills us in on what is going on with her. Please keep the girls in your prayers and especially Trinity with this news.
Our Daily Encouragement:
O God, thou hast taught me from my youth: and hitherto have I declared thy wondrous works.
Psalm 71:17
The day started well but things changed a bit early this evening.
Mom got to hold them both again today which was awesome. They both love when Mom or Dad comfort them by putting our hands over them while in their isolettes as well. Trinity is being her active sassy self, giving the Nurses a hard time when they are assessing her.
Later in the evening our Nurse found blood in Trinity's stool. She received 3 abdomen x-rays and early results show her internal organs looking OK. She has not been showing signs of being sick but our Doctor did decide to take her off of the the HMF (Human Milk Fortifier) to be proactive. They will be monitoring her closely and if things get worse she will have to go back on IV and Antibiotics and they will stop her feeds. She also received Epogen (EPO) today for the first time which will help her increase the growth of red blood cells and limit the need for blood transfusions. She will get EPO shots 3 times a week for the foreseeable future.
Trinity is now 14.4 inches long. The girls head sizes are identical at 9.3 inches in circumference. Kinsley's length is still in question this evening. Our Nurse, Andrea, didn't think that she shrunk since her last check which came in at 13.6 inches but it came in smaller. She is going to check her again tonight.
Trinity's feeding increased to 8 cc's continuous while Kinsley is at 6.5 cc's. Kinsley is doing better with oxygen and is now at 24% while Trinity is at 21% but is still on a rate of 20. As far as weight, Trinity came in at 2 lbs. 9 oz and Kinsley weighed 2 lbs. 4 oz. Kinsley is doing well overall.
Parent's Thoughts:
We have had so many consecutive good days and started to get a little comfortable with the situation. We were getting into a groove with the girls doing so well over the past week. The setback for Trinity has reminded us how delicate a situation we are still in. We ask for prayers that this will just be a small setback for Trinity and that this is nothing serious. I will report tomorrow about the possible outcomes as the Doctor fills us in on what is going on with her. Please keep the girls in your prayers and especially Trinity with this news.
Our Daily Encouragement:
O God, thou hast taught me from my youth: and hitherto have I declared thy wondrous works.
Psalm 71:17
Sunday April 19th
Babies Situation:
We had another close friend come to visit today, Shannon (all the way from Michigan). The girls were very happy to see her and opened their eyes to greet her.
Big news of day - Pam told Mom she could hold both of them - Trinity first and then Kinsley. This was the first time that Mom could hold both of them - truly amazing. It also marks the 3rd hold for Kinsley, her last was a couple of weeks ago.
Their feedings have stayed the same. Kinsley is getting another x-ray tomorrow to see how here lungs are doing.
Developmentally the girls are working on self-consoling themselves to calm themselves down when necessary without the Nurses assistance. They are also working on flexing and getting toned up. They are handling their assessments and baths very well with limited stress. The way they are positioned in their isolettes is also very important for proper development. The Nurses position their hands to their face with their arms and legs bent and close to their body. The girls like and need boundaries (as if they were in the womb). Snuggle-ups provide a very stable environment for them with a little Gel pad under their head and shoulders for good support. It was also interesting to find out that they get dizzy very easily so they need to be moved slowly.
Parent's Thoughts:
Many good days in a row - a day of rest and the girls took advantage right on Mom's chest. It was so nice to see them all together - sharing their love for each other. For a moment all was right and OK. We felt very fortunate. It is also amazing to me how the whole process of getting them from their isolettes to Mom with all the cords and monitors being moved along the way. All of our Nurses, so gentle and loving with the girls - a true blessing these little ones.
Our Daily Encouragement:
He sends from heaven and saves me,... God sends his love and his faithfulness. Be exalted, O God, above the heavens; let your glory be over all the earth.
Psalm 57:3,5
We had another close friend come to visit today, Shannon (all the way from Michigan). The girls were very happy to see her and opened their eyes to greet her.
Big news of day - Pam told Mom she could hold both of them - Trinity first and then Kinsley. This was the first time that Mom could hold both of them - truly amazing. It also marks the 3rd hold for Kinsley, her last was a couple of weeks ago.
Their feedings have stayed the same. Kinsley is getting another x-ray tomorrow to see how here lungs are doing.
Developmentally the girls are working on self-consoling themselves to calm themselves down when necessary without the Nurses assistance. They are also working on flexing and getting toned up. They are handling their assessments and baths very well with limited stress. The way they are positioned in their isolettes is also very important for proper development. The Nurses position their hands to their face with their arms and legs bent and close to their body. The girls like and need boundaries (as if they were in the womb). Snuggle-ups provide a very stable environment for them with a little Gel pad under their head and shoulders for good support. It was also interesting to find out that they get dizzy very easily so they need to be moved slowly.
Parent's Thoughts:
Many good days in a row - a day of rest and the girls took advantage right on Mom's chest. It was so nice to see them all together - sharing their love for each other. For a moment all was right and OK. We felt very fortunate. It is also amazing to me how the whole process of getting them from their isolettes to Mom with all the cords and monitors being moved along the way. All of our Nurses, so gentle and loving with the girls - a true blessing these little ones.
Our Daily Encouragement:
He sends from heaven and saves me,... God sends his love and his faithfulness. Be exalted, O God, above the heavens; let your glory be over all the earth.
Psalm 57:3,5
Saturday April 18th
Babies Situation:
We had more family in town this weekend to meet the girls - Mike and Stacy. It is interesting to note that Mike and Stacy have a unique bond to the girls - they are all native Texans.
The big news today comes when our Nurse, Pam, told Mom she could hold Trinity. It was so precious to see them together. Trinity cuddled right into the Kangaroo care on Mom's chest. Pictures will be posted soon.
Overall Trinity is doing OK. She had another evening diaper blow-out. Our Nurse, Sally, was used to this and took every precaution but Trinity had other plans. This time she decided to send it out the sides of her tiny diaper. She is still having some A's and B's. She weighs 2 lbs 8 oz. Our Doctor also decided to start giving her some Iron.
Kinsley has had some of her own challenges. It seems as if her feet are somewhat positioned outward from the birth. She had her first session with her physiotherapist who will be doing exercises with her to help get things proper. She hasn't pooped today and weighs 2 lbs 4 oz. She is doing better on her oxygen with the CPAP as well (read below).
Parent's Thoughts:
What a true blessing today. More family to see the girls and since it is Saturday, I had the opportunity to be here for Mom and Trinity's first embrace. It was a beautiful sight and a long time coming - 32 days from birth. Kinsley also loved every moment of Mom and Trinity's experience. Kinsley let her Parents and Sister know how excited she was for her through her monitors - breathing at much better/higher rates than she had been for the rest of the day. The prayers are working... we are all together... working through things... he is listening... and we appreciate it all.
Our Daily Encouragement:
To the Lord I cry aloud, and he answers me from his holy hill. I lie down and sleep; I wake again, because the Lord sustains me.
Psalm 3:4-5
We had more family in town this weekend to meet the girls - Mike and Stacy. It is interesting to note that Mike and Stacy have a unique bond to the girls - they are all native Texans.
The big news today comes when our Nurse, Pam, told Mom she could hold Trinity. It was so precious to see them together. Trinity cuddled right into the Kangaroo care on Mom's chest. Pictures will be posted soon.
Overall Trinity is doing OK. She had another evening diaper blow-out. Our Nurse, Sally, was used to this and took every precaution but Trinity had other plans. This time she decided to send it out the sides of her tiny diaper. She is still having some A's and B's. She weighs 2 lbs 8 oz. Our Doctor also decided to start giving her some Iron.
Kinsley has had some of her own challenges. It seems as if her feet are somewhat positioned outward from the birth. She had her first session with her physiotherapist who will be doing exercises with her to help get things proper. She hasn't pooped today and weighs 2 lbs 4 oz. She is doing better on her oxygen with the CPAP as well (read below).
Parent's Thoughts:
What a true blessing today. More family to see the girls and since it is Saturday, I had the opportunity to be here for Mom and Trinity's first embrace. It was a beautiful sight and a long time coming - 32 days from birth. Kinsley also loved every moment of Mom and Trinity's experience. Kinsley let her Parents and Sister know how excited she was for her through her monitors - breathing at much better/higher rates than she had been for the rest of the day. The prayers are working... we are all together... working through things... he is listening... and we appreciate it all.
Our Daily Encouragement:
To the Lord I cry aloud, and he answers me from his holy hill. I lie down and sleep; I wake again, because the Lord sustains me.
Psalm 3:4-5
Friday April 17th
Babies Situation:
The girls had another visitor today, our close friend Kristen.
A weird thing happened today. Our Nurse Wyana found a sore on the bottom of one foot on each of the girls. The sore looks the same - like a blister but they both have it and it is really bizarre as the Doctors and Nurses are not quite sure what it is and how it actually got there. Sometimes these sores show up but they usually come a lot earlier and just after birth not over a month into life. They will be treating it with cream so we shall see what happens soon enough.
The big news of the day was the Central Arterial Line being removed from Kinsley stopping all anti-biotics. The Doctors feel comfortable to take her off so that it is good news. The Doctors decided to increase their intake of sodium and up their feedings. They are both still having sporadic A's and B's but they seem to have more of them at night time.
Parent's Thoughts:
We missed them so much after just a little downtime. We are very grateful for another good day. The girls look good. They are pretty comfortable in their isolettes and they are still growing. We are very blessed that they have had such a good week. All of your prayers out there continue to work. Trinity and Kinsley(plus Mom and Dad) thank you all for your love and support.
Our Daily Encouragement:
Now thanks be to Gd who always leads us in triumph in Christ, and through us diffuses the fragrance of His knowledge in every place. For we are to God the fragrance of Christ among those who are being saved among those who are perishing.
2 Corinthians 2:14-15
The girls had another visitor today, our close friend Kristen.
A weird thing happened today. Our Nurse Wyana found a sore on the bottom of one foot on each of the girls. The sore looks the same - like a blister but they both have it and it is really bizarre as the Doctors and Nurses are not quite sure what it is and how it actually got there. Sometimes these sores show up but they usually come a lot earlier and just after birth not over a month into life. They will be treating it with cream so we shall see what happens soon enough.
The big news of the day was the Central Arterial Line being removed from Kinsley stopping all anti-biotics. The Doctors feel comfortable to take her off so that it is good news. The Doctors decided to increase their intake of sodium and up their feedings. They are both still having sporadic A's and B's but they seem to have more of them at night time.
Parent's Thoughts:
We missed them so much after just a little downtime. We are very grateful for another good day. The girls look good. They are pretty comfortable in their isolettes and they are still growing. We are very blessed that they have had such a good week. All of your prayers out there continue to work. Trinity and Kinsley(plus Mom and Dad) thank you all for your love and support.
Our Daily Encouragement:
Now thanks be to Gd who always leads us in triumph in Christ, and through us diffuses the fragrance of His knowledge in every place. For we are to God the fragrance of Christ among those who are being saved among those who are perishing.
2 Corinthians 2:14-15
Thursday April 16th
Babies Situation:
It was a quiet day. The girls are 29 weeks gestation today - wow...
Trinity's lungs are more developed than Kinsley's but she needs a little more assistance on the CPAP. She has a rate of 20 with a peak pressure of 9 at 22% oxygen. She did have a handful of A's and B's but she is hanging in there. They also gave both of them a loading dosage of caffeine to help stimulate them.
Kinsley was at 33% oxygen an improvement from last night of 45% with a peak pressure from 9-10 but no rate. She also got caffeine and had her last dosage of antibiotics and anti-fungal medication - yeah. Even though Kinsley is doing OK, she is still needing the secretions to be suctioned a bit. Her chest X-Rays showed some haziness so it may still be a few days before she gets all the fluids out of her lungs.
Parent's Thoughts:
We were able to take a scheduled/much needed night off from the hospital. I hung with some of the boys while Mom was able to catch up on some things that she needed to get done. Even though we had the night off, we talked to our Nurse to see how the girls were doing. It is nice for us to know that we can call whenever we want to check in on the girls (especially if we cannot make it there). We are feeling good about their situation but still know there are many more weeks and challenges ahead.
Our Daily Encouragement:
And let the beauty of the Lord our God be upon us, And establish the works of hands for us
Psalm 90:17
It was a quiet day. The girls are 29 weeks gestation today - wow...
Trinity's lungs are more developed than Kinsley's but she needs a little more assistance on the CPAP. She has a rate of 20 with a peak pressure of 9 at 22% oxygen. She did have a handful of A's and B's but she is hanging in there. They also gave both of them a loading dosage of caffeine to help stimulate them.
Kinsley was at 33% oxygen an improvement from last night of 45% with a peak pressure from 9-10 but no rate. She also got caffeine and had her last dosage of antibiotics and anti-fungal medication - yeah. Even though Kinsley is doing OK, she is still needing the secretions to be suctioned a bit. Her chest X-Rays showed some haziness so it may still be a few days before she gets all the fluids out of her lungs.
Parent's Thoughts:
We were able to take a scheduled/much needed night off from the hospital. I hung with some of the boys while Mom was able to catch up on some things that she needed to get done. Even though we had the night off, we talked to our Nurse to see how the girls were doing. It is nice for us to know that we can call whenever we want to check in on the girls (especially if we cannot make it there). We are feeling good about their situation but still know there are many more weeks and challenges ahead.
Our Daily Encouragement:
And let the beauty of the Lord our God be upon us, And establish the works of hands for us
Psalm 90:17
Wednesday April 15th
Babies Situation:
It was a big day with lots to report. The girls are 1 Month Old Today.... (great work little ones).... It was a very big day for both of them. We had more visitors today and this evening, our close friends, Candra, Mike, and Sarah. Mike even got to see some of the changes made to Trinity real-time.
Since the girls were doing so well this week with their blood work results, our Doctors decided to remove them from their ventilators. They had been on them for over 2 weeks now and our Doctors thought it was the right time to make the move. They were put back on CPAP to assist their lungs/respiration. As their lungs continue to strengthen, the Doctors will reduce the amount of oxygen and pressure the machine provides to them. The goal is 21% on CPAP or room air with no rate and the least amount of pressure. We pray their lungs and breathing will continue to improve and they handle the transition to CPAP well.
Crystal and Andrea, their Nurses, had them today and tonight. Kinsley hit a big milestone herself today weighing 2 lbs. Trinity came in at 2lbs 5oz (another big gain for her). Trinity also had some big news. She is no longer on antibiotics as her latest cultures did not show signs of infection. Because of this, she had her IV line taken out. Hopefully, she will not need one the rest of the way. Trinity also had her central arterial line (catheter from her foot to just below her heart) removed this evening. The Doctors believe that Kinsley's infection is gone, but she is still on antibiotics for now until they are 100% sure.
We also met Connor, the proud father of Aiden, who was born on April 9th. Aiden is also a 24 weeker here in the NICU so he also needs all of your prayers. Congratulations to Connor and Megan (we hope to meet her soon as well).
Parent's Thoughts:
We owe a huge praise for all this good news. What a day. We were not expecting the girls to come off of the ventilators this quickly. On one hand this was great news for us but at the same time some anxiety kicked in about how the girls will do on CPAP. The weight gain and removal of the lines were also very positive signs. They are making very good progress this week. We just need them to continue to improve their breathing.
Our Daily Encouragement:
For I have satiated the weary soul, and I have replenished every sorrowful soul.
Jeremiah 31:25
It was a big day with lots to report. The girls are 1 Month Old Today.... (great work little ones).... It was a very big day for both of them. We had more visitors today and this evening, our close friends, Candra, Mike, and Sarah. Mike even got to see some of the changes made to Trinity real-time.
Since the girls were doing so well this week with their blood work results, our Doctors decided to remove them from their ventilators. They had been on them for over 2 weeks now and our Doctors thought it was the right time to make the move. They were put back on CPAP to assist their lungs/respiration. As their lungs continue to strengthen, the Doctors will reduce the amount of oxygen and pressure the machine provides to them. The goal is 21% on CPAP or room air with no rate and the least amount of pressure. We pray their lungs and breathing will continue to improve and they handle the transition to CPAP well.
Crystal and Andrea, their Nurses, had them today and tonight. Kinsley hit a big milestone herself today weighing 2 lbs. Trinity came in at 2lbs 5oz (another big gain for her). Trinity also had some big news. She is no longer on antibiotics as her latest cultures did not show signs of infection. Because of this, she had her IV line taken out. Hopefully, she will not need one the rest of the way. Trinity also had her central arterial line (catheter from her foot to just below her heart) removed this evening. The Doctors believe that Kinsley's infection is gone, but she is still on antibiotics for now until they are 100% sure.
We also met Connor, the proud father of Aiden, who was born on April 9th. Aiden is also a 24 weeker here in the NICU so he also needs all of your prayers. Congratulations to Connor and Megan (we hope to meet her soon as well).
Parent's Thoughts:
We owe a huge praise for all this good news. What a day. We were not expecting the girls to come off of the ventilators this quickly. On one hand this was great news for us but at the same time some anxiety kicked in about how the girls will do on CPAP. The weight gain and removal of the lines were also very positive signs. They are making very good progress this week. We just need them to continue to improve their breathing.
Our Daily Encouragement:
For I have satiated the weary soul, and I have replenished every sorrowful soul.
Jeremiah 31:25
Tuesday April 14th
Babies Situation:
It was another exciting day. The girls had another visitor today, our close friend Tami, who is also a part of our Church Group. It was great to have her meet the little ones.
Mom gave both the girls a soap and water cloth bath tonight - inside their incubators (just slowly rubbing their bodies). I video taped it so it was fun for me too. Mom got to hold both of them up in the air for a couple of minutes while Andrea, their evening Nurse, changed out their bed warmers and linens. Trinity and Kinsley had their eyes open the whole time (see pictures).
Trinity loved her bath but Kinsley took it a little harder and even looked as if she was crying a little bit. Since they are still intubated (on ventilators), we cannot hear any of their sounds. Trinity weighs 2 lbs 3 ounces while Kinsley was still at 1 lb 14 ounces. I guess Kinsley was paying attention to her older sister as she extubated herself today as well. The drill Team was in full force getting her back on the ventilator with more X-Rays and adjustments.
They are still getting their medication for their lungs. To help with the secretion/fluid build up in the lungs they also received chest physiotherapy (CPT). Essentially, it was a small rotating foam cushioned circular oscillator (looks like a floor buffer). Their Respiratory Therapist, tonight it was Richard, slowly moved it around on their backs for about 5 mins. This allows our Nurses to suction out the fluid as necessary to help them breath easier.
Parent's Thoughts:
It was another good day for both the girls and the parents. 2 in row how amazing. We are on a little streak and hope the girls can keep it up. It was so much fun to interact with the girls a bit tonight. Seeing them react to the bath was simply amazing. It felt for a moment that we were and could participate in the process. However, we do not want to get too excited as we do know there could be some challenging times still. We will take it though be very thankful for a couple of consecutive good days. All of your prayers and thoughts out there are working... thank you, thank you, thank you and please keep it up.
Our Daily Encouragement:
Give thanks to the Lord, for he is good. His love endures forever.
Psalm 136:1
It was another exciting day. The girls had another visitor today, our close friend Tami, who is also a part of our Church Group. It was great to have her meet the little ones.
Mom gave both the girls a soap and water cloth bath tonight - inside their incubators (just slowly rubbing their bodies). I video taped it so it was fun for me too. Mom got to hold both of them up in the air for a couple of minutes while Andrea, their evening Nurse, changed out their bed warmers and linens. Trinity and Kinsley had their eyes open the whole time (see pictures).
Trinity loved her bath but Kinsley took it a little harder and even looked as if she was crying a little bit. Since they are still intubated (on ventilators), we cannot hear any of their sounds. Trinity weighs 2 lbs 3 ounces while Kinsley was still at 1 lb 14 ounces. I guess Kinsley was paying attention to her older sister as she extubated herself today as well. The drill Team was in full force getting her back on the ventilator with more X-Rays and adjustments.
They are still getting their medication for their lungs. To help with the secretion/fluid build up in the lungs they also received chest physiotherapy (CPT). Essentially, it was a small rotating foam cushioned circular oscillator (looks like a floor buffer). Their Respiratory Therapist, tonight it was Richard, slowly moved it around on their backs for about 5 mins. This allows our Nurses to suction out the fluid as necessary to help them breath easier.
Parent's Thoughts:
It was another good day for both the girls and the parents. 2 in row how amazing. We are on a little streak and hope the girls can keep it up. It was so much fun to interact with the girls a bit tonight. Seeing them react to the bath was simply amazing. It felt for a moment that we were and could participate in the process. However, we do not want to get too excited as we do know there could be some challenging times still. We will take it though be very thankful for a couple of consecutive good days. All of your prayers and thoughts out there are working... thank you, thank you, thank you and please keep it up.
Our Daily Encouragement:
Give thanks to the Lord, for he is good. His love endures forever.
Psalm 136:1
Monday April 13th
Babies Situation:
We had the privilege of introducing the girls to our close friends, Rob, Jason, Kristina, and Marci this evening. The NICU allows Mom or Dad to bring in 1 visitor at a time so they all had to take turns. The girls can't wait to play the Wii with all of them soon.
Overall the girls seem to be coming around on their breathing. This is a good sign as the medication may be resolving their infections. They have had seldom A's and B's today. Our Doctor decreased Kinsley's rate to 30 (this is good). As usual, the Doctors have been taking blood to monitor the oxygen levels. They make adjustments from the results - changing the vent settings, giving more or less medication, sodium, caffeine, etc... They seem to be getting very good blood gas results back. Trinity's feedings also increased to 6.4 cc's continuously.
Pam, one of their primary Nurses, was with the girls this morning and Sally again this evening. I believe Sally is one of their evening primary Nurses. It is amazing to us both how many great Nurses we have encountered over the past month. Some have had the girls for a shift while others we see very often and have them on a regular basis. Either way the all stop by to see how they are doing and check in on us all.
Unfortunately Sally and Mom again had to deal with Trinity's free release this evening. We all know Trinity's pooping potential and she decided to let it all go again. I guess this falls into the hard to stop but hope to contain bucket. Trinity took advantage of the small opening when Mom and Sally were not quite ready. After it was all said and done, Mom got to hold Trinity up in the air so that the linens in her incubator could be changed.
Parent's Thoughts:
It is a new beginning, a new week. We are very thankful that the week has started so nicely. It was great to have our friends there to say hello. An interesting theme has popped up over the past number of days. Can we see that the girls features are identical? As parents we talk about it almost everyday. It is still a little hard to tell that they are identical since they are growing at different rates and are still so small but we know they are. This has added an interesting element to our visits as we walk back and forth. Do you know which one is Trinity and which one is Kinsley from some of the recent pictures?
Our Daily Encouragement:
As far as the heavens are above the earth, so great is his love for those who fear him; as far as the east is from the west, so far has he removed our transgressions from us.
Psalm 103:11-12
We had the privilege of introducing the girls to our close friends, Rob, Jason, Kristina, and Marci this evening. The NICU allows Mom or Dad to bring in 1 visitor at a time so they all had to take turns. The girls can't wait to play the Wii with all of them soon.
Overall the girls seem to be coming around on their breathing. This is a good sign as the medication may be resolving their infections. They have had seldom A's and B's today. Our Doctor decreased Kinsley's rate to 30 (this is good). As usual, the Doctors have been taking blood to monitor the oxygen levels. They make adjustments from the results - changing the vent settings, giving more or less medication, sodium, caffeine, etc... They seem to be getting very good blood gas results back. Trinity's feedings also increased to 6.4 cc's continuously.
Pam, one of their primary Nurses, was with the girls this morning and Sally again this evening. I believe Sally is one of their evening primary Nurses. It is amazing to us both how many great Nurses we have encountered over the past month. Some have had the girls for a shift while others we see very often and have them on a regular basis. Either way the all stop by to see how they are doing and check in on us all.
Unfortunately Sally and Mom again had to deal with Trinity's free release this evening. We all know Trinity's pooping potential and she decided to let it all go again. I guess this falls into the hard to stop but hope to contain bucket. Trinity took advantage of the small opening when Mom and Sally were not quite ready. After it was all said and done, Mom got to hold Trinity up in the air so that the linens in her incubator could be changed.
Parent's Thoughts:
It is a new beginning, a new week. We are very thankful that the week has started so nicely. It was great to have our friends there to say hello. An interesting theme has popped up over the past number of days. Can we see that the girls features are identical? As parents we talk about it almost everyday. It is still a little hard to tell that they are identical since they are growing at different rates and are still so small but we know they are. This has added an interesting element to our visits as we walk back and forth. Do you know which one is Trinity and which one is Kinsley from some of the recent pictures?
Our Daily Encouragement:
As far as the heavens are above the earth, so great is his love for those who fear him; as far as the east is from the west, so far has he removed our transgressions from us.
Psalm 103:11-12
Happy Easter!!!
Babies Situation:
THE GIRLS WANT TO WISH YOU ALL A VERY HAPPY EASTER.
A SPECIAL THANKS TO THEIR NURSES CRYSTAL AND SALLY WHO SPENT THEIR EASTER WITH TRINITY AND KINSLEY IN THE NICU.
The girls are very active which is good but can present some difficulties in managing and monitoring them. Overall it seems as if they are slowly getting over their infection but it will still be another week or more before we know the outcomes of the medication.
Trinity weighs 2 lbs 2 oz (1 less than yesterday) while Kinsley came in at 1 lbs 14 ounces. Trinity is on full feeds - taking the maximum amount of milk for their current weight. Trinity is getting 6.1 cc's while Kinsley is still at 5 cc's continuously.
Parent's Thoughts:
It is little difficult for us today since our girls are not at home doing the normal Easter stuff. However, we quickly realize that if they were full term babies this would not be their first Easter. We were very fortunate to give thanks and praise to our Lord this morning with some very close friends at our Church. We also shared a fantastic Easter dinner with both family and friends in the afternoon (watching the Masters of course) and then spent our time with the girls a little later in the day. It was a good Easter overall and much needed for all of us. Hope you all enjoyed yours!
Our Daily Encouragement:
The word of God is living and powerful, and sharper than any two-edged sword, piercing even to the division of the soul and spirit, and of joints and marrow, and is a discerner of the thoughts and intents of the heart.
Hebrew 4:12
THE GIRLS WANT TO WISH YOU ALL A VERY HAPPY EASTER.
A SPECIAL THANKS TO THEIR NURSES CRYSTAL AND SALLY WHO SPENT THEIR EASTER WITH TRINITY AND KINSLEY IN THE NICU.
The girls are very active which is good but can present some difficulties in managing and monitoring them. Overall it seems as if they are slowly getting over their infection but it will still be another week or more before we know the outcomes of the medication.
Trinity weighs 2 lbs 2 oz (1 less than yesterday) while Kinsley came in at 1 lbs 14 ounces. Trinity is on full feeds - taking the maximum amount of milk for their current weight. Trinity is getting 6.1 cc's while Kinsley is still at 5 cc's continuously.
Parent's Thoughts:
It is little difficult for us today since our girls are not at home doing the normal Easter stuff. However, we quickly realize that if they were full term babies this would not be their first Easter. We were very fortunate to give thanks and praise to our Lord this morning with some very close friends at our Church. We also shared a fantastic Easter dinner with both family and friends in the afternoon (watching the Masters of course) and then spent our time with the girls a little later in the day. It was a good Easter overall and much needed for all of us. Hope you all enjoyed yours!
Our Daily Encouragement:
The word of God is living and powerful, and sharper than any two-edged sword, piercing even to the division of the soul and spirit, and of joints and marrow, and is a discerner of the thoughts and intents of the heart.
Hebrew 4:12
Saturday April 11th
Babies Situation:
Trinity came in at a whopping 2 lbs 3 ounces. She also had another infamous poop party this time with her evening Nurse, Sally. She got another bath and really likes them. They are still being suctioned quite a bit but the girls overall had a good breathing day with few Apnea's and Brady's.
Kinsley weighs 1 lb 14 ounces. When Kinsley was given her bath she had some curly hair but they will most likely lose this hair by the time they come home.
Right now their hair is dark but with each day it is starting to lighten up with some loss. They are still fighting the infections but overall a much needed quiet day of good rest for the girls.
Parent's Thoughts:
After a rough week we are able to regroup and get a little peace and comfort. There are a lot of variables/changes that are being made each day and we recognize they are making progress whether it is weaning them off of some of the drugs (Keppra), increasing their feedings, or them just being able to register more breaths on their own without the help of the ventilators. Slow and steady progress is a true blessing. We pray that these infections will be removed from their lungs so they do not struggle as much next week with their breathing.
Our Daily Encouragement:
Praise be to God the Father our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead.
1 Peter 1:3
Trinity came in at a whopping 2 lbs 3 ounces. She also had another infamous poop party this time with her evening Nurse, Sally. She got another bath and really likes them. They are still being suctioned quite a bit but the girls overall had a good breathing day with few Apnea's and Brady's.
Kinsley weighs 1 lb 14 ounces. When Kinsley was given her bath she had some curly hair but they will most likely lose this hair by the time they come home.
Right now their hair is dark but with each day it is starting to lighten up with some loss. They are still fighting the infections but overall a much needed quiet day of good rest for the girls.
Parent's Thoughts:
After a rough week we are able to regroup and get a little peace and comfort. There are a lot of variables/changes that are being made each day and we recognize they are making progress whether it is weaning them off of some of the drugs (Keppra), increasing their feedings, or them just being able to register more breaths on their own without the help of the ventilators. Slow and steady progress is a true blessing. We pray that these infections will be removed from their lungs so they do not struggle as much next week with their breathing.
Our Daily Encouragement:
Praise be to God the Father our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead.
1 Peter 1:3
Good Friday - April 10th
Babies Situation:
Overall it was a good day. In fact it was a good Friday - The Good Friday. The girls are still fighting through their infections. We are all very happy that this week is behind us.
The girls are still being suctioned hourly to help with their breathing. They are still having long apnea's due to the infections. They are also increasing their feedings and have been able to maintain the increase well with no other side issues. Nutrition is key right now. Kinsley came of the TPN/IV today to catch up with her sister.
We are able to see more features on the girls as they continue to grow. The changes are more noticeable as the ounces are put on. An ounce makes a big difference in these early stages.
Parent's Thoughts:
2 Corinthians 9:12
Overall it was a good day. In fact it was a good Friday - The Good Friday. The girls are still fighting through their infections. We are all very happy that this week is behind us.
The girls are still being suctioned hourly to help with their breathing. They are still having long apnea's due to the infections. They are also increasing their feedings and have been able to maintain the increase well with no other side issues. Nutrition is key right now. Kinsley came of the TPN/IV today to catch up with her sister.
We are able to see more features on the girls as they continue to grow. The changes are more noticeable as the ounces are put on. An ounce makes a big difference in these early stages.
Parent's Thoughts:
The girls had another visitor today, our close friend, Sarah. Sarah is also a part of our Church Group. It is nice to share our experience with our friends too. Other close friends came by last week, Tally, Heather, and Maddy but unfortunately they could not come in to see them due to some issues the girls were having at the time.
I read something today that has a significant impact on how we are working through things with the girls and with the NICU situation. We have always tried to follow this below but it is really nice to remember again that it is not our plan that matters. Here it is:
Our lives are not determined by what happens to us - but how we react to what happens. Not by what life brings to us - but by the attitude we bring life.
Our Daily Encouragement:
2 Corinthians 9:12
Thursday April 9th
Babies Situation:
The big news of the day comes when Grammpy, ED, got to meet his new grand daughters for the first time today. He flew in from Boston early in the day and was able to spend time with them in the NICU this afternoon. The girls definitely knew he was there and can't wait to hang with him at home.
Trinity was taken off the TPN/IV today. This is good news as she will be getting all of her nourishment from milk now. We also get good news that her blood culture results on her blood stream came back negative. They are both getting their food through their system well as this could pose problems with the intestine and what not. Trinity's feedings increased to 5.2 cc's continuously. She is getting closer to full feedings which will help her with her growth.
Kinsley is also slowly growing and is now at 1 lb 12 ounces. The Doctors hope to take her off of TPN/IV tomorrow. Great news is that her staph infection is slowly decreasing. She was having trouble breathing and needed more air so her ventilator settings have increased.
They are both still taking antibiotics for the Klebsiella infection and probably will need it for a while (7-10 days). They also monitoring for Staph infection but these same medicines should help. Over the past few days their nurses have had their hands full as they are consistently having to adjust their ventilators to help them with their breathing.
Parent's Thoughts:
It was great to introduce the girls to their grand father. As parents, it certainly is a blessing to have our family around.
It has been a little tough this week as we are working through the ups and downs. We know that the girls just need time. We hope that the medicines will help them get over these infections. Their lungs are good but being so small the infections are causing a setback for them. It is another difficult time to get through as parents as we can only sit back and pray that they are OK and are strong enough to handle everything thrown at them. The ventilators are good in one sense - getting what they need for breathing but also could present other issues down the road. Another day passes and they are still growing.
Our Daily Encouragement:
Give ear to my words, O Lord, consider my sighing. Listen to my cry for help, my King my God, for to you I pray. In the morning, O Lord, you hear my voice; in the morning I lay my requests before you and wait in expectation.
Psalm 5: 1-3
Wednesday April 8th
Babies Situation:
How exciting - the girls are 3 weeks old today. Trinity is back to 2 lbs - awesome work little one. Initial culture results come back - Trinity and Kinsley have Klebsiella. They did a suction of fluid from the throat - called a tracheal aspirate to test for infection. Kinsley also has CON's (this is a staff infection in the lungs - not ideal but treatable). Our Doctor is now ordering cultures more frequently for them - every 2 days or so to keep on top of these infections. They are both getting Fortifier now added to Mom's milk. Trinity is taking 4.5 cc's/hour continuously. Kinsley is taking 3.5 cc's/hour. They got Lasix a cleansing diuretic to help clear out some fluids in the lungs and help them with their breathing. Trinity is only getting 1 blood gas per day now (in Pharma terms they say Q24). Kinsley gets them every 6 hours or Q4. Their blood results seem good so far. However, the infections are causing blockage in their throats and the girls have to get suctioned often (every hour or so). If they don't get suctioned they typically have Apnea's and Brady's. Kinsley now weighs 1 lb 11 ounces and is trying to gain on her sister but still has a little ways to go. Kinsley got another bath (this time by Serena, her Nurse) this evening and Trinity decided to have another poo party but this time Mom, Andrea, her Nurse, and Serena, all partook in the festivities.
Parent's Thoughts:
We owe a huge praise - the girls are 3 weeks old, they have fantastic Nurses and Doctors taking care of them, and have all of you around the country praying for them. We feel very blessed but even with all of these great things, the past couple of days have worn us down a bit. We know things change quickly here so we continue to try to stay on an even keel and just ask for strength, energy, and patience.
Our Daily Encouragement:
And after the wind an earthquake, but the Lord was not in the earthquake; and after the earthquake a fire, but the Lord was not in the fire; and after the fire a still small voice.
1 Kings 19:11-12
How exciting - the girls are 3 weeks old today. Trinity is back to 2 lbs - awesome work little one. Initial culture results come back - Trinity and Kinsley have Klebsiella. They did a suction of fluid from the throat - called a tracheal aspirate to test for infection. Kinsley also has CON's (this is a staff infection in the lungs - not ideal but treatable). Our Doctor is now ordering cultures more frequently for them - every 2 days or so to keep on top of these infections. They are both getting Fortifier now added to Mom's milk. Trinity is taking 4.5 cc's/hour continuously. Kinsley is taking 3.5 cc's/hour. They got Lasix a cleansing diuretic to help clear out some fluids in the lungs and help them with their breathing. Trinity is only getting 1 blood gas per day now (in Pharma terms they say Q24). Kinsley gets them every 6 hours or Q4. Their blood results seem good so far. However, the infections are causing blockage in their throats and the girls have to get suctioned often (every hour or so). If they don't get suctioned they typically have Apnea's and Brady's. Kinsley now weighs 1 lb 11 ounces and is trying to gain on her sister but still has a little ways to go. Kinsley got another bath (this time by Serena, her Nurse) this evening and Trinity decided to have another poo party but this time Mom, Andrea, her Nurse, and Serena, all partook in the festivities.
Parent's Thoughts:
We owe a huge praise - the girls are 3 weeks old, they have fantastic Nurses and Doctors taking care of them, and have all of you around the country praying for them. We feel very blessed but even with all of these great things, the past couple of days have worn us down a bit. We know things change quickly here so we continue to try to stay on an even keel and just ask for strength, energy, and patience.
Our Daily Encouragement:
And after the wind an earthquake, but the Lord was not in the earthquake; and after the earthquake a fire, but the Lord was not in the fire; and after the fire a still small voice.
1 Kings 19:11-12
Tuesday April 7th
Babies Situation:
It has been a really tough day for the girls - lots to report. Unfortunately, they both now have infections.
Trinity's infection is still unknown as it is too early with the results. There may be some fluid build up in the throat and/or the lungs. This is a concern moving forward. Our Doctor decided to give her antibiotics again to fight off the fluid. Like Kinsley, Trinity also had her feeding tube inserted through her stomach and into her intestine. Unfortunately, it was harder for the Doctors to get the tube inserted. In fact it took 4 hours to get it in the right position and Trinity needed to do some of the work on her own. She had another blood culture today, needed another blood transfusion, had to start a new IV, and needed eye drops. Late this evening Trinity decided to play a little game of catch with her nurse, Andrea. I witnessed it - 2 blowouts back to back while in process of a diaper change. It was so impressive that she lost 2 ounce and is now back to 1 lb 14 ounces. She will hopefully be back to 2 lbs soon. She even left a little excess for Mom to clean on her blanket. As we were leaving, Trinity decided to cause us more concern as she went into a cluster of DSAT's (Apnea's and Brady's).
Kinsley wanted out due her sister I guess, She has 2 infections - ecolie and (cons??? still need to verify what this is and how it is spelled). This is not the best of news but it is most likely due to the bacteria of the tubes. It is in the lungs so she is receiving drops through her throat as well as the normal antibiotics. She has had a couple of Apnea's but no clusters like Trinity. Our Doctors are hoping we can get these girls off of the ventilators asap but we are just not there yet.
Parent's Thoughts:
It was hard day for us. Infections are difficult for these little 24 weekers. We pray that the results for Trinity come back OK. If it has gotten into the blood stream they will have to take some additional measures. We should know within the next couple of days. These girls are strong but we hope they can start to register their breathing so they can be removed from the ventilators as this will help them progress and avoid more infections. We realize that this is just a setback and are very thankful that they are now 20 days old.
Our Daily Encouragement:
So then just as you have received Christ Jesus as Lord, continue to live in him, rooted and built up in him, strengthened in the faith as you were taught, and overflowing with thankfulness.
Colossians 2:6-7
It has been a really tough day for the girls - lots to report. Unfortunately, they both now have infections.
Trinity's infection is still unknown as it is too early with the results. There may be some fluid build up in the throat and/or the lungs. This is a concern moving forward. Our Doctor decided to give her antibiotics again to fight off the fluid. Like Kinsley, Trinity also had her feeding tube inserted through her stomach and into her intestine. Unfortunately, it was harder for the Doctors to get the tube inserted. In fact it took 4 hours to get it in the right position and Trinity needed to do some of the work on her own. She had another blood culture today, needed another blood transfusion, had to start a new IV, and needed eye drops. Late this evening Trinity decided to play a little game of catch with her nurse, Andrea. I witnessed it - 2 blowouts back to back while in process of a diaper change. It was so impressive that she lost 2 ounce and is now back to 1 lb 14 ounces. She will hopefully be back to 2 lbs soon. She even left a little excess for Mom to clean on her blanket. As we were leaving, Trinity decided to cause us more concern as she went into a cluster of DSAT's (Apnea's and Brady's).
Kinsley wanted out due her sister I guess, She has 2 infections - ecolie and (cons??? still need to verify what this is and how it is spelled). This is not the best of news but it is most likely due to the bacteria of the tubes. It is in the lungs so she is receiving drops through her throat as well as the normal antibiotics. She has had a couple of Apnea's but no clusters like Trinity. Our Doctors are hoping we can get these girls off of the ventilators asap but we are just not there yet.
Parent's Thoughts:
It was hard day for us. Infections are difficult for these little 24 weekers. We pray that the results for Trinity come back OK. If it has gotten into the blood stream they will have to take some additional measures. We should know within the next couple of days. These girls are strong but we hope they can start to register their breathing so they can be removed from the ventilators as this will help them progress and avoid more infections. We realize that this is just a setback and are very thankful that they are now 20 days old.
Our Daily Encouragement:
So then just as you have received Christ Jesus as Lord, continue to live in him, rooted and built up in him, strengthened in the faith as you were taught, and overflowing with thankfulness.
Colossians 2:6-7
Monday April 6th
Babies Situation:
Trinity hit a really nice milestone today- 2 lbs - a huge unexplained gain in a a matter of hours. Our nurse weighed her 3 times to make sure this was accurate as Trinity only weighed 1 lb 12 ounces on her last weigh in. She has also grown in length from 11.9 inches to 12.2 inches. We are very blessed that she is making slow and steady progress even though she is still working through the ups and downs with her breathing. She has been having some minor issues with her ventilator and our respiratory team even had to switch out ventilators to rule out any concerns about the equipment. Trinity unfortunately has had a couple of major DSAT's today but it is mostly when they are moving her around and doing their assessments.
Our Doctor will be weaning both Trinity and Kinsley off of the Keppra medication by the end of this week. We pray that their central nervous systems have developed enough where we do not see any more of the rhythmic movements that caused them to be put on this medication.
Kinsley got a bath late last night. She also gained an ounce which is great. She now weighs 1 lb 10 ounces. The goal right now is to gain at least an ounce a day. However she is longer than Trinity now at 12.6 inches. Mom got to witness one of her X-Ray's today. She was asked to step back so she couldn't see all of it. The X-Ray was ordered to make sure her feeding tube was in the proper place. The placement of any of these tubes (feeding, ventilator, etc...) are very, very, important. They take X-Ray's to ensure they are in the right place and then move the tube if necessary based on the results. Since these 2 little nuggets are so active, they sometimes move the tubes on their own which could pose problems.
These tubes can also build up bacteria so they are constantly monitoring any signs of infection. There are multiple tests and even cultures that monitor this situation. They are being very pro-active about infections which is really really nice. We are very appreciative of all of their efforts in the NICU - Doctors and Nurses alike.
Parent's Thoughts:
We have hit 19 days now and the girls are fighting through it. We are a little concerned that they are still having difficulties with their breathing but know that this is typical for babies at this stage. There are always risks when they bounce between room air and ventilators so we pray that the settings and tubes are all acting appropriately and the girls are comfortable but also not too comfortable. We need them to register that they need to continue breathing. We have a long way to go but are very grateful that they are doing OK overall.
Our Daily Encouragement:
Let all the people of Jerusalem shout his praise with joy. For great and mighty is the Holy One.
Isaiah 12:6
Trinity hit a really nice milestone today- 2 lbs - a huge unexplained gain in a a matter of hours. Our nurse weighed her 3 times to make sure this was accurate as Trinity only weighed 1 lb 12 ounces on her last weigh in. She has also grown in length from 11.9 inches to 12.2 inches. We are very blessed that she is making slow and steady progress even though she is still working through the ups and downs with her breathing. She has been having some minor issues with her ventilator and our respiratory team even had to switch out ventilators to rule out any concerns about the equipment. Trinity unfortunately has had a couple of major DSAT's today but it is mostly when they are moving her around and doing their assessments.
Our Doctor will be weaning both Trinity and Kinsley off of the Keppra medication by the end of this week. We pray that their central nervous systems have developed enough where we do not see any more of the rhythmic movements that caused them to be put on this medication.
Kinsley got a bath late last night. She also gained an ounce which is great. She now weighs 1 lb 10 ounces. The goal right now is to gain at least an ounce a day. However she is longer than Trinity now at 12.6 inches. Mom got to witness one of her X-Ray's today. She was asked to step back so she couldn't see all of it. The X-Ray was ordered to make sure her feeding tube was in the proper place. The placement of any of these tubes (feeding, ventilator, etc...) are very, very, important. They take X-Ray's to ensure they are in the right place and then move the tube if necessary based on the results. Since these 2 little nuggets are so active, they sometimes move the tubes on their own which could pose problems.
These tubes can also build up bacteria so they are constantly monitoring any signs of infection. There are multiple tests and even cultures that monitor this situation. They are being very pro-active about infections which is really really nice. We are very appreciative of all of their efforts in the NICU - Doctors and Nurses alike.
Parent's Thoughts:
We have hit 19 days now and the girls are fighting through it. We are a little concerned that they are still having difficulties with their breathing but know that this is typical for babies at this stage. There are always risks when they bounce between room air and ventilators so we pray that the settings and tubes are all acting appropriately and the girls are comfortable but also not too comfortable. We need them to register that they need to continue breathing. We have a long way to go but are very grateful that they are doing OK overall.
Our Daily Encouragement:
Let all the people of Jerusalem shout his praise with joy. For great and mighty is the Holy One.
Isaiah 12:6
Sunday April 5th
Babies Situation:
The day started out rough. Being Sunday, we realize this is a day of rest and apparently so does Kinsley. I guess she was a little jealous of her big sister as she has been put back on the ventilator, been given antibiotics in case of infection, and had a blood transfusion this morning. Her blood gas is taken every 6 hours for now so that they can regulate the respiratory settings. Kinsley tried the fortifier (protein supplement) but it did not work for her very well. She is now being fed 2.5 cc's every hour on a continuous drip through her stomach into the top of her of her intestine. She is back on TPN/IV until she regains her strength. She now weighs 1 lb 9 ounces. Being on the ventilator should help her gain more weight as she should not have to work as hard. Dad also got to change her diaper today for the first time.
Trinity seems to be doink OK. She may be coming off the ventilator soon but she seems to still be riding the ventilator a bit - not working through all her breaths. Mom changed her diaper. Trinity is still very active. They started some eye drops as they are trying to prevent infection. Mom fed Trinity for the first time as well (put milk in her tube) - she is now getting 11 cc's. Trinity gets another little wipe bath tonight.
Parent's Thoughts:
We are thankful that they both have made it through another day. They girls look comfortable which makes it a bit easier on us as parents. It is not ideal that they are on ventilators but it could be much worse. It did help that we were able to attend on church service this morning to help us remember that God does have a perfect plan.
Our Daily Encouragement:
Come to me and I will give you rest - all of you who work so hard beneath a heavy yoke. Wear my yoke - for it fits perfectly - and let me teach you; for I am gentle and humble, and you shall find rest for your souls.
Matthew 11:28-29
The day started out rough. Being Sunday, we realize this is a day of rest and apparently so does Kinsley. I guess she was a little jealous of her big sister as she has been put back on the ventilator, been given antibiotics in case of infection, and had a blood transfusion this morning. Her blood gas is taken every 6 hours for now so that they can regulate the respiratory settings. Kinsley tried the fortifier (protein supplement) but it did not work for her very well. She is now being fed 2.5 cc's every hour on a continuous drip through her stomach into the top of her of her intestine. She is back on TPN/IV until she regains her strength. She now weighs 1 lb 9 ounces. Being on the ventilator should help her gain more weight as she should not have to work as hard. Dad also got to change her diaper today for the first time.
Trinity seems to be doink OK. She may be coming off the ventilator soon but she seems to still be riding the ventilator a bit - not working through all her breaths. Mom changed her diaper. Trinity is still very active. They started some eye drops as they are trying to prevent infection. Mom fed Trinity for the first time as well (put milk in her tube) - she is now getting 11 cc's. Trinity gets another little wipe bath tonight.
Parent's Thoughts:
We are thankful that they both have made it through another day. They girls look comfortable which makes it a bit easier on us as parents. It is not ideal that they are on ventilators but it could be much worse. It did help that we were able to attend on church service this morning to help us remember that God does have a perfect plan.
Our Daily Encouragement:
Come to me and I will give you rest - all of you who work so hard beneath a heavy yoke. Wear my yoke - for it fits perfectly - and let me teach you; for I am gentle and humble, and you shall find rest for your souls.
Matthew 11:28-29
New Pictures
Mom and Kinsley together for the First Time
Mom, Dad, and Kinsley together for the First Time
Mom, Grammy, and Kinsley together for the First Time
Mom, Dad, and Kinsley together for the First Time
Mom, Grammy, and Kinsley together for the First Time
Saturday April 4th
Babies Situation:
It was another good day. Dad was able to feed Trinity her 7 cc's today - not much to it but it was still a great feeling. She had a wide gap in her weight from morning to night - 1 lb 9 ounces to 1 lb 12 ounces this evening (not sure why there was such a big swing). Her rate has been OK while having fewer A's and B's today. Her tracheal culture came back negative. She is still a little bit behind Kinsley as she is still on the ventilator but she still weighs more. Hopefully, she can get off it soon and not have to go back on it.
Other good news - it seems as if both of them will be coming off of their IV's soon. Instead they will be supplementing their TPN/IV with Fortifier. It is a Human Milk Protein Powder that they will mix with Momma's milk before each feeding.
Mom was able to hold Kinsley again today. They both did well but we learned that rocking her could cause some dizziness to Kinsley since she is so small. Kinsley gained an ounce and now weighs 1 lb 8 ounces. She has had some clusters of A's and B's - for those who have not read previous posts A = Apnea (breathing stops) and B = Bradys (heart rate drops below 80 per minute) over the course of the day. We also got great news that her 2nd spinal tap (culture) has come back negative.
Parent's Thoughts:
It was another good day. Both the girls looked good. They are gaining weight and overcoming some of their daily challenges. I can't begin to tell how much of a difference even an ounce can make. As of now, we need to get them to full feeds and reduce the amount of A's and B's. We know it will come in time so we need to continue to be patient and know that they are making slow progress. It is very exciting as parents to be able to partake in some of the process - holding Kinsley (hopefully Trinity soon), taking temps, changing their tiny diapers, feeding them even if it is through their tubes.
Our Daily Encouragement:
We wait in hope for the Lord; he is our shield. In him our hearts rejoice, for we trust in his holy name. May you unfailing love rest upon us, O Lord, even as we put our hope in you.
Psalm 33:20-22
It was another good day. Dad was able to feed Trinity her 7 cc's today - not much to it but it was still a great feeling. She had a wide gap in her weight from morning to night - 1 lb 9 ounces to 1 lb 12 ounces this evening (not sure why there was such a big swing). Her rate has been OK while having fewer A's and B's today. Her tracheal culture came back negative. She is still a little bit behind Kinsley as she is still on the ventilator but she still weighs more. Hopefully, she can get off it soon and not have to go back on it.
Other good news - it seems as if both of them will be coming off of their IV's soon. Instead they will be supplementing their TPN/IV with Fortifier. It is a Human Milk Protein Powder that they will mix with Momma's milk before each feeding.
Mom was able to hold Kinsley again today. They both did well but we learned that rocking her could cause some dizziness to Kinsley since she is so small. Kinsley gained an ounce and now weighs 1 lb 8 ounces. She has had some clusters of A's and B's - for those who have not read previous posts A = Apnea (breathing stops) and B = Bradys (heart rate drops below 80 per minute) over the course of the day. We also got great news that her 2nd spinal tap (culture) has come back negative.
Parent's Thoughts:
It was another good day. Both the girls looked good. They are gaining weight and overcoming some of their daily challenges. I can't begin to tell how much of a difference even an ounce can make. As of now, we need to get them to full feeds and reduce the amount of A's and B's. We know it will come in time so we need to continue to be patient and know that they are making slow progress. It is very exciting as parents to be able to partake in some of the process - holding Kinsley (hopefully Trinity soon), taking temps, changing their tiny diapers, feeding them even if it is through their tubes.
Our Daily Encouragement:
We wait in hope for the Lord; he is our shield. In him our hearts rejoice, for we trust in his holy name. May you unfailing love rest upon us, O Lord, even as we put our hope in you.
Psalm 33:20-22
Friday April 3rd
Babies Situation:
Trinity seems to be doing OK after all the fireworks yesterday. She is now known around the NICU for her recent antics of figuring out how to get off of her ventilator. She is an active little one even though she is hooked up to all the lines and tubes. Her feeds increase to 7 cc's but she weighs 1 lb 10 ounces.
The biggest news yet comes when we are told Mom can hold Kinsley for first time. This was completely unplanned as our Doctor informed Trena this morning about the opportunity. It is an amazing situation on how they lift her out of the incubator and prepare her for Kangaroo care. It is a huge step to have the skin to skin contact. Kinsley and Mom enjoyed every minute they could. There was a limit of about 15 mins for the first hold. During the entire hold, Kinsley was still being monitored for her heart and respiratory rates. Kinsley and Mom did great. Her feeds also increased to 8 cc's but she has not showed much weight gain. She still weighs 1 lb 7 ounces (the same as the past few days). More good news comes as we find out there are still no signs of infection for Kinsley from her 2nd spinal.
Parent's Thoughts:
After such a rough day yesterday, we had one of our most rewarding days yet as parents. Mom getting to hold Kinsley was absolutely precious. It was a little scary but such an emotional and beautiful moment.
We were also very fortunate to have our Downtown Pastor, Chad Zunker, of Lake Hills Church, swing by the hospital to pray for the girls and with us. It meant so much to us for him to be there. Another day of being blessed. God is good!!
Our Daily Encouragement:
You have made known to me the path of life: you will fill me with joy in your presence, with eternal pleasures at your right hand.
Psalm 16:11
Trinity seems to be doing OK after all the fireworks yesterday. She is now known around the NICU for her recent antics of figuring out how to get off of her ventilator. She is an active little one even though she is hooked up to all the lines and tubes. Her feeds increase to 7 cc's but she weighs 1 lb 10 ounces.
The biggest news yet comes when we are told Mom can hold Kinsley for first time. This was completely unplanned as our Doctor informed Trena this morning about the opportunity. It is an amazing situation on how they lift her out of the incubator and prepare her for Kangaroo care. It is a huge step to have the skin to skin contact. Kinsley and Mom enjoyed every minute they could. There was a limit of about 15 mins for the first hold. During the entire hold, Kinsley was still being monitored for her heart and respiratory rates. Kinsley and Mom did great. Her feeds also increased to 8 cc's but she has not showed much weight gain. She still weighs 1 lb 7 ounces (the same as the past few days). More good news comes as we find out there are still no signs of infection for Kinsley from her 2nd spinal.
Parent's Thoughts:
After such a rough day yesterday, we had one of our most rewarding days yet as parents. Mom getting to hold Kinsley was absolutely precious. It was a little scary but such an emotional and beautiful moment.
We were also very fortunate to have our Downtown Pastor, Chad Zunker, of Lake Hills Church, swing by the hospital to pray for the girls and with us. It meant so much to us for him to be there. Another day of being blessed. God is good!!
Our Daily Encouragement:
You have made known to me the path of life: you will fill me with joy in your presence, with eternal pleasures at your right hand.
Psalm 16:11
Thursday April 2nd
Babies Situation:
Today has been a challenge for Trinity to say the least. Trinity somehow figured out a way to extubate herself. Essentially, she pulled the ventilator out by her head movements. Our Nurses and Doctors worked fast to get her intubated again (back on the ventilator). However, her breathing and oxygen levels dropped significantly during her down time causing many A's and B's. Her incubator also failed very early in the morning. She had to be quickly moved into a new one. Her arterial line has also been taken out as it no longer was working. With it coming out she will no longer be taking antibiotics. Hopefully she will not need them again as they will have to start a new line.
Kinsley on the other hand watched all the excitement from her own incubator. She is still taking her antibiotics for her infection but there isn't a whole more to report on her. Her feeds have increased to 6 cc's but she still weighs the same.
Parent's Thoughts:
It was a stressful day with lots of questions about what had happened to Trinity. We are very thankful that Trinity received such great, immediate care and pray that God took care of her during the time she needed it most. As parents, it was terrifying to hear of this situation occurring to one of our precious babies. Later in the evening, we continue to pray that God gives the knowledge and direction to our doctors and nurses to ensure our little babies and others in the NICU receive the best care possible. We also ask for strength and peace as parents sitting on the sidelines. It is difficult to deal with these situations when they occur and we need to understand that it is still a process where these things can happen.
Our Daily Encouragement:
If you have faith as small as a mustard seed, you can say to this mountain, "Move from here to there" and it will move. Nothing will be impossible for you.
Matthew 17:20
Today has been a challenge for Trinity to say the least. Trinity somehow figured out a way to extubate herself. Essentially, she pulled the ventilator out by her head movements. Our Nurses and Doctors worked fast to get her intubated again (back on the ventilator). However, her breathing and oxygen levels dropped significantly during her down time causing many A's and B's. Her incubator also failed very early in the morning. She had to be quickly moved into a new one. Her arterial line has also been taken out as it no longer was working. With it coming out she will no longer be taking antibiotics. Hopefully she will not need them again as they will have to start a new line.
Kinsley on the other hand watched all the excitement from her own incubator. She is still taking her antibiotics for her infection but there isn't a whole more to report on her. Her feeds have increased to 6 cc's but she still weighs the same.
Parent's Thoughts:
It was a stressful day with lots of questions about what had happened to Trinity. We are very thankful that Trinity received such great, immediate care and pray that God took care of her during the time she needed it most. As parents, it was terrifying to hear of this situation occurring to one of our precious babies. Later in the evening, we continue to pray that God gives the knowledge and direction to our doctors and nurses to ensure our little babies and others in the NICU receive the best care possible. We also ask for strength and peace as parents sitting on the sidelines. It is difficult to deal with these situations when they occur and we need to understand that it is still a process where these things can happen.
Our Daily Encouragement:
If you have faith as small as a mustard seed, you can say to this mountain, "Move from here to there" and it will move. Nothing will be impossible for you.
Matthew 17:20
Wednesday April 1st
Babies Situation:
The girls have hit a nice milestone - 2 weeks from birth today. The girls decided (actually parents) to have cookies (Tiff's Treats) sent to all of the hardworking, caring, Nurses in the NICU. They have had more than 20 Nurses taking care of them over their first 2 weeks. Mom got to change Trinity's diaper again. Trinity is growing steadily and now weighs 1 lb 11 ounces. She doesn't have to work as hard as Kinsley since she is on the ventilator and seems to be gaining weight quicker. Kinsley had her 2nd spinal tap as they saw some signs of infection on the 3rd. day of the original test. Our Doctor believes it is a staff infection that is related to her skin. This isn't great news but it could be worse so we are very thankful. The Doctors monitor the results of the test on a day to day basis. The earlier the signs of infection the worse it could be for her. The Doctors keep her on antibiotics in case there is some type of contaminant again.
Parent's Thoughts:
Tonight was another good night for us (the Parents) as in between hospital visits, we were able to have dinner with the Reid's, discuss our situations, and get to know them better. Please continue to pray for them and their babies, Jenna and Blake. They have been in the NICU since Jan. 15th. but hopefully will be able to go home soon. We feel very blessed to have them in our lives now as they guide us through this process. We also know that many of you out there are supporting us from afar. You all mean so much to us and we just want to thank you for the continued support.
Our Daily Encouragement:
For God is the King of all earth: sing ye praises with understanding.
Psalm 47:7
The girls have hit a nice milestone - 2 weeks from birth today. The girls decided (actually parents) to have cookies (Tiff's Treats) sent to all of the hardworking, caring, Nurses in the NICU. They have had more than 20 Nurses taking care of them over their first 2 weeks. Mom got to change Trinity's diaper again. Trinity is growing steadily and now weighs 1 lb 11 ounces. She doesn't have to work as hard as Kinsley since she is on the ventilator and seems to be gaining weight quicker. Kinsley had her 2nd spinal tap as they saw some signs of infection on the 3rd. day of the original test. Our Doctor believes it is a staff infection that is related to her skin. This isn't great news but it could be worse so we are very thankful. The Doctors monitor the results of the test on a day to day basis. The earlier the signs of infection the worse it could be for her. The Doctors keep her on antibiotics in case there is some type of contaminant again.
Parent's Thoughts:
Tonight was another good night for us (the Parents) as in between hospital visits, we were able to have dinner with the Reid's, discuss our situations, and get to know them better. Please continue to pray for them and their babies, Jenna and Blake. They have been in the NICU since Jan. 15th. but hopefully will be able to go home soon. We feel very blessed to have them in our lives now as they guide us through this process. We also know that many of you out there are supporting us from afar. You all mean so much to us and we just want to thank you for the continued support.
Our Daily Encouragement:
For God is the King of all earth: sing ye praises with understanding.
Psalm 47:7
Tuesday March 31st
Babies Situation:
After just one day, Trinity has to go back on the ventilator which is a slight set back. She decided on her own plan and not the Doctors. She was just not doing well with her breathing and had many clusters of A's and B's. Early results on her spinal do not show signs of any infection. She is still taking Keppra but the amount has been reduced. She has also been put back on caffeine. Her feeds increased to 4 cc's every 3 hours and she now weighs 1 lb 10 ounces.
Kinsley is having another good day. She is still on CPAP as she is handling her breathing better than Trinity. Her feeding has gone up to 5 cc's every 3 hours. and this little munchkin now weighs 1 lb 7 ounces. She is also on Keppra and put back on caffeine.
Parent's Thoughts:
We are very grateful for today/tonight as we were able to celebrate Trinity and Kinsley's birth with our Church Group. Usually, we join them on a weekly basis for Bible study but due to to the circumstances we have not been able to see them. It was a much needed reunion as they all mean so much to us.
Our Daily Encouragement:
Our Father in heaven, Hallowed be Your name. Your kingdom come. Your will be done On earth as it is in heaven. Give us this day our daily bread.
Matthew 6:9-11
After just one day, Trinity has to go back on the ventilator which is a slight set back. She decided on her own plan and not the Doctors. She was just not doing well with her breathing and had many clusters of A's and B's. Early results on her spinal do not show signs of any infection. She is still taking Keppra but the amount has been reduced. She has also been put back on caffeine. Her feeds increased to 4 cc's every 3 hours and she now weighs 1 lb 10 ounces.
Kinsley is having another good day. She is still on CPAP as she is handling her breathing better than Trinity. Her feeding has gone up to 5 cc's every 3 hours. and this little munchkin now weighs 1 lb 7 ounces. She is also on Keppra and put back on caffeine.
Parent's Thoughts:
We are very grateful for today/tonight as we were able to celebrate Trinity and Kinsley's birth with our Church Group. Usually, we join them on a weekly basis for Bible study but due to to the circumstances we have not been able to see them. It was a much needed reunion as they all mean so much to us.
Our Daily Encouragement:
Our Father in heaven, Hallowed be Your name. Your kingdom come. Your will be done On earth as it is in heaven. Give us this day our daily bread.
Matthew 6:9-11
Monday March 30th
Babies Situation:
The big challenge for the girls today was a spinal tap also referred to as lumbar puncture. Since our Doctors have not been able to figure out what is causing the seizures they want to rule out as much as they can including meningitis. The spinal tap helps them pull fluid. It is similar to a culture as this is sent off to the Lab and they will watch it for the next few days. They start up the antibiotics as well in case there is some type of infection. They no longer need the Bililight so the jaundice should no longer be a concern.
The great new to report today - Trinity's ventricular hemorrhage has resolved itself based on her most recent ultrasound. Trinity weighs in at 1 lb 9 ounces so she has gained a couple of ounces since her last weigh in. It is interesting how they weigh them. In each incubator there is a scale under the bed. Trinity also was doing pretty well with her breathing so she was taken off her ventilator.
Kinsley weighs 1 lb 5ounces and she is now starting back on caffeine. She has an increased rate for breathing but she is not on the ventilator. Kinsley is also increasing her feeds to 3 cc's every 3 hours.
Parent's Thoughts:
Prayers are being answered on Trinity's lingering brain hemorrhage as it seems to be resolving itself again. However, when Trena and I arrive in the NICU, our Doctor was giving Trinity her the spinal tap (shot to extract fluid from her spine). It is a bit of a surprise for us as we thought something was wrong. We are about 20 feet from the girls when we enter our Bay (where the girls are located in the NICU so all we could see is our Doctor in scrubs doing his job - slight shock but he just asked that we come back in 10 mins. Again it is a wait and see situation for the next few days. However, we are happy and thankful that our doctors are being as proactive about dealing with the potential of the infections.
Our Daily Encouragement:
I will not forget you. See, I have inscribed you on the palms of my hands.
Isaiah 49: 15-16
The big challenge for the girls today was a spinal tap also referred to as lumbar puncture. Since our Doctors have not been able to figure out what is causing the seizures they want to rule out as much as they can including meningitis. The spinal tap helps them pull fluid. It is similar to a culture as this is sent off to the Lab and they will watch it for the next few days. They start up the antibiotics as well in case there is some type of infection. They no longer need the Bililight so the jaundice should no longer be a concern.
The great new to report today - Trinity's ventricular hemorrhage has resolved itself based on her most recent ultrasound. Trinity weighs in at 1 lb 9 ounces so she has gained a couple of ounces since her last weigh in. It is interesting how they weigh them. In each incubator there is a scale under the bed. Trinity also was doing pretty well with her breathing so she was taken off her ventilator.
Kinsley weighs 1 lb 5ounces and she is now starting back on caffeine. She has an increased rate for breathing but she is not on the ventilator. Kinsley is also increasing her feeds to 3 cc's every 3 hours.
Parent's Thoughts:
Prayers are being answered on Trinity's lingering brain hemorrhage as it seems to be resolving itself again. However, when Trena and I arrive in the NICU, our Doctor was giving Trinity her the spinal tap (shot to extract fluid from her spine). It is a bit of a surprise for us as we thought something was wrong. We are about 20 feet from the girls when we enter our Bay (where the girls are located in the NICU so all we could see is our Doctor in scrubs doing his job - slight shock but he just asked that we come back in 10 mins. Again it is a wait and see situation for the next few days. However, we are happy and thankful that our doctors are being as proactive about dealing with the potential of the infections.
Our Daily Encouragement:
I will not forget you. See, I have inscribed you on the palms of my hands.
Isaiah 49: 15-16
Sunday March 29th
Babies Situation:
Early Sunday morning (AM) Trinity began having considerable A's and B's. Unfortunately, our Doctor thinks it is best for her to be put back on a ventilator. This time it is a bit different as she needs just a little help. She is put on a different type of ventilator that will be set at a very low level but will still allow her to rest and deliver pressurized breaths of oxygen at regular timed intervals.
Kinsley is doing well with her breathing and is on room air but still does continue to have some sporadic A's and B's. Their blood levels seem to be stabilizing but they are still having the seizure like movements. Both of them are given Keppra, a medication to help.
Parent's Thoughts:
It was nice for us to able to spend an afternoon with our daughters. They looked comfortable today which was nice for a change. The buzzers still catch our attention but we now understand when we should/should not be concerned. We also had some family come in for dinner which was great but Grandma went back to Ohio for a well deserved break. Overall it was another good day even though we had the small set-back.
Our Daily Encouragement:
Yours is the day, yours also the night; you established the luminaries and the sun. You have fixed all the bounds of the earth; you made summer and winter.
Psalm 74: 16-17
Early Sunday morning (AM) Trinity began having considerable A's and B's. Unfortunately, our Doctor thinks it is best for her to be put back on a ventilator. This time it is a bit different as she needs just a little help. She is put on a different type of ventilator that will be set at a very low level but will still allow her to rest and deliver pressurized breaths of oxygen at regular timed intervals.
Kinsley is doing well with her breathing and is on room air but still does continue to have some sporadic A's and B's. Their blood levels seem to be stabilizing but they are still having the seizure like movements. Both of them are given Keppra, a medication to help.
Parent's Thoughts:
It was nice for us to able to spend an afternoon with our daughters. They looked comfortable today which was nice for a change. The buzzers still catch our attention but we now understand when we should/should not be concerned. We also had some family come in for dinner which was great but Grandma went back to Ohio for a well deserved break. Overall it was another good day even though we had the small set-back.
Our Daily Encouragement:
Yours is the day, yours also the night; you established the luminaries and the sun. You have fixed all the bounds of the earth; you made summer and winter.
Psalm 74: 16-17
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