March for Babies - Huge Success!

Family and Friends,

The March of Dimes was a huge success. Thanks to all of your support, we collectively raised more than $2,500 to help other families. Thank you so much for the continued support.

With lots of Love!
The O'Briens

Please visit our March for Babies personal website at

www.marchforbabies.org/trinityandkinsley.

Tuesday June 30th

Babies Situation:

The Girls will be 15 weeks tomorrow (40 weeks gestation on Thursday) and it seems like all of a sudden the NICU staff are trying to figure out how to get the Girls home - ASAP. I know they were thinking about it before but suddenly, the babies seem to be getting a lot more attention. Trinity’s test results showed that she has severe reflux which explains why she hasn’t finished a bottle. After about 20 cc’s, Trinity seems to shut down. She’ll go to sleep not wanting to take anymore because at that point, everything starts coming back up all the way to her throat. She has now been taken off breastmilk. They are trying a thicker formula on her to see if that helps. Problem now is that her body knows what happens at 20 cc’s so it is going to take a lot of work to get her over that. Kinsley’s feedings have changed to every 4 hours. So far, it seems to have helped a little bit but she has been very sleepy lately wanting to sleep through her entire feedings.


Parent's Thoughts:

I have to admit that I am a bit frustrated that these tests weren’t done on Trinity weeks ago. We have been trying to bottle feed her for at least 4 weeks and there really hasn’t been any improvement. I feel these tests should have been done after two weeks. Now we are at 40 weeks and it will be another few weeks of trial and error to see what works. Kinsley will get to go home once she can take her required amount by bottle each feed and gains weight. We are very close with her. Thank you God but please help Trinity too.


Our Daily Encouragement:

I will betroth you to Me forever; Yes, I will betroth you to Me In righteousness and justice, In loving kindness and mercy; I will betroth you to Me in faithfulness, And you shall know the Lord.


Hosea 2:19-20

1 comment:

  1. I'm sorry to hear about the severe reflux. Maya also had reflux that was caught before we went home. They think that was causing the apnea spells. They put her on medication (prilosec is the one that worked for her) and it really helped. We never had to take her off of breastmilk. Of course, I don't think her reflux was severe.

    I hope the doctors are able to figure out a way to help Trinity with the reflux quickly so she can go home.

    -Sangeeta

    ReplyDelete