March for Babies - Huge Success!

Family and Friends,

The March of Dimes was a huge success. Thanks to all of your support, we collectively raised more than $2,500 to help other families. Thank you so much for the continued support.

With lots of Love!
The O'Briens

Please visit our March for Babies personal website at

www.marchforbabies.org/trinityandkinsley.

Saturday March 28th

Babies Situation:

We have made it to day 10. They both shows signs of a little growth and each weigh 1 ounce more than when they were born. Trinity now weighs 1 lb 7 ounces. However she seems very figidity. Our Doctor is a little worried as these movements are pretty rhythmic and longer than the normal twitch. Our Doctor decides to give her Theophylline but her caffeine levels seem low as well. Caffeine typically provides some stimulation. The movements are now classified as seizure type events although they are not 100% sure what they are. It could just be the immaturity of the central nervous system as well. Kinsley weighs 1 lb 5 ounces now. She does not have as many seizure like movements so they did not put her on the Theophylline. Her feeds have been increased to every 3 hours which is great. They are both still being closely monitored for Blood Gas to measure oxygen and blood counts. Their breathing seems to be doing OK with rates up and down anywhere from 21-40%.

Parent's Thoughts:

Similar to the oscillators, these seizure like movements are hard to see. Overall we know that they are hanging in there and fighting through each day but with each day they seem to be presented with a different challenge. Our neighbor, a pastor, gives us some needed advice - "Let Go and Let God". We continue to reach out and know that they are getting the best care. The back and forth and continuous thoughts are breaking us down a bit. We reflect and realize that we are not supposed to understand things right now but just need to work through them and be thankful that we have today.

Our Daily Encouragement:


I will instruct you and teach you in the way you should go; I will guide you with My eye.

Psalm 32:8

No comments:

Post a Comment